Re: WAISMAN CENTER WISCONSIN

[Guest guest]

anne-

we do go to the waismen center in wisconsin. and jacob was seen by dr

wolff for the first time on july 13th. so far dr wolff is ok.. jacob

hasnt been seen by him long enough to know how i really feel about

him doctoring by son. besides that the waisman center seems to be a

good place.. i hope this helps anwsure some of your ?'s about the

waisman center.

(ann) mommy to

Hunter- 12/18/01

- 4/18/03

> Have any Wisconsin families taken their kids to the Waisman center

Biochemical Genetics Clinic to see Dr. Jon Wolfe?

>

> If so could you tell me about your experiences there?

>

> I just made an appt for my 2 boys there, given all the questions we

have about the fatty acid studies and the Co Q levels.

>

> We have not been there for about 6 years, at which time our

metabolic doctor Cary Harding left. We have such excellent care from

our primary team. They call for help from Shoffner or Cohen

whenever we had questions so it seemed like following with

metabolics would not add anything to their care.

>

> However, with the questionable fatty acid diagnosis on top of the

mito we feel like we need a bit more hands on guidance. The boys are

on TPN and we're wondering if we need to completely change what is in

there as far as the amino acids, etc.

>

> So we're going to try this guy out but travel is so very hard on

Sam (it is 90 min from our house) that I am leery of going somewhere

that will not be helpful.

>

> Also do you guys know of anyone in Chicago that is good with

metabolics/mito?

>

> Anne

[Guest guest]

Anne:

We've only seen Dr. Wolff for Leah. I will email you later this

evening or if you want to email me privately and give me your phone number

I will call you. But we have been happy with not only Dr.Wolff, but

Sandy his assistant. I will ask my husband about what he thinks as

he always comes on the appointments with me. Thank you. But

we've been happy and if you can stay in the Mc house in Madison

(which is only two blocks from the Waismann Center) you will be very pleased

with the place. And if they don't have room for you, they put you

up in a hotel that they have a contract with for the same price as the

Mc house.

Nerenhausen

mom to Leah

(we are only in town till Thursday morning and then it's back to Washington

Island again for a few more weeks of vacation time, so I won't be checking

my email as often on the Island and I would hate tomiss your email.

Anne K Juhlmann wrote:

Have

any Wisconsin families taken their kids to the Waisman center Biochemical

Genetics Clinic to see Dr. Jon Wolfe? If

so could you tell me about your experiences there? I

just made an appt for my 2 boys there, given all the questions we have

about the fatty acid studies and the Co Q levels. We

have not been there for about 6 years, at which time our metabolic doctor

Cary Harding left. We have such excellent care from our primary team.

They call for help from Shoffner or Cohen whenever we had questions so

it seemed like following with metabolics would not add anything to

their care. However,

with the questionable fatty acid diagnosis on top of the mito we feel like

we need a bit more hands on guidance. The boys are on TPN and we're

wondering if we need to completely change what is in there as far as the

amino acids, etc. So

we're going to try this guy out but travel is so very hard on Sam

(it is 90 min from our house) that I am leery of going somewhere that will

not be helpful. Also

do you guys know of anyone in Chicago that is good with metabolics/mito? Anne

Please contact mito-owner with any problems or questions.

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