Re: Hello,I am new at this disease

[Guest guest]

Hi ,

Welcome to the group. Please feel free to ask questions here, on just about anything you are unsure of. Everyone here is very supportive. I have always found that when I am dealing with something new with our daughter, someone here has been there done that and is full of info on it. There is also an adult mito group, which you may be interested in joining as well. Best wishes, hope you and your husband are well.

mommy to , , Bre-Anne, Grace, and our newest boy is due Sept. 20th

www.caringbridge.org/oh/grace

[Guest guest]

,

I would be interested to know if the doctors have confirmed a Mito diagnosis in your husband. May I ask how old he is? How tough it must be for you.

Hi,

My name is . My husband is the one with Mitochondrial.

He has had a blood test Pyrarate and the one too(forgot name) which

was High. The next thing is to see a Neuro Muscular Specialist Sept

22.

Mike(hubby) has been ill for 3 and 1/2 years now.It all

started on Jan 7th,2001. The 1st neuro dr said Depression,2nd neuro

said Depression,3rd said Binswangers Disease and Stroke(nope after 1

year) then Migrains and Depression. 4th in the begining she said

stroke,now she belive's Mitochondrial.

Mike has had a headache the Whole time(given no reason for it)

Storke like episodes,memory loss,dementia too at times.This is just

alittle on what we have been through.

Looking for support and where to get good info on this

Disease.. Thank you..