Fwd: FSR Sarcoidosis Update (February 2007)

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February 2007

New This Month

FSR Releases New Brochure on Sarcoidosis

Translated Research Findings - Pulmonary Clearance of Aerosolized 99mTc-DTPA

Three Honored at KISS Chicago

FSR Announces First Grant Recipient of 2007

Ask the Sarcoidosis Expert

My sister was just diagnosed with sarcoidosis, what can we expect?

If you, or a family member, are diagnosed with sarcoidosis, you will need to visit your doctor or team of doctors regularly, and you will likely have frequent laboratory and imaging tests to monitor your treatment’s progress.

If you have the chronic type of sarcoidosis that doesn’t resolve on its own, you might be on certain drugs for a long time, even a lifetime, and you might also have to use certain medical devices or undergo various medical procedures.

Read on...

K.I.S.S. Campaign Launches

This past Saturday, at events held throughout the United States, FSR launched our annual week-long K.I.S.S. (Kick In to Stop Sarcoidosis®) Campaign. Designed to raise awareness of this devastating disease, the 2007 K.I.S.S. Campaign will reach millions through a combination of local events, print articles, Public Service Announcements and widely broadcast health reports.

In Chicago, hundreds of supporters, patients and well-known celebrities whose lives have been impacted by sarcoidosis gathered together for the official 'kick-off' at KISS Chicago. In addition to raising more than $150,000 to support Foundation programs, the event provided an opportunity to honor those working to advance the Foundation's mission to improve the lives of those affected by sarcoidosis and to find a cure for this disease.

Also, as part of awareness week activities, we are pleased to announce our first research award of 2007, the FSR-ATS Partnership Grant for Sarcoidosis ($100,000) and the release of a new comprehensive consumer publication on the disease. Read the articles below for more information on each.

Generous contributions from our supporters made these important projects possible. Donate Today.

FSR Releases New Brochure on Sarcoidosis

Sarcoidosis is an inflammatory disease that can affect almost any organ in the body. It is often serious and can even be life-threatening, especially if you do not know you have it.

Early diagnosis and treatment can help relieve symptoms, reduce inflammation and stop or minimize organ damage. This 36-page brochure provides a comprehensive overview of symptoms, diagnostic tools and current treatment options.

Sarcoidosis and the Body is designed for patients who want more information about their disease and offers physicians a tool through which they can provide a thorough explanation in an easy to understand format.

Single Copies are FREE

Translated Research Findings - Pulmonary Clearance of Aerosolized 99mTc-DTPA

Each month, new information on studies and related articles in popular and scientific publications is offered as a resource to patients and professionals seeking up-to-date information on sarcoidosis.

Learn more about an imaging method called scintigraphy that can assess early pulmonary involvement in sarcoidosis before radiological changes are evident.

Read on...

Three Honored at KISS Chicago

KISS Chicago held February 3rd brought together a number of high-profile guests to support the work of FSR and to recognize individuals who have made a significant impact on this disease. In introducing this year's awards, celebrity emcees and Rob Elgas shared their personal experiences and hope for a cure.

FSR Congratulates the 2007 Honorees:

Bill :

In 2005, Mr. joined his daughter to help raise awareness of sarcoidosis by recording a special Public Service Announcement for FSR.

Marc A. Judson, MD:

Dr. Judson (pictured above with Bill ) is director of the MUSC Sarcoidosis Center, one of the largest sarcoidosis clinics in the United States.

Sloan Valve Company:

Through their annual leadership contributions to the K.I.S.S. Campaign, Sloan Valve Company, a world-

class manufacturer of plumbing products, has made a significant impact on the lives of those with sarcoidosis.

Highlighting an exciting evening of surprises, actress 'Duff' Duffy announced the live auction which featured a script signed by the cast of Grey's Anatomy donated by actor Isaiah Washington who lost his mother to sarcoidosis.

Read the KISS Chicago 2007 Press Release

FSR Announces First Grant Recipient of 2007

In conjunction with the 2007 K.I.S.S. Campaign, FSR is pleased to announce our first research grant of 2007. This $100,000 annual award is offered in collaboration with the American Thoracic Society, one of the largest medical societies focused on pulmonary medicine and the premier organization for academic pulmonary physicians in this country.

FSR Congratulates the 2007-2008 FSR-ATS Grant Recipient: Falta, UCDHSC School of Medicine.

Dr. Falta's research focuses on understanding how specific immune blood cells, called T lymphocytes, become overactivated in sarcoidosis patients and determining how they are involved in the formation of granulomas. This information might lead to an understanding of what causes the disease and suggest new therapies for treating it.

Learn More About FSR Funded Research

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