Re: kiddos sleeping too much??

[Guest guest]

Audrey also sleeps a great deal, especially when she is coming down with something. Some days it seems she sleeps the entire day. As someone else said, mito is a disease of energy and it takes energy to be awake, and sometimes our kiddos just don't have any energy to spare. There are times however, that we think Audrey is asleep but then she will smile at something we say, and the more we talk to her the more she smiles, I guess there are times she is too tired to open her eyes but she is awake.

Kathy, grandma to Audrey, nearly 3

[Guest guest]

Lily is almost 2 and she sleeps at least 12 hours at night and takes 1-2 naps a

day that are about 2 hours each.

Amy

mom to Lily,2, undiagnosed mito and Austin, 5

Quoting ilikemonstertrucks tig_ger51@...>:

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> (hes 20 months old)

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> Please contact mito-owner with any problems or questions.

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[Guest guest]

Hi Amy,

I do not get a chance to post here much but have been on this list quite a while.

My has been ill since birth and we did not recieve a diagnosis until she was 11 years old. From age 11- to just this past May was doing very poorly and needed apowerchair to go anywhere and was just so tired after doing any little thing. was sleeping 18-20 house a day most days and was out of it when awake. Since May she has been doing really well and is doing things she has not been able to do in years.......God is deffinatly still in the miracle working business! It is scarry when they sleep all the time. The best thing I found was to let her sleep. When her body got enough she would be able to do. We paced ourselves and put the inportant things at the very begining of our day. If it was something she could do in her jammers we did it because just getting dressed wore her out.

I hope this helps. You are not alone.

Blessings!

Horsley

Mom to 14

Brittney 18

Re: kiddos sleeping too much??

Lily is almost 2 and she sleeps at least 12 hours at night and takes 1-2 naps aday that are about 2 hours each.Amymom to Lily,2, undiagnosed mito and Austin, 5Quoting ilikemonstertrucks :> > > > > sleeps for a minimum of 18 hours a day... this seems > > insane!! any other kiddos sleep ALOT?> > (hes 20 months old)> > > > > > > > > > Please contact mito-owner with any problems or questions.> > > > > > > > > > > >

[Guest guest]

There are times however, that we think Audrey is asleep but then she will smile at something we say, and the more we talk to her the more she smiles, I guess there are times she is too tired to open her eyes but she is awake

Kathy, I see this with Chelsea too. Sometimes she is just lethargic and won't keep her eyes open. She also shuts her eyes to limit sensory input, she does this at school and the mall and other crowded noisy places. Her teachers have gotten used to it and now have her participate in school activities, unless she really is asleep!

Chelsea also tends to sleep quite a bit and will go in streaks of being sleepy for days, and streaks of not sleeping much at all. This is all new for her since being weaned off phenobarb, she used to sleep 12hrs at nite + 2-4hr nap.

e, Chelsea's mom(nonspecific mito)