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LOGAN'S BAD DAY

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HI I AM LOGAN'S DAD. MY WIFE CHATS WITH YOU GUYS AND SHE WANTED TO

LET YOU ALL KNOW HOW HIS CT SCAN WENT TODAY.

LOGAN WENT UNDER GENERAL ANESTHETIC, AND DID NOT WANT TO WAKE UP

THEY ARE KEEPING HIM OVER NIGHT . HAVE ANY OF YOU EVER HAD A PROBLEM

WITH ANESTHISIA? I AM STILL LEARNING ABOUT THIS DISEASE JENNIE IS

ALOT MORE KNOWLEDGEABLE ABOUT IT THAN I AM. SHE WOULD LIKE TO KNOW

IF YOU GUYS WOULD SAY A LITTLE PRAYER TONIGHT FOR THEM . THANKS FOR

YOUR TIME AND THANKS FOR ALL THE HELP YOU HAVE GIVEN MY WIFE.

BILL PROUD DAD OF LOGAN 2 YEARS OLD.

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I'll be praying for Logan!

e

> HI I AM LOGAN'S DAD. MY WIFE CHATS WITH YOU GUYS AND SHE WANTED TO

> LET YOU ALL KNOW HOW HIS CT SCAN WENT TODAY.

> LOGAN WENT UNDER GENERAL ANESTHETIC, AND DID NOT WANT TO WAKE UP

> THEY ARE KEEPING HIM OVER NIGHT . HAVE ANY OF YOU EVER HAD A

PROBLEM

> WITH ANESTHISIA? I AM STILL LEARNING ABOUT THIS DISEASE JENNIE IS

> ALOT MORE KNOWLEDGEABLE ABOUT IT THAN I AM. SHE WOULD LIKE TO KNOW

> IF YOU GUYS WOULD SAY A LITTLE PRAYER TONIGHT FOR THEM . THANKS

FOR

> YOUR TIME AND THANKS FOR ALL THE HELP YOU HAVE GIVEN MY WIFE.

> BILL PROUD DAD OF LOGAN 2 YEARS OLD.

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Hi Bill:

Yes- my son had ear surgery and his adenoids out right before he turned 4. He would not wake up.

He finally woke up about 1 pm the next day.... weird and very scary.

Ever since, we have the anesthesiologist use only non-triggering agents.

Cindy- GA

LOGAN WENT UNDER GENERAL ANESTHETIC, AND DID NOT WANT TO WAKE UP THEY ARE KEEPING HIM OVER NIGHT . HAVE ANY OF YOU EVER HAD A PROBLEM WITH ANESTHISIA?

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Bill,

Unfortunately it is not uncommon for Mito people to have problems with General Anesthesia. Do you know if they took the Mito precautions with the anesthesia that DR Cohen recommends? I know I always do better if these are taken. You guys are in my thoughts tonight! And by the way, Good Daddy for trying to learn what is going on with your child. Your wife will need your understanding and support as you travel the Mito Road. It will be important that you know as much as she does about your sons needs for his illness. I am so glad to see that you have taken the first step. Give them my best!

HUGS!

O and crew - Kira, , and Krisalynn Mitochondrial Myopathy-MIDS Maternally Inherited Dysautonomia- NVD ( Nuro Vascular Dystrophy) and dad Enrique

Visit our web page: WWW. caringbridge.org/ca/mitooggo

Help support my sister in her new business at : Come and see what's NEW! http://www.youravon.com/elleenmiller Your AVON representative (Sign in passcode: ElleensAVON if you are signing in for the first time :-)

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Logan is in our prayers

>

>Reply-To: Mito

>To: Mito

>Subject: LOGAN'S BAD DAY

>Date: Wed, 28 Jul 2004 03:35:26 -0000

>

>HI I AM LOGAN'S DAD. MY WIFE CHATS WITH YOU GUYS AND SHE WANTED TO

>LET YOU ALL KNOW HOW HIS CT SCAN WENT TODAY.

>LOGAN WENT UNDER GENERAL ANESTHETIC, AND DID NOT WANT TO WAKE UP

>THEY ARE KEEPING HIM OVER NIGHT . HAVE ANY OF YOU EVER HAD A PROBLEM

>WITH ANESTHISIA? I AM STILL LEARNING ABOUT THIS DISEASE JENNIE IS

>ALOT MORE KNOWLEDGEABLE ABOUT IT THAN I AM. SHE WOULD LIKE TO KNOW

>IF YOU GUYS WOULD SAY A LITTLE PRAYER TONIGHT FOR THEM . THANKS FOR

>YOUR TIME AND THANKS FOR ALL THE HELP YOU HAVE GIVEN MY WIFE.

> BILL PROUD DAD OF LOGAN 2 YEARS OLD.

>

>

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Bill & Jennie, my daughter always has this problem when she goes under general anesthesia. It always freaks the nurses out, but she usually bounces back after 12 to 24 hrs. She only stays inpatient if the anestesia was for surgery (except ear tube placement). Chelsea is 100% tube fed, and has an excellent ped, so I think that is why she is sent home before she is fully awake. They do at least like to see her rouse a bit, but that is easier said than done. My feeling is if her vitals are stable and she is not need ing O2, then she is probably fine. Other than the excessive grogginess, she tolerates anethesia farily well.

e, Chelsea's mom(nonspecific mito)

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My kids had problems with waking up also- we only use IV anesthesia/ non-triggering agents.

Cindy-GA

Re: LOGAN'S BAD DAY

Bill & Jennie, my daughter always has this problem when she goes under general anesthesia. It always freaks the nurses out, but she usually bounces back after 12 to 24 hrs. She only stays inpatient if the anestesia was for surgery (except ear tube placement). Chelsea is 100% tube fed, and has an excellent ped, so I think that is why she is sent home before she is fully awake. They do at least like to see her rouse a bit, but that is easier said than done. My feeling is if her vitals are stable and she is not need ing O2, then she is probably fine. Other than the excessive grogginess, she tolerates anethesia farily well.

e, Chelsea's mom(nonspecific mito)Please contact mito-owner with any problems or questions.

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