Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 I am so glad you’re doctors are on top of the BP, I do think that her docs probably thought that because she was young she would be OK. A good thing to be aware of, thanks for sharing your story with us, too. God Bless Marla Bramer " Faith sees the invisible, believes the incredible and receives the impossible " From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of wendy_cidp Sent: Saturday, January 20, 2007 11:33 AM To: Neurosarcoidosis Subject: Re: stroke info Yeah, my BP has been up since on high doses of steroids. My doctors told me to get a home blood pressure machine, which I use regularly. They have had to put me on a mild medication to help control the BP. It's a real risk. It's too bad some doctors treat young patients as if they are unharmable. Meds are helpful but dangerous. We have been struggling to get off steroids for at least 3 years now. They think the steroids are hurting me more than the NS. But what can you do? It's a balancing act for sure. > > > > Just wanted to share something with everyone, I have a neighbor who has MS > she is young and had a stroke about 3 weeks ago, I visited with her today > and she is doing remarkable considering, I asked what they think caused the > stroke and she told me that she had just come off a 5 day IV steroids, she > had a " migraine " headache so went to the ER, her BP was up, they treated the > " headache " and sent her home that am she had the stroke because of her > increased BP. I have to wonder if some of the strokes and things we with > NS have might be more related to our meds, especially steroids then it is > directly related to NS? I've never been told to monitor my BP when I'm on > IV steroids, have any of you been told to do that? She wasn't told to do > that either. Kind of scary, I think I will be doing BPs on me the next time > I have to do steroids, I had a brust with the surgery but that was just a > one dose thing, felt like I could of used more but I made it without. > > Any thoughts on this? > > > > > > Marla Bramer > > " Faith sees the invisible, believes the incredible and receives the > impossible " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2007 Report Share Posted January 23, 2007 Not just the IV steroids as I am sure many would tell you here. The pill form of steroids can run your blood pressure through the roof. I already was on medication that should have helped control the bp, but the pred overrode the meds and they had to start a second medication to bring my pressure under control. Steroids are a trip....ConnieMarla Bramer wrote: I am so glad you’re doctors are on top of the BP, I do think that her docs probably thought that because she was young she would be OK. A good thing to be aware of, thanks for sharing your story with us, too. God Bless Marla Bramer "Faith sees the invisible, believes the incredible and receives the impossible" From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of wendy_cidpSent: Saturday, January 20, 2007 11:33 AMTo: Neurosarcoidosis Subject: Re: stroke info Yeah, my BP has been up since on high doses of steroids. My doctorstold me to get a home blood pressure machine, which I use regularly.They have had to put me on a mild medication to help control the BP.It's a real risk. It's too bad some doctors treat young patients as ifthey are unharmable. Meds are helpful but dangerous. We have beenstruggling to get off steroids for at least 3 years now. They thinkthe steroids are hurting me more than the NS. But what can you do?It's a balancing act for sure.>> > > Just wanted to share something with everyone, I have a neighbor whohas MS> she is young and had a stroke about 3 weeks ago, I visited with hertoday> and she is doing remarkable considering, I asked what they thinkcaused the> stroke and she told me that she had just come off a 5 day IVsteroids, she> had a "migraine" headache so went to the ER, her BP was up, theytreated the> "headache" and sent her home that am she had the stroke because of her> increased BP. I have to wonder if some of the strokes and thingswe with> NS have might be more related to our meds, especially steroids thenit is> directly related to NS? I've never been told to monitor my BP whenI'm on> IV steroids, have any of you been told to do that? She wasn't toldto do> that either. Kind of scary, I think I will be doing BPs on me thenext time> I have to do steroids, I had a brust with the surgery but that wasjust a> one dose thing, felt like I could of used more but I made it without. > > Any thoughts on this? > > > > > > Marla Bramer> > "Faith sees the invisible, believes the incredible and receives the> impossible"> We won't tell. Get more on shows you hate to love(and love to hate): Yahoo! TV's Guilty Pleasures list. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2007 Report Share Posted January 26, 2007 Thank Connie, yea even taking them orally will do it. I have no problems with my BP but my HR is always in the 100s, ever since I was on oral prednisone, and never went back down. Marla Bramer " Faith sees the invisible, believes the incredible and receives the impossible " From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Connie Griffis Sent: Tuesday, January 23, 2007 4:01 PM To: Neurosarcoidosis Subject: RE: Re: stroke info Not just the IV steroids as I am sure many would tell you here. The pill form of steroids can run your blood pressure through the roof. I already was on medication that should have helped control the bp, but the pred overrode the meds and they had to start a second medication to bring my pressure under control. Steroids are a trip....Connie Marla Bramer <mebramer (AT) gmail (DOT) com> wrote: I am so glad you’re doctors are on top of the BP, I do think that her docs probably thought that because she was young she would be OK. A good thing to be aware of, thanks for sharing your story with us, too. God Bless Marla Bramer " Faith sees the invisible, believes the incredible and receives the impossible " From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of wendy_cidp Sent: Saturday, January 20, 2007 11:33 AM To: Neurosarcoidosis Subject: Re: stroke info Yeah, my BP has been up since on high doses of steroids. My doctors told me to get a home blood pressure machine, which I use regularly. They have had to put me on a mild medication to help control the BP. It's a real risk. It's too bad some doctors treat young patients as if they are unharmable. Meds are helpful but dangerous. We have been struggling to get off steroids for at least 3 years now. They think the steroids are hurting me more than the NS. But what can you do? It's a balancing act for sure. > > > > Just wanted to share something with everyone, I have a neighbor who has MS > she is young and had a stroke about 3 weeks ago, I visited with her today > and she is doing remarkable considering, I asked what they think caused the > stroke and she told me that she had just come off a 5 day IV steroids, she > had a " migraine " headache so went to the ER, her BP was up, they treated the > " headache " and sent her home that am she had the stroke because of her > increased BP. I have to wonder if some of the strokes and things we with > NS have might be more related to our meds, especially steroids then it is > directly related to NS? I've never been told to monitor my BP when I'm on > IV steroids, have any of you been told to do that? She wasn't told to do > that either. Kind of scary, I think I will be doing BPs on me the next time > I have to do steroids, I had a brust with the surgery but that was just a > one dose thing, felt like I could of used more but I made it without. > > Any thoughts on this? > > > > > > Marla Bramer > > " Faith sees the invisible, believes the incredible and receives the > impossible " > We won't tell. Get more on shows you hate to love (and love to hate): Yahoo! TV's Guilty Pleasures list. Quote Link to comment Share on other sites More sharing options...
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