Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 , Next time you are to call the Ophthalmologist right away--do not wait for morning. I hope she told you this. It doesn't matter that it's Christmas-- this is why there is ALWAYS an MD on call. You call her office, and if she's not the one on call-- then she has someone who is. Loss of vision, is so very serious. All the structures of the eye are very, very thin--the macula and retina are only a couple of skins cells deep-- and if they tear or split apart- it can be repaired, if you get on it immediately. Arrrghh, Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Hey gang, just a little update.. I lost my vision in my Right eye again last night, just started getting darker and darker and by bedtime, I could see absoultely nothing...This morning I had a physical therapy appointment but when I got to Nashville by way of public transportation, I was early so I decided to go to the eye surgeon's office so she could take a look, turns out she says its just debrie that won't clear up and go away and its lodged itself in front of my pupil blocking my vision... So, she proceeded to give me two injections into my eye.. OMG, I thought I would die just thinking about it, waiting for the Vancomycin to come from the pharmacy.. but then the moment of truth came and yes it was pretty aweful. She had to remove fluid from my eye to accomadate the fluid she was about to inject... and that god aweful pain just above my eye happened yet once again.. she did do new cultures, and injected not only the antibiotic but a steriod injection as well.. I hope everyone had a marvelous Christmas and free of pain.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Yes Tracie, I understand.. I have but one problem, even if I called I had no way of getting there except via ambulance.. and I don't think they would consider going to the doctor's office an emergency at night. My dad has parkinson's and isn't doing that well, and my son well he's 17 and we all know how that is.. I couldn't drive myself, so I was stuck.. and actually I didn't freak and get too excited so my blood pressure wasn't outrageous.. I know what you're saying is true and she was very concerned that I had ripped my retina, I had an ultrasound and it was ok.. just shows this huge stuborn debrie that has blocked my vision.. I thought is was going away, but for some reason it decided to meld together again.. I have the surgeon's cell phone number and she has instructed me to call her ASAP.. and I will should it happen again. However, I don't know how many more of these injections I can endure.. they are quite painful, and something I wouldn't want to wish on my worse enemy.. Thanks friend as I know you are concerned, and I appreciate that.. I'm just trying to do the best I can with what I've got to work with. Hugs, -- Re: Eye Problems and update ,Next time you are to call the Ophthalmologist right away--do not wait for morning. I hope she told you this. It doesn't matter that it's Christmas-- this is why there is ALWAYS an MD on call. You call her office, and if she's not the one on call-- then she has someone who is. Loss of vision, is so very serious. All the structures of the eye are very, very thin--the macula and retina are only a couple of skins cells deep-- and if they tear or split apart- it can be repaired, if you get on it immediately. Arrrghh,Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Hi , Just want to tell you that I think of you everyday. You're in my prayers. Hang in there my friend. May God Bless you. Becky wrote: Hey gang, just a little update.. I lost my vision in my Right eye again last night, just started getting darker and darker and by bedtime, I could see absoultely nothing...This morning I had a physical therapy appointment but when I got to Nashville by way of public transportation, I was early so I decided to go to the eye surgeon's office so she could take a look, turns out she says its just debrie that won't clear up and go away and its lodged itself in front of my pupil blocking my vision... So, she proceeded to give me two injections into my eye.. OMG, I thought I would die just thinking about it, waiting for the Vancomycin to come from the pharmacy.. but then the moment of truth came and yes it was pretty aweful. She had to remove fluid from my eye to accomadate the fluid she was about to inject... and that god aweful pain just above my eye happened yet once again.. she did do new cultures, and injected not only the antibiotic but a steriod injection as well.. I hope everyone had a marvelous Christmas and free of pain.. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Becky, are you up this early? Its 4:20am.. and if you have yahoo messenger.. give me a buzz my user name is stopdat2005.. Hugs, -- Re: Eye Problems and update Hi , Just want to tell you that I think of you everyday. You're in my prayers. Hang in there my friend. May God Bless you. Becky <topdat (AT) bellsouth (DOT) net> wrote: Hey gang, just a little update.. I lost my vision in my Right eye again last night, just started getting darker and darker and by bedtime, I could see absoultely nothing...This morning I had a physical therapy appointment but when I got to Nashville by way of public transportation, I was early so I decided to go to the eye surgeon's office so she could take a look, turns out she says its just debrie that won't clear up and go away and its lodged itself in front of my pupil blocking my vision... So, she proceeded to give me two injections into my eye.. OMG, I thought I would die just thinking about it, waiting for the Vancomycin to come from the pharmacy.. but then the moment of truth came and yes it was pretty aweful. She had to remove fluid from my eye to accomadate the fluid she was about to inject... and that god aweful pain just above my eye happened yet once again.. she did do new cultures, and injected not only the antibiotic but a steriod injection as well.. I hope everyone had a marvelous Christmas and free of pain.. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Hi ...I don't have yahoo messenger but can I call you?Blessings,Becky wrote: Becky, are you up this early? Its 4:20am.. and if you have yahoo messenger.. give me a buzz my user name is stopdat2005.. Hugs, -- Re: Eye Problems and update Hi , Just want to tell you that I think of you everyday. You're in my prayers. Hang in there my friend. May God Bless you. Becky <topdat (AT) bellsouth (DOT) net> wrote: Hey gang, just a little update.. I lost my vision in my Right eye again last night, just started getting darker and darker and by bedtime, I could see absoultely nothing...This morning I had a physical therapy appointment but when I got to Nashville by way of public transportation, I was early so I decided to go to the eye surgeon's office so she could take a look, turns out she says its just debrie that won't clear up and go away and its lodged itself in front of my pupil blocking my vision... So, she proceeded to give me two injections into my eye.. OMG, I thought I would die just thinking about it, waiting for the Vancomycin to come from the pharmacy.. but then the moment of truth came and yes it was pretty aweful. She had to remove fluid from my eye to accomadate the fluid she was about to inject... and that god aweful pain just above my eye happened yet once again.. she did do new cultures, and injected not only the antibiotic but a steriod injection as well.. I hope everyone had a marvelous Christmas and free of pain.. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 , If you were to call her and tell her the problem, and that you don't have transportation to her office-- 10 to 1--she'd come get you. You know that vision- and the thought of losing it--is my biggest fear--and since I understand what the signs and symptoms of danger--or as you and I know the terminology to be-- Emergent issues where you work that patient in as they come thru the door-- you know me. I'm gonna ride everyones butt to make sure they don't have to deal with the permanent loss of vision. I can't imagine not being able to see the dewdrops on a spider web, or on a rose. It's no longer clear like it used to be, but I am fortunate enough to be able to see. Do you remember when Shar, who was an MD, PhD, MFT and more-- lost her vision to acute glaucoma when you and I were first newbies with this group? Because I had reminded her of eye health 101-- she was able to save her vision in one eye, and she lost it in the other. Even for those of us that know better, we need to be reminded--and not become lacksadaysicle about the things we have. Coming from my heart, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Tracie, I hear ya.. I live about an hour and 15 min away, I don't know that she's that dedicated.. but she is very concerned and has come running when I do get there.. I certainly don't want to lose my vision either..My mom has this attitude that we're all gonna die of something.. and she's already told me, "I've done all I can do" Damian left this morning for a 3 day basketball camp and didn't tell me. I knew he had a basketball game but I thought he'd becoming home afterward.. He took my vehicle and left it at the school, not that I could drive it.. but that pretty much leaves me here alone. I found out tonight about 8pm, and thanks to Becky for trying to calm me down, in the chat room... You know, I feel sometimes like I'm sinking, that I've swam all I could swim and that I'm going under for the third time... and everything is standing on my head trying to hold me under...I'm tired of fighting with doctors, I'm tired of fighting with family...however, I know that when I stop fighting, I've lost the battle... Thanks for sharing a peice of your heart with me. Hugs, -- Re: Eye Problems and update ,If you were to call her and tell her the problem, and that you don't have transportation to her office-- 10 to 1--she'd come get you. You know that vision- and the thought of losing it--is my biggest fear--and since I understand what the signs and symptoms of danger--or as you and I know the terminology to be-- Emergent issues where you work that patient in as they come thru the door-- you know me. I'm gonna ride everyones butt to make sure they don't have to deal with the permanent loss of vision. I can't imagine not being able to see the dewdrops on a spider web, or on a rose. It's no longer clear like it used to be, but I am fortunate enough to be able to see.Do you remember when Shar, who was an MD, PhD, MFT and more-- lost her vision to acute glaucoma when you and I were first newbies with this group? Because I had reminded her of eye health 101-- she was able to save her vision in one eye, and she lost it in the other. Even for those of us that know better, we need to be reminded--and not become lacksadaysicle about the things we have. Coming from my heart,TracieNS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 , I hope that Damien has called you and that he knows he was wrong. The hurt from our kids is the greatest one of all. You both are in my prayers. This teenage hormonal thing (some go through it at 12 and some later) is a challenge beyond anything we ever dreamed of...they talk about "terrible twos" in the books but hold back on us when it comes to the "tear your heart out at age of double digits". For those parents that don't go through this, that's wonderful but I dare say there are more that do. You know you have been and are a wonderful and loving parent. Damien knows this too. Your last sentences really hit home. I believe that you summed up how many of us feel at some point battling this disease. Sarcoidosis = f-i-g-h-t. We fight to survive...you as a nurse and I also never imagined we would be fighting physicians and the medical establishment to obtain basic, common sense care. We were in this field (probably a connection to getting it) and gave our all to help others. Now, we find ourselves at the other end and see just how many don't care. There are some good ones but it only takes a few who don't care to put them first and foremost in our minds. When you add lack of family support which many experience it seems almost insurmountable. We are your family here and will be here 24/7. Damien will come around. There are no straight clear cut answers...these kids have a mind of their own. The worst hurt is that you're already going through a terrible time in your life right now and this is the lead weight that is trying to sink you. But, my dear friend, you ARE unsinkable. You are and will remain in my prayers.Love and Blessings,Becky wrote: Tracie, I hear ya.. I live about an hour and 15 min away, I don't know that she's that dedicated.. but she is very concerned and has come running when I do get there.. I certainly don't want to lose my vision either..My mom has this attitude that we're all gonna die of something.. and she's already told me, "I've done all I can do" Damian left this morning for a 3 day basketball camp and didn't tell me. I knew he had a basketball game but I thought he'd becoming home afterward.. He took my vehicle and left it at the school, not that I could drive it.. but that pretty much leaves me here alone. I found out tonight about 8pm, and thanks to Becky for trying to calm me down, in the chat room... You know, I feel sometimes like I'm sinking, that I've swam all I could swim and that I'm going under for the third time... and everything is standing on my head trying to hold me under...I'm tired of fighting with doctors, I'm tired of fighting with family...however, I know that when I stop fighting, I've lost the battle... Thanks for sharing a peice of your heart with me. Hugs, -- Re: Eye Problems and update ,If you were to call her and tell her the problem, and that you don't have transportation to her office-- 10 to 1--she'd come get you. You know that vision- and the thought of losing it--is my biggest fear--and since I understand what the signs and symptoms of danger--or as you and I know the terminology to be-- Emergent issues where you work that patient in as they come thru the door-- you know me. I'm gonna ride everyones butt to make sure they don't have to deal with the permanent loss of vision. I can't imagine not being able to see the dewdrops on a spider web, or on a rose. It's no longer clear like it used to be, but I am fortunate enough to be able to see.Do you remember when Shar, who was an MD, PhD, MFT and more-- lost her vision to acute glaucoma when you and I were first newbies with this group? Because I had reminded her of eye health 101-- she was able to save her vision in one eye, and she lost it in the other. Even for those of us that know better, we need to be reminded--and not become lacksadaysicle about the things we have. Coming from my heart,TracieNS Co-owner/moderator __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Becky, thank you again for your help last night and this email.. ya know.. I was just getting the news last night when you came into the chat room, I was bawling like a huge baby, and yet you helped me, calm down in a bit by sharing your own life experience with kids.. What some people may not know is Damian is adopted.. I am single and have never married.. not because I didnt want to, I was just too busy to settle down.. When I was 38 I let some friends talk me into being a foster parent as I had left the ER and was wanting so stability in my life.. I got this little skinny, pale with dark circles under his eye 5 year old, that had been abanndoned and needed a home.. I fell totally in love with this kid and would have fought the devil his self to make sure nothing, and I mean "NOTHING" would ever hurt him again. He's been my life, and now its getting close to letting go, and I'm willing to do that when the time comes.. but its not now.. just not now.. Anyway, I think it was Rose that gave me the thought that at age 16 aliens take our kids away, and bring them back somewhere around 26.. that sounds funny, but it has helped me see its not just me failing.. it happens.. Gotta run, for now.. Love ya, -- Re: Eye Problems and update ,If you were to call her and tell her the problem, and that you don't have transportation to her office-- 10 to 1--she'd come get you. You know that vision- and the thought of losing it--is my biggest fear--and since I understand what the signs and symptoms of danger--or as you and I know the terminology to be-- Emergent issues where you work that patient in as they come thru the door-- you know me. I'm gonna ride everyones butt to make sure they don't have to deal with the permanent loss of vision. I can't imagine not being able to see the dewdrops on a spider web, or on a rose. It's no longer clear like it used to be, but I am fortunate enough to be able to see.Do you remember when Shar, who was an MD, PhD, MFT and more-- lost her vision to acute glaucoma when you and I were first newbies with this group? Because I had reminded her of eye health 101-- she was able to save her vision in one eye, and she lost it in the other. Even for those of us that know better, we need to be reminded--and not become lacksadaysicle about the things we have. Coming from my heart,TracieNS Co-owner/moderator __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 ,It was so good to talk with you last night. Damian is one lucky young man to have you in his life. You're like a mother lion protecting her cub...good moms are like that. You're a giving person. You've helped me so much too. I'm glad that I was able to be there for you. I think Rose is right about the alien abduction thing! Love and Blessings,Becky wrote: Becky, thank you again for your help last night and this email.. ya know.. I was just getting the news last night when you came into the chat room, I was bawling like a huge baby, and yet you helped me, calm down in a bit by sharing your own life experience with kids.. What some people may not know is Damian is adopted.. I am single and have never married.. not because I didnt want to, I was just too busy to settle down.. When I was 38 I let some friends talk me into being a foster parent as I had left the ER and was wanting so stability in my life.. I got this little skinny, pale with dark circles under his eye 5 year old, that had been abanndoned and needed a home.. I fell totally in love with this kid and would have fought the devil his self to make sure nothing, and I mean "NOTHING" would ever hurt him again. He's been my life, and now its getting close to letting go, and I'm willing to do that when the time comes.. but its not now.. just not now.. Anyway, I think it was Rose that gave me the thought that at age 16 aliens take our kids away, and bring them back somewhere around 26.. that sounds funny, but it has helped me see its not just me failing.. it happens.. Gotta run, for now.. Love ya, -- Re: Eye Problems and update ,If you were to call her and tell her the problem, and that you don't have transportation to her office-- 10 to 1--she'd come get you. You know that vision- and the thought of losing it--is my biggest fear--and since I understand what the signs and symptoms of danger--or as you and I know the terminology to be-- Emergent issues where you work that patient in as they come thru the door-- you know me. I'm gonna ride everyones butt to make sure they don't have to deal with the permanent loss of vision. I can't imagine not being able to see the dewdrops on a spider web, or on a rose. It's no longer clear like it used to be, but I am fortunate enough to be able to see.Do you remember when Shar, who was an MD, PhD, MFT and more-- lost her vision to acute glaucoma when you and I were first newbies with this group? Because I had reminded her of eye health 101-- she was able to save her vision in one eye, and she lost it in the other. Even for those of us that know better, we need to be reminded--and not become lacksadaysicle about the things we have. Coming from my heart,TracieNS Co-owner/moderator __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Oh , my eyes hurt for you, I hope you are doing better now, I will keep you in my prayers. Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Sent: Wednesday, December 27, 2006 7:23 PM To: NS Group Subject: Eye Problems and update Hey gang, just a little update.. I lost my vision in my Right eye again last night, just started getting darker and darker and by bedtime, I could see absoultely nothing...This morning I had a physical therapy appointment but when I got to Nashville by way of public transportation, I was early so I decided to go to the eye surgeon's office so she could take a look, turns out she says its just debrie that won't clear up and go away and its lodged itself in front of my pupil blocking my vision... So, she proceeded to give me two injections into my eye.. OMG, I thought I would die just thinking about it, waiting for the Vancomycin to come from the pharmacy.. but then the moment of truth came and yes it was pretty aweful. She had to remove fluid from my eye to accomadate the fluid she was about to inject... and that god aweful pain just above my eye happened yet once again.. she did do new cultures, and injected not only the antibiotic but a steriod injection as well.. I hope everyone had a marvelous Christmas and free of pain.. Quote Link to comment Share on other sites More sharing options...
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