Guest guest Posted February 8, 2007 Report Share Posted February 8, 2007 Am having a very bad flare with my headaches and face pain. Spent a few hours in the ER last night.....God I just love Dr's that ask questions but don't listen. Thank God my sister was with me and could talk for me since I tend to have memory lapses and my speech decides to take a hike. I don't do well with prednisone it literally makes me crazy, so they use medrol which is a much smaller dose, I have less side effects with it, but boy do I still have them. The hot flashes are so bad (I'm in Oregon), wearing short sleeve shirts and capri pants. They did a non contrast CT last night which they said showed nothing. All the scans I've had in the past have shown nothing, they found the growth on my trigeminal nerve by doing surgery. The only decent thing the dr did last night was give me more vicodin with refills (so unusual for an ER doc). Keep me in your thoughts and prayers the next 7 days while I live through my own personal steroid hell. Forgive me for rambling, agitation is another side effect that hits me full force. Kimber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2007 Report Share Posted February 15, 2007 Kimber, I am so sorry to hear this, but know what it’s like. I will keep you in my prayers. Marla Bramer " Faith sees the invisible, believes the incredible and receives the impossible " From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of kimber31_1963 Sent: Thursday, February 08, 2007 2:02 AM To: Neurosarcoidosis Subject: on steroids again Am having a very bad flare with my headaches and face pain. Spent a few hours in the ER last night.....God I just love Dr's that ask questions but don't listen. Thank God my sister was with me and could talk for me since I tend to have memory lapses and my speech decides to take a hike. I don't do well with prednisone it literally makes me crazy, so they use medrol which is a much smaller dose, I have less side effects with it, but boy do I still have them. The hot flashes are so bad (I'm in Oregon), wearing short sleeve shirts and capri pants. They did a non contrast CT last night which they said showed nothing. All the scans I've had in the past have shown nothing, they found the growth on my trigeminal nerve by doing surgery. The only decent thing the dr did last night was give me more vicodin with refills (so unusual for an ER doc). Keep me in your thoughts and prayers the next 7 days while I live through my own personal steroid hell. Forgive me for rambling, agitation is another side effect that hits me full force. Kimber Quote Link to comment Share on other sites More sharing options...
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