Re: Re: - Cyclic vomiting ?

[Guest guest]

Darla,

It is great to read that Asenath has lots of energy now. What has given her

so much energy? Is it the steroids?

-Kay has never taken steroids.

-Kay's breathing issues are only at the start of, during, or

immediately following a vomiting episode. She would also have changes in

heart-rate during the episode. The heart-rate changes can also be due to

dysautonomia.

You mention lungs. After each vomiting episode -Kay's lungs especially

the right lung would also cause a problem. It would always take some time

for them to function properly again.

Even now that we can stop the vomiting after only 1 or 2 vomits, (she used

to vomit an average of 47 vomits per episode) it still affects her lungs

but not nearly to the degree that it once did.

However her lung function was 'not to bad' after she became well again once

the episode was over. Maybe Dr Boles could tell us the reason why the lungs

are involved.

The hospital used to call it pneumonia, but it never really felt like

pneumonia to me.

It is such a worrying condition.

Hugs,

.

Re: Cyclic vomiting ?

> > > >

> > > >

> > > > My son's CVS is triggered by infections or overexertion. When

> >someone

> >in

> > > >our house is sick with a cold or the flu, it's pretty much guaranteed

> >that

> > > >Devin will start an episode. However, it comes with little notice, as

> >he

> > > >always wakes up in the early morning already having thrown up in his

> >bed

> > > >usually before 5am. It continues for hours and hours, vomiting every

> >5-15

> > > >minutes. In between he is *excessively* thirsty, and will drink

> >whatever

> >he

> > > >can get his hands on for a tiny bit of relief, only to throw up that

> >much

> > > >worse! At first he's pretty coherent, but by the time I see that it's

> >not

> > > >getting any better, he's usually doing that Kaussmal breathing, and

> >it's

> > > >time to get him to the hospital for IVs.

> > > > Did you know there is a website for CVS with a message board?

> > > > http://www.cvsaonline.org

> > > >

> > > > Blessings,

> > > > e *Ü*

> > > >

> > > >

> > > > Please contact mito-owner with any problems or

> > > >questions.

> > > >

> > > >

> > > >