Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 Welcome Back! Glad you are enjoying the lake place. What island are you on? What town is it near? Geri-Anne > Hi to Everyone: > > My name is Nerenhausen to all the new ones on the group. I've been > vacationing at our summer place and have not had access to a computer > until now. I had over 800 emails to go through. WHEW!!! > > Anyway, welcome to the new members, congratulations on the ultrasound to > and prayers are with all others that need them during this time. > I've been thinking of everyone during this past month of July. > > Our summer has been going well. Very good weather. No need to use the > air conditioner until just the other day and that was because my mom was > baking three cherry pies for our dinner that night. Leah has been doing > well. After her eye surgery her eyes look so much better and > straighter. But what we are dealing with right now, is after a month of > following doctors orders for her muscle biopsy site, it has become > infected. Our ped feels it was from the lake water. But this was way > after the deadline for getting her suture area wet; so I was a little > surprise by this. But we left the Island and we stopped in Sturgeon Bay > for gas and food and when Leah didn't even really want to eat her french > fries the first words out of my mouth were, gee I hope she isn't coming > down with something. Mother's instinct because took her in to get > her thigh checked out and she had a fever of 101 degrees. She is on > antibotics and the site looks alot better today after being covered up > and with an antibotic cream on the site. But now her brother, > came home from scout camp late last night and he said his throat hurt a > bit. He played all day and then complained that it felt like he had > canker sores. Well looked in his mouth and he had little pimples on > several parts of his mouth AND 102.6 fever. So he is in our bedroom > away from Leah, but I think she has some of these pimples in her mouth, > too. So we may not head to the Island again until Friday. I feel safer > down here near her doctor and a good hospital. So that is that for now. > > But I wanted to chime in about family. I feel for you whose family > can't and/or won't understand this disease. I know each person is > different in how they can handle things. And I believe its more > difficult for family to understand when they see a child running and > playing around and then having a parent restrict them from other > activities. It is up to us as some one stated to educate others around > us. I've been blessed with good doctors for our kids and family members > who are willing to take care of Leah and play with her. They also > understand about illness and her cousin who is taking care of Leah while > I work this summer had a bad cold and asked if she should be taking care > of Leah that day. I told her it was ok because she has had the cold for > several days now and is really past the contagious stage but I thanked > her for thinking of Leah. As for the handicap parking there was an > article in our paper from someone stating why should people who use > handicap parking to park so close and then walk all over the mall. Well > another person wrote in and said that we don't know what that persons > disability is. That may be if they walked farther away in a parking lot > that they may have difficulty in the store. We shouldn't judge a person > who uses handicap parking just because they aren't in a wheelchair and > to see their disabilty. Yes, there are people who abuse the parking > spot who don't need it; but we wish people would ask in a nice tone > instead of ranting and raving in a persons face. I like what I believe > it was Ann said; please get out a piece of paper and write this down. > And to say it in such a way so that their mouth drops open. It is a > hard and difficult life we lead as care givers of mito children and also > for some of us having this disease as an adult. We walk a fine line and > all we can do is balance to the best of our ability and educate, > educate, educate others in not only dealing with this disease, but > dealing with all people with different disabilities. I dislike reading > about doctors who don't have a clue what is going on and pretty much > brush us off. The movie about a doctor getting sick ( Hurt was > the actor in it) and realizing that bedside manners do make a > difference. I hope we all have better times a head of us and take each > days as it comes. At least we have a place to vent and rave for others > to understand and console us and lead us down the right path. It's been > interesting reading all the emails. My mind is swimming with > information; good stuff. I look forward to staying on top of my emails > with all you guys. Being away from the main home is fun and relaxing, > but playing catch up is a whole nother story. Ann, would I still have > time to give you my story and if I mailed it because of not having > access to a computer at our summer place is that possible? If not, no > big deal. There are wonderful stories and poems that will make the book > a joy to read. It may help some one else with information; sort of an > aha moment. Take care everyone. > > Nerenhausen > mom to Leah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 , Audrey is also sick with hand, foot and mouth disease. She has had vomiting and diarrhea along with a fever as well. Thank goodness for the G-tube as we are able to keep her hydrated. She has had so many viruses lately and each one takes a little more out of her. She can still manage to give me one of her special smiles, just for grandma. I can hardly believe she will be 3 on the 10th. Kathy, grandma to Audrey, nearly 3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 We are on Washington Island, WI which is the tip of Door County. For all you map readers, when you look at Wisconsin you will see a thumb sticking up toward Canada. That is Door County and we are on the tip of it. We are near Sturgeon Bay which is a town of about 9,000 people. We go there for Occupational Therapy for Leah. She is a wonderful sensory therapist and has done wonders for not only Leah, but too. Plus she writes reports for s files at school and for the teachers too. She is very supportive. But now, we are stuck in Appleton til Friday as both Leah and has hand, foot, and mouth disease. Leah only drinks a bit but is very slowly getting her appetite back. It worries me when she doesn't drink as you all know. Nerenhausen mom to Leah gazubich wrote: Welcome Back! Glad you are enjoying the lake place. What island are you on? What town is it near? Geri-Anne Hi to Everyone: My name is Nerenhausen to all the new ones on the group. I've been vacationing at our summer place and have not had access to a computer until now. I had over 800 emails to go through. WHEW!!! Anyway, welcome to the new members, congratulations on the ultrasound to and prayers are with all others that need them during this time. I've been thinking of everyone during this past month of July. Our summer has been going well. Very good weather. No need to use the air conditioner until just the other day and that was because my mom was baking three cherry pies for our dinner that night. Leah has been doing well. After her eye surgery her eyes look so much better and straighter. But what we are dealing with right now, is after a month of following doctors orders for her muscle biopsy site, it has become infected. Our ped feels it was from the lake water. But this was way after the deadline for getting her suture area wet; so I was a little surprise by this. But we left the Island and we stopped in Sturgeon Bay for gas and food and when Leah didn't even really want to eat her french fries the first words out of my mouth were, gee I hope she isn't coming down with something. Mother's instinct because took her in to get her thigh checked out and she had a fever of 101 degrees. She is on antibotics and the site looks alot better today after being covered up and with an antibotic cream on the site. But now her brother, came home from scout camp late last night and he said his throat hurt a bit. He played all day and then complained that it felt like he had canker sores. Well looked in his mouth and he had little pimples on several parts of his mouth AND 102.6 fever. So he is in our bedroom away from Leah, but I think she has some of these pimples in her mouth, too. So we may not head to the Island again until Friday. I feel safer down here near her doctor and a good hospital. So that is that for now. But I wanted to chime in about family. I feel for you whose family can't and/or won't understand this disease. I know each person is different in how they can handle things. And I believe its more difficult for family to understand when they see a child running and playing around and then having a parent restrict them from other activities. It is up to us as some one stated to educate others around us. I've been blessed with good doctors for our kids and family members who are willing to take care of Leah and play with her. They also understand about illness and her cousin who is taking care of Leah while I work this summer had a bad cold and asked if she should be taking care of Leah that day. I told her it was ok because she has had the cold for several days now and is really past the contagious stage but I thanked her for thinking of Leah. As for the handicap parking there was an article in our paper from someone stating why should people who use handicap parking to park so close and then walk all over the mall. Well another person wrote in and said that we don't know what that persons disability is. That may be if they walked farther away in a parking lot that they may have difficulty in the store. We shouldn't judge a person who uses handicap parking just because they aren't in a wheelchair and to see their disabilty. Yes, there are people who abuse the parking spot who don't need it; but we wish people would ask in a nice tone instead of ranting and raving in a persons face. I like what I believe it was Ann said; please get out a piece of paper and write this down. And to say it in such a way so that their mouth drops open. It is a hard and difficult life we lead as care givers of mito children and also for some of us having this disease as an adult. We walk a fine line and all we can do is balance to the best of our ability and educate, educate, educate others in not only dealing with this disease, but dealing with all people with different disabilities. I dislike reading about doctors who don't have a clue what is going on and pretty much brush us off. The movie about a doctor getting sick ( Hurt was the actor in it) and realizing that bedside manners do make a difference. I hope we all have better times a head of us and take each days as it comes. At least we have a place to vent and rave for others to understand and console us and lead us down the right path. It's been interesting reading all the emails. My mind is swimming with information; good stuff. I look forward to staying on top of my emails with all you guys. Being away from the main home is fun and relaxing, but playing catch up is a whole nother story. Ann, would I still have time to give you my story and if I mailed it because of not having access to a computer at our summer place is that possible? If not, no big deal. There are wonderful stories and poems that will make the book a joy to read. It may help some one else with information; sort of an aha moment. Take care everyone. Nerenhausen mom to Leah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 I love Door County, how wonderful for you guys. Sorry to hear about the hand, foot, mouth disease. That is a tough one. Geri-Anne > > > > > >>Hi to Everyone: > >> > >>My name is Nerenhausen to all the new ones on the group. > >> > >> > >I've been > > > > > >>vacationing at our summer place and have not had access to a > >> > >> > >computer > > > > > >>until now. I had over 800 emails to go through. WHEW!!! > >> > >>Anyway, welcome to the new members, congratulations on the > >> > >> > >ultrasound to > > > > > >> and prayers are with all others that need them during this > >> > >> > >time. > > > > > >>I've been thinking of everyone during this past month of July. > >> > >>Our summer has been going well. Very good weather. No need to > >> > >> > >use the > > > > > >>air conditioner until just the other day and that was because my > >> > >> > >mom was > > > > > >>baking three cherry pies for our dinner that night. Leah has been > >> > >> > >doing > > > > > >>well. After her eye surgery her eyes look so much better and > >>straighter. But what we are dealing with right now, is after a > >> > >> > >month of > > > > > >>following doctors orders for her muscle biopsy site, it has become > >>infected. Our ped feels it was from the lake water. But this was > >> > >> > >way > > > > > >>after the deadline for getting her suture area wet; so I was a > >> > >> > >little > > > > > >>surprise by this. But we left the Island and we stopped in > >> > >> > >Sturgeon Bay > > > > > >>for gas and food and when Leah didn't even really want to eat her > >> > >> > >french > > > > > >>fries the first words out of my mouth were, gee I hope she isn't > >> > >> > >coming > > > > > >>down with something. Mother's instinct because took her in > >> > >> > >to get > > > > > >>her thigh checked out and she had a fever of 101 degrees. She is > >> > >> > >on > > > > > >>antibotics and the site looks alot better today after being > >> > >> > >covered up > > > > > >>and with an antibotic cream on the site. But now her > >> > >> > >brother, > > > > > >>came home from scout camp late last night and he said his throat > >> > >> > >hurt a > > > > > >>bit. He played all day and then complained that it felt like he > >> > >> > >had > > > > > >>canker sores. Well looked in his mouth and he had little pimples > >> > >> > >on > > > > > >>several parts of his mouth AND 102.6 fever. So he is in our > >> > >> > >bedroom > > > > > >>away from Leah, but I think she has some of these pimples in her > >> > >> > >mouth, > > > > > >>too. So we may not head to the Island again until Friday. I feel > >> > >> > >safer > > > > > >>down here near her doctor and a good hospital. So that is that > >> > >> > >for now. > > > > > >>But I wanted to chime in about family. I feel for you whose family > >>can't and/or won't understand this disease. I know each person is > >>different in how they can handle things. And I believe its more > >>difficult for family to understand when they see a child running > >> > >> > >and > > > > > >>playing around and then having a parent restrict them from other > >>activities. It is up to us as some one stated to educate others > >> > >> > >around > > > > > >>us. I've been blessed with good doctors for our kids and family > >> > >> > >members > > > > > >>who are willing to take care of Leah and play with her. They also > >>understand about illness and her cousin who is taking care of Leah > >> > >> > >while > > > > > >>I work this summer had a bad cold and asked if she should be > >> > >> > >taking care > > > > > >>of Leah that day. I told her it was ok because she has had the > >> > >> > >cold for > > > > > >>several days now and is really past the contagious stage but I > >> > >> > >thanked > > > > > >>her for thinking of Leah. As for the handicap parking there was an > >>article in our paper from someone stating why should people who use > >>handicap parking to park so close and then walk all over the > >> > >> > >mall. Well > > > > > >>another person wrote in and said that we don't know what that > >> > >> > >persons > > > > > >>disability is. That may be if they walked farther away in a > >> > >> > >parking lot > > > > > >>that they may have difficulty in the store. We shouldn't judge a > >> > >> > >person > > > > > >>who uses handicap parking just because they aren't in a wheelchair > >> > >> > >and > > > > > >>to see their disabilty. Yes, there are people who abuse the > >> > >> > >parking > > > > > >>spot who don't need it; but we wish people would ask in a nice tone > >>instead of ranting and raving in a persons face. I like what I > >> > >> > >believe > > > > > >>it was Ann said; please get out a piece of paper and write this > >> > >> > >down. > > > > > >>And to say it in such a way so that their mouth drops open. It is > >> > >> > >a > > > > > >>hard and difficult life we lead as care givers of mito children > >> > >> > >and also > > > > > >>for some of us having this disease as an adult. We walk a fine > >> > >> > >line and > > > > > >>all we can do is balance to the best of our ability and educate, > >>educate, educate others in not only dealing with this disease, but > >>dealing with all people with different disabilities. I dislike > >> > >> > >reading > > > > > >>about doctors who don't have a clue what is going on and pretty > >> > >> > >much > > > > > >>brush us off. The movie about a doctor getting sick ( Hurt > >> > >> > >was > > > > > >>the actor in it) and realizing that bedside manners do make a > >>difference. I hope we all have better times a head of us and take > >> > >> > >each > > > > > >>days as it comes. At least we have a place to vent and rave for > >> > >> > >others > > > > > >>to understand and console us and lead us down the right path. > >> > >> > >It's been > > > > > >>interesting reading all the emails. My mind is swimming with > >>information; good stuff. I look forward to staying on top of my > >> > >> > >emails > > > > > >>with all you guys. Being away from the main home is fun and > >> > >> > >relaxing, > > > > > >>but playing catch up is a whole nother story. Ann, would I still > >> > >> > >have > > > > > >>time to give you my story and if I mailed it because of not having > >>access to a computer at our summer place is that possible? If > >> > >> > >not, no > > > > > >>big deal. There are wonderful stories and poems that will make > >> > >> > >the book > > > > > >>a joy to read. It may help some one else with information; sort > >> > >> > >of an > > > > > >>aha moment. Take care everyone. > >> > >> Nerenhausen > >>mom to Leah > >> > >> > > > > > > > > > >Please contact mito-owner with any problems or questions. > > Quote Link to comment Share on other sites More sharing options...
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