mito myopathy ICD-9 code?

[Guest guest]

Hi, Posting this for a mito friend whose Internet connection is on

the fritz.

Anita

-------

Hi all,

I need your help please.

Could you tell me what ICD-9 code you used to get your

CoQ10

covered by insurance? We have a Mitochondrial

Myopathy (probably considered Unspecified since the

mutation, etc

was not found).

Our peds doctor had put 729.1 (myalgia and myositis,

unspecified), but I want to make sure this will work for our

kind of mito before we submit it.

THERE IS A NEW CODE: 277.87 Disorders of mitochondrial

metabolism

Kearns-Sayre syndrome

Mitochondrial encephalopathy, lactic acidosis and stroke-like

episodes

syndrome (MELAS)

Myoclonus with epilepsy and with ragged red fibers

syndrome

(MERFF)

Mitochondrial neurogastrointestinal encephalopathy

(MNGIE)_

Neuropathy, ataxia and retinitis pigmentosa syndrome

(MARP)

Add Excludes: disorders of pyruvate metabolism (271.8)

Leber's disease (377.16)

Leigh's encephalopathy (330.8)

Reye's syndrome (331.81)

BUT the problem with this one is our family doesn't

appear/test

to have any of the above-listed mitos, other than the one listed

below:

Disorders of mitochondrial metabolism.

THANK YOU SO MUCH FOR YOUR HELP IN THIS MATTER,

AS I AM RUNNING

OUT OF TIME TO GET THIS

SUBMITTED.

Shirley, mom to and Jordan