Re:Re: Pimentel book & constipation -- was IBS and/or SIBO

[Guest guest]

I haven't come across the Pimentel book; can you give me the title so I can locate it? BTVC answered a lot of my questions, and I've done considerable research since my diagnosis and discovering SCD, but I still have questions. I am dealing with IBS-C as part of having poor digestive motility due to having Sphincter of Oddi dysfunction (or perhaps because of my ongoing neuromuscular deterioration), but I have recognized that there is a connection between certain SCD-legal foods and decreasing peristalsis, and illegal foods definitely trigger severe constipation episodes. Methane bacteria seems to explain a lot, and I'd like to learn more about the process.

I've been on SCD for just about 6 years. I reached digestive stability in my 3rd year, but I have to limit my food choices to keep my symptoms managed so can only tolerate about half of the permitted foods. I accept the limitations, since I do have functional digestive disorders. It is frustrating at times, of course. My experience has been that the few times I've eaten an illegal starch, even just a mouthful or two when out at a restaurant, I've suffered immediately and for several days afterwards. (I made no attempt to eat at a restaurant until my 4th year on SCD, however, and rarely do so now.) So my response to your question is that for some of us it is true that we need to stay on SCD, because it helps with symptom management. I certainly have no desire to suffer symptoms for days every time I eat a starch or even a high-carb permitted food.

I tend to forget how awful I feel when I'm in a bad symptom flare, so when the flare hits I thank my lucky stars that I came across SCD and gave it a try.

Kim M.

SCD 5+ years

Sphincter of Oddi dysfunction 6+ years

neurological deterioration 3+ years

>>>>>>>>>>>>>>>>

....From Pimentel I finally learned about the constipation- methane producing(or actually converting) bacteria are present in constipated patients -the methane interacts with the gut wall to increase but reverse the peristalsis of the small intestine!

......On page 5 of Bager and Lass's 'Everyday Grain Free Gourmet', they refer to the Dr Hass'es belief that adult celiac's starting SCD cannot be cured, but can be sx free while on it. Is this true for all of us adult SCD'ers, celiac or not? Has any adult been able to go off the diet and be cured? I personally think the diet is very healthy- not much different then Paleo except for dairy and honey- but it would be nice not to harm one's gut by a transgression.

[Guest guest]

>

>

>

> I haven't come across the Pimentel book; can you give me the title so I can

locate it?

http://www.amazon.com/New-IBS-Solution-Mark-Pimentel/dp/0977435601

Lilian

[Guest guest]

At 07:36 AM 12/30/2009, you wrote:

On page 5 of Bager and Lass's

'Everyday Grain Free Gourmet', they refer to the Dr Hass'es belief that

adult celiac's starting SCD cannot be cured, but can be sx free while on

it. Is this true for all of us adult SCD'ers, celiac or not? Has any

adult been able to go off the diet and be cured? I personally think the

diet is very healthy- not much different then Paleo except for dairy and

honey- but it would be nice not to harm one's gut by a transgression.

I know that Dr. Haas felt that the earlier a child with gut issues had

SCD intervention, the more likely they were to be able to (at some point)

adopt a more usual diet.

I know of one lady who achieved remission for her Crohn's and was able to

go on a vacation in France where she ended up eating all kinds of breads.

She did come home and go back strict SCD because she didn't want to lose

her symptom-free status, but she did say she had a great time sampling

the different breads.

I know that Elaine's daughter eats about 80-90% SCD. Rice, for some

reason, would bring back her symptoms.

I know that I can tolerate the occasional slip (like cross-contamination

in a restaurant) without too many repercussions. I wouldn't, however,

want to do the non-SCD stuff frequently.

I like my SCD food!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Lilian

Many thanks for the title. I've just requested it from my local library.

Kim M.

> >

> >

> >

> > I haven't come across the Pimentel book; can you give me the title so I can

locate it?

>

> http://www.amazon.com/New-IBS-Solution-Mark-Pimentel/dp/0977435601

>

> Lilian

>

[Guest guest]

Hi Kim,

I see you got the title already- 'A new IBS solution'. I'm not on the computer

every day so I may be slower to respond.

After hearing from you and some others I think it really makes sense that we

would stay on our diet long term. Pimentel, who's diet is quite similar, also

recommends it forever to prevent relapse. Honestly I feel the best I ever have

so even with limited veggies and the like I am very happy!

I am still researching like a fiend and find it so exciting to see the

traditional MD community embracing this topic. I don't think they know about

SCD!

IBS-C 35 years

SCD 7 months

>

>

>

> I haven't come across the Pimentel book; can you give me the title so I can

locate it? BTVC answered a lot of my questions, and I've done considerable

research since my diagnosis and discovering SCD, but I still have questions. I

am dealing with IBS-C as part of having poor digestive motility due to having

Sphincter of Oddi dysfunction (or perhaps because of my ongoing neuromuscular

deterioration), but I have recognized that there is a connection between certain

SCD-legal foods and decreasing peristalsis, and illegal foods definitely trigger

severe constipation episodes. Methane bacteria seems to explain a lot, and I'd

like to learn more about the process.

>

> I've been on SCD for just about 6 years. I reached digestive stability in my

3rd year, but I have to limit my food choices to keep my symptoms managed so can

only tolerate about half of the permitted foods. I accept the limitations,

since I do have functional digestive disorders. It is frustrating at times, of

course. My experience has been that the few times I've eaten an illegal starch,

even just a mouthful or two when out at a restaurant, I've suffered immediately

and for several days afterwards. (I made no attempt to eat at a restaurant

until my 4th year on SCD, however, and rarely do so now.) So my response to

your question is that for some of us it is true that we need to stay on SCD,

because it helps with symptom management. I certainly have no desire to suffer

symptoms for days every time I eat a starch or even a high-carb permitted food.

>

> I tend to forget how awful I feel when I'm in a bad symptom flare, so when the

flare hits I thank my lucky stars that I came across SCD and gave it a try.

>

> Kim M.

> SCD 5+ years

> Sphincter of Oddi dysfunction 6+ years

> neurological deterioration 3+ years

>

> >>>>>>>>>>>>>>>>

> ...From Pimentel I finally learned about the constipation- methane

producing(or actually converting) bacteria are present in constipated patients

-the methane interacts with the gut wall to increase but reverse the peristalsis

of the small intestine!

>

> .....On page 5 of Bager and Lass's 'Everyday Grain Free Gourmet', they refer

to the Dr Hass'es belief that adult celiac's starting SCD cannot be cured, but

can be sx free while on it. Is this true for all of us adult SCD'ers, celiac or

not? Has any adult been able to go off the diet and be cured? I personally think

the diet is very healthy- not much different then Paleo except for dairy and

honey- but it would be nice not to harm one's gut by a transgression.

>