Guest guest Posted December 25, 2009 Report Share Posted December 25, 2009 Hi Marilyn- Hmm... I can feel the aroma of your cooking in TX! Well, I was wondering if it'd help to ask the manufacturers (NOW foods) for legality of their products in terms of additives?? -Andy. > >Granulated fructose (or even liquid) that is > >sold as " fructose " has a mixture of other > >trisaccharides, etc. in it. It is extracted from > >corn and they are not too fussy about > >eliminating a few molecules of whatever that may get in with it. > > Andy, > > OK, I'm running back and forth to the computer > from the kitchen (I'm cooking Christmas dinner, > fer ghu's sake!) and may have mis-read it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2009 Report Share Posted December 25, 2009 At 04:31 PM 12/25/2009, you wrote: >> Hmm... I can feel the aroma of your cooking in TX! << It's almost ready... just the spinach and brie sauce to finish up. >> Well, I was wondering if it'd help to ask the manufacturers (NOW foods) for legality of their products in terms of additives?? << NOW is generally pretty reliable. At the very least, you should have no other illegals if you decide to go with the d-mannose. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2009 Report Share Posted December 25, 2009 Marilyn, I'm on a plane to YOUR house!!! MMMMMMM PJ > > >> Hmm... I can feel the aroma of your cooking in TX! << > > It's almost ready... just the spinach and brie sauce to finish up. > > > >> Well, I was wondering if it'd help to ask > > the manufacturers (NOW foods) for legality of > > their products in terms of additives?? << > > NOW is generally pretty reliable. At the very > least, you should have no other illegals if you > decide to go with the d-mannose. > > > — Marilyn > New Orleans, Louisiana, USA > Undiagnosed IBS since 1976, SCD since 2001 > Darn Good SCD Cook > No Human Children > Shadow & Sunny Longhair Dachshund > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2009 Report Share Posted December 25, 2009 My symptoms were the same as yours except for the coloration of the genitals. I didn't have that. I got the D-Mannose at a local health food store. It is the NOW brand but any brand is fine, just make sure that it is the ONLY ingredient in the product with no fillers. Now is pure D-Mannose. I think it's wise to take the cipro while you're waiting for the test results. It should be fine for you if you tolerate antibiotics well (I don't). Make sure you are eating yogurt and taking probiotics so that you are replenishing your gut with good bacteria. The cipro kills both good and bad and the probiotics will help you there. As far as what's legal and what's not according to SCD, let someone else on the forum fill you in on that. I'm still fairly new at this myself and I don't always know the answer to those questions. Do you have the links to the legal and illegal list for foods and for vitamin fillers? If not, let me know and I will post it for you. What all is in the cranberry pills you bought? I did find this information about D-Mannose and as far as I can tell it appears to be legal. Maybe someone else can confirm this. Here's the link http://pecanbread.com/p/tanya/d-mannose_in_fruit.html. Hope this helps. > > > > Yes, burning sensation and swollen glands. I was having a severe burning sensation when urinating. The doctor tested me for UTI's and did some other culture tests to see if I had anything else going on. He did the " finger test " too and said my prostate was slightly enlarged (psa fine). He said that even though there is no infection according to the test to go ahead and take cypro. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2009 Report Share Posted December 26, 2009 I have started taking Cranberry juice concentrates, Oil of oregano, and going to take D-mannose and, may be, Uva-ursi. Are these (i) useful in preventing UTI or treating an existing infection; (ii) if these would make my UTI/prostatitis asymptomatic or the bacteria would be killed? Being new to natural medicine, my fear is that if I don't take antibiotics, I may have kidney infection and I wouldn't know till its too late?? I just occurred to me that with antibiotics, it is binary -- otherwise it could be more dangerous -Andy. > > Yes, burning sensation and swollen glands. I was having a severe burning sensation when urinating. The doctor tested me for UTI's and did some other culture tests to see if I had anything else going on. He did the " finger test " too and said my prostate was slightly enlarged (psa fine). He said that even though there is no infection according to the test to go ahead and take cypro. > > I decided to research natural remedies and found tons of information on d-mannose and UTI's and prostatitis. Plus, I belong to lymenet forum and many people with lyme (I have lyme disease) tend to deal with these issues. Several people on the lyme forum told me about d-mannose and how it helped them. I tried it and it cleared it up for me in about a week to ten days. > > If you have a positive test you probably need the antibiotics because that would show you have an active infection and could cause considerable damage to your kidneys if left untreated. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2009 Report Share Posted December 26, 2009 Start out slowly on oil of oregano - it can be very potent antibacterial/ antimicrobial stuff. 1 or 2 drops in water - was the advice I was given - and then work up from there. Don't know about the others. Mara > > I have started taking Cranberry juice concentrates, Oil of oregano, and going to take D-mannose and, may be, Uva-ursi. > > Are these (i) useful in preventing UTI or treating an existing infection; (ii) if these would make my UTI/prostatitis asymptomatic or the bacteria would be killed? > > Being new to natural medicine, my fear is that if I don't take antibiotics, I may have kidney infection and I wouldn't know till its too late?? > > I just occurred to me that with antibiotics, it is binary -- otherwise it could be more dangerous > > -Andy. > > >> >> Yes, burning sensation and swollen glands. I was having a severe burning sensation when urinating. The doctor tested me for UTI's and did some other culture tests to see if I had anything else going on. He did the " finger test " too and said my prostate was slightly enlarged (psa fine). He said that even though there is no infection according to the test to go ahead and take cypro. >> >> I decided to research natural remedies and found tons of information on d-mannose and UTI's and prostatitis. Plus, I belong to lymenet forum and many people with lyme (I have lyme disease) tend to deal with these issues. Several people on the lyme forum told me about d-mannose and how it helped them. I tried it and it cleared it up for me in about a week to ten days. >> >> If you have a positive test you probably need the antibiotics because that would show you have an active infection and could cause considerable damage to your kidneys if left untreated. >> >> >> > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2009 Report Share Posted December 26, 2009 At 07:55 AM 12/26/2009, you wrote: I have started taking Cranberry juice concentrates, Oil of oregano, and going to take D-mannose and, may be, Uva-ursi. Uhm, first of all, while I respect your desire to deal with the infection without antibiotics (and in point of fact, my beloved SHadow currently has a UTI and we're treating it naturally), be aware that just because something is " all natural " does not mean it won't have a profound effect on your system. And when you pile in three or four or five natural remedies, and your system DOES react, guess what you're likely to blame? Not the supplements... no one EVER blames their supplements. They blame SCD, and say it doesn't work, even when they've had proof that it does. Keep in mind that while antibiotics can really do a number on our guts, they have their place in the scheme of things. I say this as someone who is a historian of the art and science of medicine -- while there are many facets of modern medicine (including the attitude of Big Pharma and some doctors) with which I disagree, I also know what it was like before the introduction of antisepsis and antibiotics. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2009 Report Share Posted December 27, 2009 Marilyn- That's good advice: I am using Cranberry pills and will try very little D-mannose today to begin with to see how I respond. I agree with you on antibiotics -- it certainly has its place. I went to another doc yesterday for a 2nd opinion: He looked at the red patchy coloration on my glans (genital tip) and said that looks more fungal than bacterial!! He prescribed an oral antifungal (Diflucan - once a week) and some topical cream (Lotrisone). He has asked me to wait till we get the urine results for an antibiotic treatment. I don't know if fungal infection of gentials will result in frequent urination or inflamed groin lymph nodes etc... Has any one experienced this or a possible link with SCD & Candida overgrowth? That aside, I used to be a Rice-based vegetarian pre-SCD. Since SCD, its been a total shift to meat/poultry/fish. Would that influence kidney function? -Andy. > Uhm, first of all, while I respect your desire to > deal with the infection without antibiotics (and > in point of fact, my beloved SHadow currently has > a UTI and we're treating it naturally), be aware > that just because something is " all natural " does > not mean it won't have a profound effect on your system. > > And when you pile in three or four or five > natural remedies, and your system DOES react, > guess what you're likely to blame? Not the > supplements... no one EVER blames their > supplements. They blame SCD, and say it doesn't > work, even when they've had proof that it does. > > Keep in mind that while antibiotics can really do > a number on our guts, they have their place in the scheme of things. > > I say this as someone who is a historian of the > art and science of medicine -- while there are > many facets of modern medicine (including the > attitude of Big Pharma and some doctors) with > which I disagree, I also know what it was like > before the introduction of antisepsis and antibiotics. > > > — Marilyn > New Orleans, Louisiana, USA > Undiagnosed IBS since 1976, SCD since 2001 > Darn Good SCD Cook > No Human Children > Shadow & Sunny Longhair Dachshund > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2009 Report Share Posted December 27, 2009 This isn't about the recent post but a thought. Are you currently taking Cipro and the prednisone? Sometimes just the Cipro can calm a flare so you may not need the prednisone. You may want to try the Cipro first (and it may have been someone else writing in on that--and everyone is different but wanted to catch you on the prednisone--it's really not a fun drug at any dose). Debbie 40 cd Marilyn-That's good advice: I am using Cranberry pills and will try very little D-mannose today to begin with to see how I respond.I agree with you on antibiotics -- it certainly has its place. I went to another doc yesterday for a 2nd opinion: He looked at the red patchy coloration on my glans (genital tip) and said that looks more fungal than bacterial!! He prescribed an oral antifungal (Diflucan - once a week) and some topical cream (Lotrisone). He has asked me to wait till we get the urine results for an antibiotic treatment. I don't know if fungal infection of gentials will result in frequent urination or inflamed groin lymph nodes etc... Has any one experienced this or a possible link with SCD & Candida overgrowth?That aside, I used to be a Rice-based vegetarian pre-SCD. Since SCD, its been a total shift to meat/poultry/fish. Would that influence kidney function? -Andy.> Uhm, first of all, while I respect your desire to > deal with the infection without antibiotics (and > in point of fact, my beloved SHadow currently has > a UTI and we're treating it naturally), be aware > that just because something is " all natural " does > not mean it won't have a profound effect on your system.> > And when you pile in three or four or five > natural remedies, and your system DOES react, > guess what you're likely to blame? Not the > supplements... no one EVER blames their > supplements. They blame SCD, and say it doesn't > work, even when they've had proof that it does. > > Keep in mind that while antibiotics can really do > a number on our guts, they have their place in the scheme of things.> > I say this as someone who is a historian of the > art and science of medicine -- while there are > many facets of modern medicine (including the > attitude of Big Pharma and some doctors) with > which I disagree, I also know what it was like > before the introduction of antisepsis and antibiotics. > > > — Marilyn> New Orleans, Louisiana, USA> Undiagnosed IBS since 1976, SCD since 2001> Darn Good SCD Cook> No Human Children> Shadow & Sunny Longhair Dachshund > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2009 Report Share Posted December 27, 2009 Andy, Yes, eating more meats, and therefore more protein, will increase kidney function. You need to make sure that you are drinking plenty of fluids to process the higher protein diet too. I would only worry about it if you are feeling the need to go and then there isn't much output. That would indicate that you have a problem. If you are needing to go frequently, but have no pain/burning while urinating, and you are having a reasonable flow, I wouldn't worry about it. Could the ache you feel be related to a full bladder? It is possible that your bladder aches because it is processing more fluid than it is accustomed to. It is just a thought. The only time I had a bladder infection I remember feeling the desperate need to go, then only having dribbles. It also hurt to even ride in a car because if there was any fluid in my bladder, the 'bumps' in the road would bring amazing pain and discomfort. Regarding the 2nd opinion. If it is a topical fungus infection, you will most likely also having itching or a topical irritation type pain/discomfort. The positive side is that you now have a Rx for diflucan, so if you do have to take antibiotics, at least you will have an antifungal to keep the yeast in check--although, like you, I would prefer a natural method. The cranberry you are taking is good for UTI. It won't cure it, but what it does is keep the bacteria from attaching to the bladder walls and therefore washing it away. Bacteria already attached, I think aren't really affected, only those trying to attach. BTW, beer does the same thing--too bad it is illegal! ; ) Hope you are feeling better soon. Amelia Husband UC 9 years, SCD 17 months LDN 3 mg, Prednisone 5mg P.S. We just found out that we are being transferred to India! Probably Mumbai/Bombay or Bengaluru/Bangalore. > > > Marilyn- > > That's good advice: I am using Cranberry pills and will try very little D-mannose today to begin with to see how I respond. > > I agree with you on antibiotics -- it certainly has its place. > > I went to another doc yesterday for a 2nd opinion: He looked at the red patchy coloration on my glans (genital tip) and said that looks more fungal than bacterial!! He prescribed an oral antifungal (Diflucan - once a week) and some topical cream (Lotrisone). He has asked me to wait till we get the urine results for an antibiotic treatment. > > I don't know if fungal infection of gentials will result in frequent urination or inflamed groin lymph nodes etc... Has any one experienced this or a possible link with SCD & Candida overgrowth? > > That aside, I used to be a Rice-based vegetarian pre-SCD. Since SCD, its been a total shift to meat/poultry/fish. Would that influence kidney function? > > -Andy. > > > > > > Uhm, first of all, while I respect your desire to > > deal with the infection without antibiotics (and > > in point of fact, my beloved SHadow currently has > > a UTI and we're treating it naturally), be aware > > that just because something is " all natural " does > > not mean it won't have a profound effect on your system. > > > > And when you pile in three or four or five > > natural remedies, and your system DOES react, > > guess what you're likely to blame? Not the > > supplements... no one EVER blames their > > supplements. They blame SCD, and say it doesn't > > work, even when they've had proof that it does. > > > > Keep in mind that while antibiotics can really do > > a number on our guts, they have their place in the scheme of things. > > > > I say this as someone who is a historian of the > > art and science of medicine -- while there are > > many facets of modern medicine (including the > > attitude of Big Pharma and some doctors) with > > which I disagree, I also know what it was like > > before the introduction of antisepsis and antibiotics. > > > > > > — Marilyn > > New Orleans, Louisiana, USA > > Undiagnosed IBS since 1976, SCD since 2001 > > Darn Good SCD Cook > > No Human Children > > Shadow & Sunny Longhair Dachshund > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2009 Report Share Posted December 27, 2009 I have started taking Cranberry juice concentrates, Oil of oregano, and going to take D-mannose and, may be, Uva-ursi. My understanding of cranberry juice is that it works by preventing the bugs from sticking to the inside of the bladder so they get washed out. I don't know about the others. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2009 Report Share Posted December 27, 2009 Debbie- No, I am not on prednisone. I am on Imuran (100 mg), Lialda (4X), and Rowasa (once in two days). Thanks to these drugs and SCD, my symptoms are well controlled for the past 3 weeks or so. I am waiting for my urine test results before starting Cipro. -Andy > > This isn't about the recent post but a thought. Are you currently taking > Cipro and the prednisone? Sometimes just the Cipro can calm a flare so you > may not need the prednisone. You may want to try the Cipro first (and it > may have been someone else writing in on that--and everyone is different but > wanted to catch you on the prednisone--it's really not a fun drug at any > dose). > > Debbie 40 cd > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2009 Report Share Posted December 27, 2009 Amelia- Yeah, I am drinking MUCH more water than before and the doc said the urine is very dilute. I don't have much pain/burning/dribbling. None of those -- except due to the surface infection that I can see. I just wanted to make sure that I am doing the SCD right -- not overeating one type of food over the other. I am going to wait for the test results before antibacterial regimen. I am taking cranberry pills. Awesome you're moving to India... I like Bangalore better than Bombay. You can keep posted on SCD in India. I think Suneeti had posted about doing SCD in India. Cool, Andy. > > Andy, > > Yes, eating more meats, and therefore more protein, will increase kidney function. You need to make sure that you are drinking plenty of fluids to process the higher protein diet too. I would only worry about it if you are feeling the need to go and then there isn't much output. That would indicate that you have a problem. If you are needing to go frequently, but have no pain/burning while urinating, and you are having a reasonable flow, I wouldn't worry about it. Could the ache you feel be related to a full bladder? It is possible that your bladder aches because it is processing more fluid than it is accustomed to. It is just a thought. The only time I had a bladder infection I remember feeling the desperate need to go, then only having dribbles. It also hurt to even ride in a car because if there was any fluid in my bladder, the 'bumps' in the road would bring amazing pain and discomfort. > > Regarding the 2nd opinion. If it is a topical fungus infection, you will most likely also having itching or a topical irritation type pain/discomfort. The positive side is that you now have a Rx for diflucan, so if you do have to take antibiotics, at least you will have an antifungal to keep the yeast in check--although, like you, I would prefer a natural method. The cranberry you are taking is good for UTI. It won't cure it, but what it does is keep the bacteria from attaching to the bladder walls and therefore washing it away. Bacteria already attached, I think aren't really affected, only those trying to attach. BTW, beer does the same thing--too bad it is illegal! ; ) > > Hope you are feeling better soon. > > Amelia > Husband UC 9 years, SCD 17 months > LDN 3 mg, Prednisone 5mg > > P.S. We just found out that we are being transferred to India! Probably Mumbai/Bombay or Bengaluru/Bangalore. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 Andy, That is good news about no internal pain etc. It sounds like doctor no. 2 had a more accurate diagnosis. Don't laugh, but it is possible to drink too much water--learned that while pregnant and then breastfeeding. As long as you are getting around a couple of quarts of water a day that should be sufficient. I am glad that there is someone I can contact for SCD in India! I have to admit both Sanjay and myself were pretty worried about trying to get that worked out. : ) Maybe you can email off-line, but I am curious why you like Bangalore better than Bombay. I have only travelled through the Bombay airport, so I have no clue what it is like. We are leaning towards Bombay because of the school for the kids. Amelia Husband UC 9 Years, SCD 17 months LDN 18 days, Prednisone 5 mg > > > > Andy, > > > > Yes, eating more meats, and therefore more protein, will increase kidney function. You need to make sure that you are drinking plenty of fluids to process the higher protein diet too. I would only worry about it if you are feeling the need to go and then there isn't much output. That would indicate that you have a problem. If you are needing to go frequently, but have no pain/burning while urinating, and you are having a reasonable flow, I wouldn't worry about it. Could the ache you feel be related to a full bladder? It is possible that your bladder aches because it is processing more fluid than it is accustomed to. It is just a thought. The only time I had a bladder infection I remember feeling the desperate need to go, then only having dribbles. It also hurt to even ride in a car because if there was any fluid in my bladder, the 'bumps' in the road would bring amazing pain and discomfort. > > > > Regarding the 2nd opinion. If it is a topical fungus infection, you will most likely also having itching or a topical irritation type pain/discomfort. The positive side is that you now have a Rx for diflucan, so if you do have to take antibiotics, at least you will have an antifungal to keep the yeast in check--although, like you, I would prefer a natural method. The cranberry you are taking is good for UTI. It won't cure it, but what it does is keep the bacteria from attaching to the bladder walls and therefore washing it away. Bacteria already attached, I think aren't really affected, only those trying to attach. BTW, beer does the same thing--too bad it is illegal! ; ) > > > > Hope you are feeling better soon. > > > > Amelia > > Husband UC 9 years, SCD 17 months > > LDN 3 mg, Prednisone 5mg > > > > P.S. We just found out that we are being transferred to India! Probably Mumbai/Bombay or Bengaluru/Bangalore. > > > Quote Link to comment Share on other sites More sharing options...
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