HAWAII-Does anyone live there?

[Guest guest]

Hi,

I am wondering if any of you mito folks live in Hawaii and if so, which

island and who do you recommend seeing there for Mito?

Thanks,

Shirley, mom to and Jordan, Mito Myopathy

[Guest guest]

> Hi,

>

> I am wondering if any of you mito folks live in Hawaii and if so, which

> island and who do you recommend seeing there for Mito?

>

The only mito doc I've heard about in HI is the same one that we have here in

IL and I have not heard good things about him at all. From what I've heard, he

tends only to diagnose those with severe DD and who have known genetic

mutations (which comprise about 3% of the cases). My guess is that for an

acurate diagnosis, you'll have to go out of state.