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Hi i am a women living in uk age 40,I have been having lots problems

with my eyes, legs,kidney (had one removed)and also brain inflammation

for over 14 years now first thought it was M.S and went through a brain

op to reduce pressure.And after lots of IV steroids always 5 days

course and then prednislone.I was feeling a little better for a couple

of years untill september and all went down hill while away in another

country i had some sort of epileptic fit and needed valium to control

spasms.I have since been in hospital and had another 5 days

methyleprednislone and now on 40mg prednislone along with now imuran

and been told this is what i will be left on for minimum 2 years.And

hope to get out of this wheel chair at some point.

Has anyone any more information on this illness and know of any support

groups in the uk.

thanks susan x

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