Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 Has anyone ever seen the following symptoms in their child with elevated ammonia? headache blurred vision uncoordinated pounding heart beat feeling of "fogginess" did I say bad headache?? Insomnia with Nightmares low grade temp 99-100 I know most everything I read says lethargy but I am guessing that is with extremely high ammonia levels. Carsen was pretty lethargic at 285. Mine blood ammonia is 174 tonight. I just came from the ER and all labs were good except for my ammonia level. It was put directly on ice right in front of me too. I have been unable to fall asleep for 3 nights! I litterly have not slept for 3 full nights. If I do fall asleep, my brain keeps going and having nightmares and the thought process seems to continue. I wake right back up after dosing off. I am pretty disoriented but am mentally aware of what's going on. Just feel really off balance. You think the insomnia is just "my" response. I know everyone responds to elevated ammonia differently. I have NOT done this in 4 years! My brain is working over time and cannot get any rest. It's affecting my whole body My head is hurting really bad and my heart feels like a cement block is on it. My ECG was abnormal too. I knew I had a right bundle branch blockage which showed up but so did some other things like: early transition....QRS positive in V2 & Supraventricular interpolated complex. I can feel every beat my heart makes. So scary feeling. I was given one dose of lactulose for tonight(oral soln) 20g/30ml. I really hope this works. I go back tomorrow for a repeat ammonia level to see if it's down. I also developed a low grade temp. at 99.8. Anyone with any information on this? The ER doc. didn't think my symptoms went along with elevated ammonia but treated me with lactulose anyway. All of my symptoms do go with high ammonia except for the insomnia from what I understand ???? I am going to my boys ped. cardiologist in the morning to see what she can do for me. I feel like my body is falling apart. Krystena s Quote Link to comment Share on other sites More sharing options...
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