update, same 'ol &%$&*

[Guest guest]

Just wanted to update what is going on since my last post. Returned

to the Dr. yesterday to discuss the ongoing problems with vision,

tremors, headaches, chest pain, shortness of breath, etc. etc. etc.,

and it went as expected, NOWHERE!

We started out our usless little conversation as usual before heading

onto my symptoms which obviously don't exist, as I told him what was

going on he countered with simple little explanations which made it

all OK. For instance the tremors which have been with me for at least

ten years but have gotten so much worse of late that it often is

difficult to even hold onto a coffee cup without splattering myself.

His answer?, looks like your using too much albuterol, when I offered

the simple fact that I haven't used albuterol for at least three weeks

he mentioned the advair I use every day. Well, aside from the fact

that I have been using these kinds of drugs since I was three years

old, (that's 45 years for us blue collar morons who couldn't possibly

know anything when compared to a doctor god like mine), so one might

suspect that I would have some idea of what that kind of tremor feels

like, aside from the fact that I have every neurological symptom of

neurosarc and have had for many years, aside from the fact that I was

diagnosed with neurosarc over ten years ago,aside fromt he fact that I

had these tremors even when I wasn't using any kind of breathing meds,

clearly, this is caused by the drugs and I am just too stupid to

figure it out. And when I point out that I HAVE neurosarc as

diagnosed by one of the most respected Neurologists inour area his

answer? (are you ready, this is a really brilliant observation, in

fact my little shriveled brain is still awed by it), " well, I guess

I'll have to go with his impression. " WHEW! That was deep!

So, after being dazzled by this level of brilliance, and after being

told in a most clear manner, that this doctor thinks I am full 'o'

_________well ;you know, he suggested that it must all be in my

" noodle " , (yep, another of those big doctor words), so he wants to do

an MRI of my brain, (probably to see if I have one), which is what I

wanted him to do in the first place, but this was HIS idea not mine!!

The best part of course was when he said that if they didn't find

anything, (not what he's expecting, noooooooooooooooo), then I should

have testing to figure out what kind of memory loss I am suffering

from, (sure as *(%&*%*(& wouldn't be from the neurosarc which he

dosen't think exists in the first place). Now I'm sure he was

dissapointed when he very pointedly, staring me deep in the eyes said

that meant going to a " " " " psyciatric " " " " doctor, and I said, great!

Alas, no big freak out to make his day, must've been a real let down

because he left the room about thrity seconds later with barely a

goodbye. So what did we accomplish? Well, I haven't had an MRI of

the black hole that is my brain in years so we needed to do one

anyway, and I am going to have to have the psych testing anywas as I

am working to get into one of the larger sarc clinics this summer

anyway, so I guess it was all worth it!

[Guest guest]

I can feel and understand your frustration. You handled it much better than I would have! I'm a psych nurse and I know that route. If they can't figure out the problem (or just don't care enough to investigate) that is their answer. It's as if sarcoidosis is a "made up" disease. Hang in there. Blessings,Beckylizzyandstu wrote: Just wanted to update what is going on since my last post. Returned to the Dr. yesterday to discuss the ongoing problems with vision, tremors, headaches, chest pain, shortness

of breath, etc. etc. etc., and it went as expected, NOWHERE! We started out our usless little conversation as usual before heading onto my symptoms which obviously don't exist, as I told him what was going on he countered with simple little explanations which made it all OK. For instance the tremors which have been with me for at least ten years but have gotten so much worse of late that it often is difficult to even hold onto a coffee cup without splattering myself. His answer?, looks like your using too much albuterol, when I offered the simple fact that I haven't used albuterol for at least three weeks he mentioned the advair I use every day. Well, aside from the fact that I have been using these kinds of drugs since I was three years old, (that's 45 years for us blue collar morons who couldn't possibly know anything when compared to a doctor god like mine), so one might suspect that I would have some idea

of what that kind of tremor feels like, aside from the fact that I have every neurological symptom of neurosarc and have had for many years, aside from the fact that I was diagnosed with neurosarc over ten years ago,aside fromt he fact that I had these tremors even when I wasn't using any kind of breathing meds, clearly, this is caused by the drugs and I am just too stupid to figure it out. And when I point out that I HAVE neurosarc as diagnosed by one of the most respected Neurologists inour area his answer? (are you ready, this is a really brilliant observation, in fact my little shriveled brain is still awed by it), "well, I guess I'll have to go with his impression." WHEW! That was deep! So, after being dazzled by this level of brilliance, and after being told in a most clear manner, that this doctor thinks I am full 'o' _________well ;you know, he suggested that it must all be in my "noodle", (yep,

another of those big doctor words), so he wants to do an MRI of my brain, (probably to see if I have one), which is what I wanted him to do in the first place, but this was HIS idea not mine!! The best part of course was when he said that if they didn't find anything, (not what he's expecting, noooooooooooooooo), then I should have testing to figure out what kind of memory loss I am suffering from, (sure as *(% & *%*( & wouldn't be from the neurosarc which he dosen't think exists in the first place). Now I'm sure he was dissapointed when he very pointedly, staring me deep in the eyes said that meant going to a """"psyciatric"""" doctor, and I said, great! Alas, no big freak out to make his day, must've been a real let down because he left the room about thrity seconds later with barely a goodbye. So what did we accomplish? Well, I haven't had an MRI of the black hole that is my brain in years so we

needed to do one anyway, and I am going to have to have the psych testing anywas as I am working to get into one of the larger sarc clinics this summer anyway, so I guess it was all worth it!

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[Guest guest]

Hi Ms Lizzy, wanna bigger laugh. You don't go to a psychiatrist for memory testing, you go to a neurological psychologist. Dr. Rankin, who I went to put it this way, I don't treat people with mental problems, I treatment who have had bad things happen to their brain. I hope you get as good a one as I had, and I hope things start looking up in the doctor department. You have a real loser (been there, done that, bought a T-shirt) Take Care..............Connie in FLlizzyandstu wrote: Just wanted to update what is going on since my last post. Returnedto the Dr. yesterday to discuss the ongoing problems with vision,tremors, headaches, chest pain, shortness of breath, etc. etc. etc.,and it went as expected, NOWHERE!We started out our usless little conversation as usual before headingonto my symptoms which obviously don't exist, as I told him what wasgoing on he countered with simple little explanations which made itall OK. For instance the tremors which have been with me for at leastten years but have gotten so much worse of late that it often isdifficult to even hold onto a coffee cup without splattering myself. His answer?, looks like your using too much albuterol, when I offeredthe simple fact that I haven't used albuterol for at least three weekshe mentioned the advair I use every day. Well, aside from the factthat I have been using

these kinds of drugs since I was three yearsold, (that's 45 years for us blue collar morons who couldn't possiblyknow anything when compared to a doctor god like mine), so one mightsuspect that I would have some idea of what that kind of tremor feelslike, aside from the fact that I have every neurological symptom ofneurosarc and have had for many years, aside from the fact that I wasdiagnosed with neurosarc over ten years ago,aside fromt he fact that Ihad these tremors even when I wasn't using any kind of breathing meds,clearly, this is caused by the drugs and I am just too stupid tofigure it out. And when I point out that I HAVE neurosarc asdiagnosed by one of the most respected Neurologists inour area hisanswer? (are you ready, this is a really brilliant observation, infact my little shriveled brain is still awed by it), "well, I guessI'll have to go with his impression." WHEW! That was deep!So, after being

dazzled by this level of brilliance, and after beingtold in a most clear manner, that this doctor thinks I am full 'o'_________well ;you know, he suggested that it must all be in my"noodle", (yep, another of those big doctor words), so he wants to doan MRI of my brain, (probably to see if I have one), which is what Iwanted him to do in the first place, but this was HIS idea not mine!!The best part of course was when he said that if they didn't findanything, (not what he's expecting, noooooooooooooooo), then I shouldhave testing to figure out what kind of memory loss I am sufferingfrom, (sure as *(% & *%*( & wouldn't be from the neurosarc which hedosen't think exists in the first place). Now I'm sure he wasdissapointed when he very pointedly, staring me deep in the eyes saidthat meant going to a """"psyciatric"""" doctor, and I said, great! Alas, no big freak out to make his day, must've been a real let

downbecause he left the room about thrity seconds later with barely agoodbye. So what did we accomplish? Well, I haven't had an MRI ofthe black hole that is my brain in years so we needed to do oneanyway, and I am going to have to have the psych testing anywas as Iam working to get into one of the larger sarc clinics this summeranyway, so I guess it was all worth it!

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