Re: Cyclic vomiting/mountain dew issue/etc

[Guest guest]

Good luck with trying the mountain dew Darla. I find with -Kay that I

have to keep giving it often, say every hour or so over the couple of days

she is ill to keep the vomiting from taking hold.

I mentioned this to the naturopath and he said it sounds like -Kay's

adrenal glands are stressed at this time and the drink is giving them a

'kick start' so to speak.

Hugs,

.

Re: Cyclic vomiting ?

> >

> >

> > e,

> >

> > Can you explain more about the Kaussmal breathing that you say

> >accompanies your sons vomiting episodes please.

> >

> > My daughter -Kay has unusual breathing during some episodes of

> >cyclic vomiting. She becomes very breathless very quickly with only

taking

> >a few steps.

> >

> > Thanks,

> > .

> >

> >

> > Please contact mito-owner with any problems or

> >questions.

> >

> >

> >

[Guest guest]

A while back I posted concerning cyclic vomiting and I remember some

said they had started out with just vomiting once a day and then elevated

to more times per day. How many have experienced this?

I think I might try the mountain dew idea just to see if it might help

her even though she doesn't get to the point you are talking about. Can't

hurt to try before vomiting occurs to see if it stops it even. Of course,

we still don't know if she has another problem causing it, but after the

testing is done, if they find nothing to treat, this might be a plan of

action to try.

Darla: mommy to: Asenath (4) Mito, CNS Vasculitis, strokes, migraines,

seizures, G-tube, hypotonicity, disautonomy,SID, dev. delays, asthma

Zipporrah (7 mon.) Mito, strokes, SID, G-tube, asthma, trach issues,

disautonomy, hypo & hypertonicity, migraines

>

>Reply-To: Mito

>To: Mito >

>Subject: Re: Cyclic vomiting ?

>Date: Thu, 18 Jan 1996 11:06:32 +1300

>

>Hi e,

>

>I think I know what you are taking about here, and I can understand your

>astonishment when reading that -Kay can walk during these episodes of

>vomiting.

>

>It never used to be like this believe you me, but now thanks to Dr Boles

>treatment document we can 'nip the vomiting' in the bud to speak at the

>very first sign of -Kay feeling ill, simply by getting her to lie

>down and giving her a drink containing high levels of both sugar and

>caffeine. example 'mountain dew' or 'Red bull'.

>

>By doing this we can stop the vomiting but must keep giving the drink

>regularly over the next few hours. It is amazing to see how after this

>drink she can sit up and even walk a short distance, for example to the

>toilet and back. Although she may need help walking this distance she can

>accomplish this whereas before the drink she would also go into the

>'conscious coma' that you speak about and quickly very quickly, within the

>space of an hour after the vomiting would start.

>

>What is scary is to look back and remember how sick she used to be before

>following Br Boles advice.

> Does Devin end up on a Bi-pap?

>This is how sick -Kay would become. After 4 days of vomiting, the

>breathing pattern would begin and she would end up totally dependant on a

>Bi-pap to breath, sometimes for up to a period of 5 weeks. Often in

>Intensive Care.

>

>We live in New-Zealand and do not have anything like the 'mito cocktail'.

>So I take -Kay regularly to a naturopath who has prescribed for her

>the equivalent of what I believe to be the 'Mito cocktail' minus carnitine

>as we don't have carnitine in NZ.

>

>.

> Re: Cyclic vomiting ?

>

>

> e,

>

> Can you explain more about the Kaussmal breathing that you say

>accompanies your sons vomiting episodes please.

>

> My daughter -Kay has unusual breathing during some episodes of

>cyclic vomiting. She becomes very breathless very quickly with only taking

>a few steps.

>

> Thanks,

> .

>

>

> Please contact mito-owner with any problems or

>questions.

>

>

>