Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 Not sure. She does have other disautonomy issues. She gets the breathlessness mostly when ill and her heart rate will go up to close to 200 bpm regularly when ill. Her normal heart rate is very high as well (140-180 quite frequently with little exertion). The coughing/vomiting began after she started to become active about three months ago. Before that time she just sat around all the time. It is bothersome as before steroids (spring of 2003) she did the same thing without the vomiting (lots of coughing, loud breathing, grunting while just walking around; and this was when she was skinny) and then the steroids seemed to make all the symptoms disappear. But now that we are lowering the dosage, the symptoms are returning plus vomiting added to the mix. She became very fatigued and mostly sad most of last fall, winter, and the spring this year, but now she has TONS of energy. Its wonderful yet causing problems. The docs are wondering if her lungs aren't up to par enough to handle the increased activity after such a long time sitting around. Darla: mommy to: Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy,SID, dev. delays, asthma Zipporrah (7 mon.) Mito, strokes, SID, G-tube, asthma, trach issues, disautonomy, hypo & hypertonicity, migraines > >Reply-To: Mito >To: Mito > >Subject: Re: Re: e- Cyclic vomiting ? >Date: Thu, 18 Jan 1996 11:08:01 +1300 > >Darla, > >Could this breathlessness be due to Dysautonomia? -Kay also has >dysautonomia. > >. > Re: Cyclic vomiting ? > > > > > > > > > My son's CVS is triggered by infections or overexertion. When >someone >in > > >our house is sick with a cold or the flu, it's pretty much guaranteed >that > > >Devin will start an episode. However, it comes with little notice, as >he > > >always wakes up in the early morning already having thrown up in his >bed > > >usually before 5am. It continues for hours and hours, vomiting every >5-15 > > >minutes. In between he is *excessively* thirsty, and will drink >whatever >he > > >can get his hands on for a tiny bit of relief, only to throw up that >much > > >worse! At first he's pretty coherent, but by the time I see that it's >not > > >getting any better, he's usually doing that Kaussmal breathing, and >it's > > >time to get him to the hospital for IVs. > > > Did you know there is a website for CVS with a message board? > > > http://www.cvsaonline.org > > > > > > Blessings, > > > e *Ü* > > > > > > > > > Please contact mito-owner with any problems or > > >questions. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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