ankles rolling out

[Guest guest]

Stacey,

You mention that Sheldon walks on the inside of his foot? My granddaughter Kaytie aged two years does this also, she also tends to fall often when she runs. The falling is not related to objects in the way or bumping into things.

Does Sheldon fall at all?

.

Re: ankles rolling out

Not sure if it's similar to Sheldon's gait or not. He has a very wide gait. He has pronated feet, his are kind of rolled in I think, like he's walking more on the inside of his foot than normal. Sounds like it might be the opposite of Grace's. The orthopedist says it's from low muscle tone and he wears scaphoid pads in his shoes to give him more support.

It has been pointed out to me, more than I wish, that Gracie has an unusual gait. I have started to notice the difference between her and other children her age, since this was brought to my attention. The best way I can explain her walk is that she walks sort of like I do (at 32 weeks pregnant.) It is like her hips are spread out, but they appear normal. Also I have noticing her shoes wearing unusually around the heel. The outside of the shoe is much more worn than the inside, and the heel is worn to nothing.

Physically she is developmentaly normal, and can run, jump, climb and even kick a ball. It is just that she looks funny doing it. I did ask Dr. Cohens nurse about this today (I had to call him for other reasons, and just brought it up.) She told me that it sounds like a poor muscle tone issue, and her pediatrician would be the one to follow up on it. I asked her what they usually do about this and she suggested the plastic leg braces, were the typical treatment. My question is do they work, and how? If she is developing normally, why would she need these? I do not want this to get worse, I just don't want to overkill her on things she may be fine without. I am trying to treat what is necessary, and leave the little things alone. Grace already has such "white coat anxiety" I hate to put her through anything that we will not see a positive outlook on. Thanks for any advice, in advance.

Mommy to , , Bre-Anne, and Grace (all dealing with Strep Throat at the same time, I think the CDC is going to tent my house )

Please contact mito-owner with any problems or questions.

[Guest guest]

It has been pointed out to me, more than I wish, that Gracie has an unusual gait. I have started to notice the difference between her and other children her age, since this was brought to my attention. The best way I can explain her walk is that she walks sort of like I do (at 32 weeks pregnant.) It is like her hips are spread out, but they appear normal. Also I have noticing her shoes wearing unusually around the heel. The outside of the shoe is much more worn than the inside, and the heel is worn to nothing.

Physically she is developmentaly normal, and can run, jump, climb and even kick a ball. It is just that she looks funny doing it. I did ask Dr. Cohens nurse about this today (I had to call him for other reasons, and just brought it up.) She told me that it sounds like a poor muscle tone issue, and her pediatrician would be the one to follow up on it. I asked her what they usually do about this and she suggested the plastic leg braces, were the typical treatment. My question is do they work, and how? If she is developing normally, why would she need these? I do not want this to get worse, I just don't want to overkill her on things she may be fine without. I am trying to treat what is necessary, and leave the little things alone. Grace already has such "white coat anxiety" I hate to put her through anything that we will not see a positive outlook on. Thanks for any advice, in advance.

Mommy to , , Bre-Anne, and Grace (all dealing with Strep Throat at the same time, I think the CDC is going to tent my house )

[Guest guest]

Not sure if it's similar to Sheldon's gait or not. He has a very

wide gait. He has pronated feet, his are kind of rolled in I think,

like he's walking more on the inside of his foot than normal. Sounds

like it might be the opposite of Grace's. The orthopedist says it's

from low muscle tone and he wears scaphoid pads in his shoes to give

him more support.

It has

been pointed out to me, more than I wish, that Gracie has an unusual

gait. I have started to notice the difference between her and

other children her age, since this was brought to my attention.

The best way I can explain her walk is that she walks sort

of like I do (at 32 weeks pregnant.) It is like her hips

are spread out, but they appear normal. Also I have noticing her

shoes wearing unusually around the heel. The outside of the shoe

is much more worn than the inside, and the heel is worn to

nothing.

Physically she is developmentaly normal, and can run,

jump, climb and even kick a ball. It is just that she looks

funny doing it. I did ask Dr. Cohens nurse about this today (I

had to call him for other reasons, and just brought it up.) She

told me that it sounds like a poor muscle tone issue, and her

pediatrician would be the one to follow up on it. I asked her

what they usually do about this and she suggested the plastic leg

braces, were the typical treatment. My question is do they work,

and how? If she is developing normally, why would she need

these? I do not want this to get worse, I just don't want to

overkill her on things she may be fine without. I am trying to

treat what is necessary, and leave the little things alone.

Grace already has such " white coat anxiety " I hate to put

her through anything that we will not see a positive outlook on.

Thanks for any advice, in advance.

Mommy to

, , Bre-Anne, and Grace (all dealing with Strep

Throat at the same time, I think the CDC is going to tent my house

)

Please contact mito-owner with any problems or

questions.

Yahoo!

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[Guest guest]

Hi, Becca also wears DAFO's, the #4 like the other poster. They

have helped her tremendously! This is her third pair of SMO's, and

the first of this design, and they are far superior to the other two

she had. Becca has long been " One Shoe Boo " her nickname is Boo

and she would always take at least one shoe off, any chance she

got. Now that she's got the DAFO's, she keeps the shoes on. No red

sore spots, no discomfort at all for her. I'm so glad I called and

made the appointment to have her refitted. She seems much more

confident now, also. Good luck, eileen

> It has been pointed out to me, more than I wish, that Gracie has

an unusual

> gait. I have started to notice the difference between her and

other children

> her age, since this was brought to my attention. The best way I

can explain

> her walk is that she walks sort of like I do (at 32 weeks

pregnant.) It is

> like her hips are spread out, but they appear normal. Also I

have noticing

> her shoes wearing unusually around the heel. The outside of the

shoe is much

> more worn than the inside, and the heel is worn to nothing.

> Physically she is developmentaly normal, and can run, jump, climb

and even

> kick a ball. It is just that she looks funny doing it. I did ask

Dr. Cohens

> nurse about this today (I had to call him for other reasons, and

just brought

> it up.) She told me that it sounds like a poor muscle tone

issue, and her

> pediatrician would be the one to follow up on it. I asked her

what they

> usually do about this and she suggested the plastic leg braces,

were the typical

> treatment. My question is do they work, and how? If she is

developing

> normally, why would she need these? I do not want this to get

worse, I just don't

> want to overkill her on things she may be fine without. I am

trying to treat

> what is necessary, and leave the little things alone. Grace

already has

> such " white coat anxiety " I hate to put her through anything that

we will not

> see a positive outlook on. Thanks for any advice, in advance.

>

> Mommy to , , Bre-Anne, and Grace (all dealing with

Strep

> Throat at the same time, I think the CDC is going to tent my

house )

[Guest guest]

,

When my daughter was younger she had a waddling gait. She never wore

braces. When she was in crisis she would sometimes lose her ability to

walk but eventually get it back. She is still ambulatory. She has

had a stroke affecting the left side and now walks with that foot

turned out. When she is really tired she will sometimes drag that leg

a little. In the last three years if she has an activity that requires

a lot of walking we use a wheelchair so she will have enough energy

left for the activity-like an amusement park. Of course when she was

younger we had no idea what was going on. That may be why nothing was

done about her gait.

Take care, Shelby, mother of , 30 years, mitochondrial

encephalopathy, clinically diagnosed in 1998 by Dr. Kelley, Kennedy

Krieger

> It has been pointed out to me, more than I wish, that Gracie has an

> unusual gait. I have started to notice the difference between her and

> other children her age, since this was brought to my attention.   The

> best way I can explain her walk is that she walks sort of like I do

> (at 32 weeks pregnant.)  It is like her hips are spread out, but they

> appear normal.  Also I have noticing her shoes wearing unusually

> around the heel.  The outside of the shoe is much more worn than the

> inside, and the heel is worn to nothing. 

> Physically she is developmentaly normal, and can run, jump, climb and

> even kick a ball.  It is just that she looks funny doing it.  I did

> ask Dr. Cohens nurse about this today (I had to call him for other

> reasons, and just brought it up.)  She told me that it sounds like a

> poor muscle tone issue, and her pediatrician would be the one to

> follow up on it.  I asked her what they usually do about this and she

> suggested the plastic leg braces, were the typical treatment.  My

> question is do they work, and how?  If she is developing normally, why

> would she need these?  I do not want this to get worse, I just don't

> want to overkill her on things she may be fine without.  I am trying

> to treat what is necessary, and leave the little things alone.  Grace

> already has such " white coat anxiety " I hate to put her through

> anything that we will not see a positive outlook on.  Thanks for any

> advice, in advance. 

>

> Mommy to , , Bre-Anne, and Grace (all dealing with Strep

> Throat at the same time, I think the CDC is going to tent my house

> )

>

>

> Please contact mito-owner with any problems or

> questions.

>

>

>

>

>

[Guest guest]

The fact that her heals and the outside bottoms are wearing so

much is an indication that her gait is off. She is probably widening

her legs for extra balance and has muscle weakness in her legs and

feet. Zipporrah does the same thing and literally stands on the side

of her right foot most of the time. If she does not improve she will

also need leg braces. Asenath began wearing leg braces after her

stroke in April of 2002 at the age of two due to similar issues.

Children can do different things with their walking depending on the

area of weakness. It sounds like she may be hitting mostly her heals

and not much of her toes to the ground representing an off balanced

adaptation to her weakness. Do you notice her feet pointing outwards

at all, or even inwards toward the other foot? This is also common

as well as ataxia which basically means one foot crosses over top the

other foot and then the other crosses over in an attempt to keep

their balance. Some kids toe walk, or walk on curled under toes.

Zipporrah has that issue too. Asenath turns her feet inwards and has

the ataxia with a limp. LEG BRACES ARE A BLESSING! I know it may be

hard to consider her needing more help, but they will help to correct

her bad patterns! If allowed to continue, she will only become worse

as she continues to try to adapt to the weakness. I also definitely

would recommend having your ped. set up a physical therapy evaluation

as they will be able to tell you what is wrong and if she needs

braces and/or therapy to help her correct her walking issues. Asenath

just got her third pair recently. You can get real cool looking

braces that don't have to stick out. Asenath's have purple velcro

and dinosaurs on one area of velcro. The interior is also a pretty

padded surface. The plastic itself is white. Leg braces can be made

differently depending on the need. Some are short and only to just

above the ankles (SMO's), some go up to the knees in one solid piece

(DAFO's), and some are hindged at the ankles for more movement. The

process of making them is kind of interesting also as they very

briefly place a cast on the child's leg/foot and then use the molding

to make an exact fitting brace. You can also purchase pretty nice

shoes that are pretty (Asenath's have hearts that light up on the

sides)that are easier to use with leg braces, or you can buy some

types of shoes that can be stretched and have added velcro to fit

over the braces. Hope this helps some. Probably more than you

wanted to know, but I really believe they are a true blessing rather

than a nuisance.

Darla

> It has been pointed out to me, more than I wish, that Gracie has an

unusual

> gait. I have started to notice the difference between her and

other children

> her age, since this was brought to my attention. The best way I

can explain

> her walk is that she walks sort of like I do (at 32 weeks

pregnant.) It is

> like her hips are spread out, but they appear normal. Also I have

noticing

> her shoes wearing unusually around the heel. The outside of the

shoe is much

> more worn than the inside, and the heel is worn to nothing.

> Physically she is developmentaly normal, and can run, jump, climb

and even

> kick a ball. It is just that she looks funny doing it. I did ask

Dr. Cohens

> nurse about this today (I had to call him for other reasons, and

just brought

> it up.) She told me that it sounds like a poor muscle tone issue,

and her

> pediatrician would be the one to follow up on it. I asked her

what they

> usually do about this and she suggested the plastic leg braces,

were the typical

> treatment. My question is do they work, and how? If she is

developing

> normally, why would she need these? I do not want this to get

worse, I just don't

> want to overkill her on things she may be fine without. I am

trying to treat

> what is necessary, and leave the little things alone. Grace

already has

> such " white coat anxiety " I hate to put her through anything that

we will not

> see a positive outlook on. Thanks for any advice, in advance.

>

> Mommy to , , Bre-Anne, and Grace (all dealing with

Strep

> Throat at the same time, I think the CDC is going to tent my

house )

[Guest guest]

Asenath has an interesting pattern to her feet. One is pronated

and the other is suppinated. I know that spelling is off! So many

different things can happen with low tone muscles or high tone

muscles.

Darla

> Not sure if it's similar to Sheldon's gait or not. He has a very

wide

> gait. He has pronated feet, his are kind of rolled in I think, like

> he's walking more on the inside of his foot than normal. Sounds

like

> it might be the opposite of Grace's. The orthopedist says it's from

> low muscle tone and he wears scaphoid pads in his shoes to give him

> more support.

>

>

>

> >It has been pointed out to me, more than I wish, that Gracie has

an

> >unusual gait. I have started to notice the difference between her

> >and other children her age, since this was brought to my

attention.

> >The best way I can explain her walk is that she walks sort of like

I

> >do (at 32 weeks pregnant.) It is like her hips are spread out,

but

> >they appear normal. Also I have noticing her shoes wearing

> >unusually around the heel. The outside of the shoe is much more

> >worn than the inside, and the heel is worn to nothing.

> >Physically she is developmentaly normal, and can run, jump, climb

> >and even kick a ball. It is just that she looks funny doing it.

I

> >did ask Dr. Cohens nurse about this today (I had to call him for

> >other reasons, and just brought it up.) She told me that it

sounds

> >like a poor muscle tone issue, and her pediatrician would be the

one

> >to follow up on it. I asked her what they usually do about this

and

> >she suggested the plastic leg braces, were the typical treatment.

> >My question is do they work, and how? If she is developing

> >normally, why would she need these? I do not want this to get

> >worse, I just don't want to overkill her on things she may be fine

> >without. I am trying to treat what is necessary, and leave the

> >little things alone. Grace already has such " white coat anxiety "

I

> >hate to put her through anything that we will not see a positive

> >outlook on. Thanks for any advice, in advance.

> >

> >Mommy to , , Bre-Anne, and Grace (all dealing with

> >Strep Throat at the same time, I think the CDC is going to tent my

> >house )

> >

> >

> >Please contact mito-owner with any problems or

questions.

> >

> >