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My second diagnosis and the one that finally got them to say I had

sarc was a skin lesion on my face. A dr that I worked with thought

it looked like a basil cell so another provider I worked with who

did derm, did a biopsy. That lesion was no bigger than a pimple. Now

its grown so that my whole right cheek is one big lesion, it gets

very red, especially when I'm in severe pain. I now have a lesion on

my Left cheek, under my left jaw and one on my right breast. I have

one fingernail on my right hand that the nail has " rotted " off. I

can't wear closed in shoes because my right foot blisters and then

peels, the ankle hurts and at times feels like its " locked " and

won't bend. The right side of my face is mostly numb, there is some

mild drooping. I rub over the area with my fingers because if I push

against it too hard well lets just say the pain goes off the scale.

Lately I've had areas that seem to be draining, then they scab over

and I too tend to pick at them. I've tried creams and a derm gave me

some locoid cream, but it didn't seem to help. I also have to be

careful of which lotions and creams and things that I use because I

am allergic to the sulfates that are in most everything. I figure I

have a lesion in my head now also because one area of my head seems

to be on fire, like my head is burning from the inside out.

Hopefully one day soon I'll be able to get to a dr and have some new

testing done.

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You should

talk to your doctor about Protopic oint. It really works for me, I’m

sorry you have so many symptoms to live with it can really get a person down. Some

days I do nothing much, but I try to get something done when I have some good

days. Hope you have a good day todayJ

Marla

Bramer

" Faith

sees the invisible, believes the incredible and receives the impossible "

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of kimber31_1963

Sent: Tuesday, January 30, 2007

12:43 PM

To: Neurosarcoidosis

Subject: skin

lesions

My second diagnosis and the one that finally got them

to say I had

sarc was a skin lesion on my face. A dr that I worked with thought

it looked like a basil cell so another provider I worked with who

did derm, did a biopsy. That lesion was no bigger than a pimple. Now

its grown so that my whole right cheek is one big lesion, it gets

very red, especially when I'm in severe pain. I now have a lesion on

my Left cheek, under my left jaw and one on my right breast. I have

one fingernail on my right hand that the nail has " rotted " off. I

can't wear closed in shoes because my right foot blisters and then

peels, the ankle hurts and at times feels like its " locked " and

won't bend. The right side of my face is mostly numb, there is some

mild drooping. I rub over the area with my fingers because if I push

against it too hard well lets just say the pain goes off the scale.

Lately I've had areas that seem to be draining, then they scab over

and I too tend to pick at them. I've tried creams and a derm gave me

some locoid cream, but it didn't seem to help. I also have to be

careful of which lotions and creams and things that I use because I

am allergic to the sulfates that are in most everything. I figure I

have a lesion in my head now also because one area of my head seems

to be on fire, like my head is burning from the inside out.

Hopefully one day soon I'll be able to get to a dr and have some new

testing done.

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