Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 Hi Tracie, How are you feeling? Do you remember mentioning that sarcoidosis loves ankles, feet, wrists and hands? What exactly do you mean? The reason I am asking is because it looks like I have another nerve compression, now in my right ankle. So far, it looks like sarcoidosis is only affecting my nerves, starting in my cranial nerves for the first 5 years, now involving my ankles. But they have never done any biopsies to confirm this. My diagnosis is by exclusion. And only 2 of my 4 doctors are convinced it is sarcoidosis. So I think the ankle problems are related -- yet there is no evidence. Confusing? You bet. My neurologist says inflammatory diseases like mine (whatever you want to call it) makes a person more prone to nerve compression problems. Why? Thanks again, in advance, for all of your help. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 Hi Tracie, How are you feeling? Do you remember mentioning that sarcoidosis loves ankles, feet, wrists and hands? What exactly do you mean? I'm doing ok. Not much energy, but that is what my life has become. At least I'm not housebound. The sarcoidosis loves to create granulomas on the bones of our feet and hands. If those granulomas (a massage therapist would probably say you've got a lot of calcium deposits on your bones) press on nerves, then you have some nasty, nasty pain. Many of the first complaints that we have with sarcoidosis is the joint and muscle pain. I have a picture of "bone spurs" that I'll send. It really paints the picture to what we're feeling. For me, my wrists, fingers- especially the thumbs, and my ankles all have some nasty deformities in the way of oversized knuckles, swelling around the joints-- and the xray of my hands made my thumbs look like swiss cheese. This is the way sarc can destroy bone. Fortunately, it's only in my thumbs for now. The balls of my feet are very tender, and last week, I noticed that my shoes didn't seem to be absorbing the 'shock' when I'd be out walking. I find that I have to have shoes that have alot of padding-- Teva's and Dexter Walkmocs, etc. so that there is enough cushion to absorb the impact. Here's the Link to Bone spurs: http://www.mayoclinic.com/popupnowrap.cfm?objectid=4F436679-2A5D-9994-E208D1E5A0719C6A & method=display_full Here is a section of the FSR sarcoidosis site: Muscles, Joints and Bones: Musculoskeletal sarcoidosis (musculo=muscles, joints and bones=skeletal) can result in a number of symptoms. In muscles, sarcoidosis may cause pain, a mass in the muscle or muscle weakness. Joint stiffness and swelling can occur in the knees, ankles, elbows, wrists feet, and hands. The disease can also cause a granulomatous form of arthritis. Sarcoidosis can cause painless holes in bones and painless swelling, most commonly in the fingers. Sarcoidosis also can affect the bone marrow (soft, organic material that fills bone cavities), which produces blood cells. This can result in anemia, in which there are too few red blood cells, or a lowered number of white blood cells. Red blood cells are needed to deliver oxygen to the body; white blood cells help fight infections. The site is: http://www.stopsarcoidosis.org/sarcoidosis/symptoms.htm LOOK UP OSSEOUS SARCOIDOSIS hERE IS A VERY GOOD SITE WITH ARTICLES ON OSSEOUS SARCOIDOSIS. http://www.sarcoidlife.com/backpain.htm bLESSINGS, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2007 Report Share Posted February 10, 2007 " If those granulomas (a massage therapist would probably say you've got a lot of calcium deposits on your bones) press on nerves, then you have some nasty, nasty pain. " The massage therapist that fractured my rib mentioned very bad calcium deposits but I don't think they were mentioned in my bone scan. " The balls of my feet are very tender, and last week, I noticed that my shoes didn't seem to be absorbing the 'shock' when I'd be out walking. " I have the same problem. " Joint stiffness and swelling can occur in the knees, ankles, elbows, wrists feet, and hands. The disease can also cause a granulomatous form of arthritis. " How can a doctor tell if it is sarcoidosis caused? I keep telling my doctors all these symptoms must be sarc, yet they are unfamiliar and reluctant to give all these symptoms the same cause without " confirmation. " " Sarcoidosis can cause painless holes in bones and painless swelling, most commonly in the fingers. " Would that show up in the bone scans? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2007 Report Share Posted February 11, 2007 Tracie, Thank you for the information, I hope you get to feeling better soon, I will keep you in my prayers. Marla Marla Bramer " Faith sees the invisible, believes the incredible and receives the impossible " From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of tiodaat@... Sent: Saturday, February 10, 2007 12:08 AM To: Neurosarcoidosis Subject: Re: ankles, feet, wrists and hands In a message dated 2/9/07 5:19:46 PM Pacific Standard Time, wendy_cidp (AT) yahoo (DOT) ca writes: Hi Tracie, How are you feeling? Do you remember mentioning that sarcoidosis loves ankles, feet, wrists and hands? What exactly do you mean? I'm doing ok. Not much energy, but that is what my life has become. At least I'm not housebound. The sarcoidosis loves to create granulomas on the bones of our feet and hands. If those granulomas (a massage therapist would probably say you've got a lot of calcium deposits on your bones) press on nerves, then you have some nasty, nasty pain. Many of the first complaints that we have with sarcoidosis is the joint and muscle pain. I have a picture of " bone spurs " that I'll send. It really paints the picture to what we're feeling. For me, my wrists, fingers- especially the thumbs, and my ankles all have some nasty deformities in the way of oversized knuckles, swelling around the joints-- and the xray of my hands made my thumbs look like swiss cheese. This is the way sarc can destroy bone. Fortunately, it's only in my thumbs for now. The balls of my feet are very tender, and last week, I noticed that my shoes didn't seem to be absorbing the 'shock' when I'd be out walking. I find that I have to have shoes that have alot of padding-- Teva's and Dexter Walkmocs, etc. so that there is enough cushion to absorb the impact. Here's the Link to Bone spurs: http://www.mayoclinic.com/popupnowrap.cfm?objectid=4F436679-2A5D-9994-E208D1E5A0719C6A & method=display_full Here is a section of the FSR sarcoidosis site: Muscles, Joints and Bones: Musculoskeletal sarcoidosis (musculo=muscles, joints and bones=skeletal) can result in a number of symptoms. In muscles, sarcoidosis may cause pain, a mass in the muscle or muscle weakness. Joint stiffness and swelling can occur in the knees, ankles, elbows, wrists feet, and hands. The disease can also cause a granulomatous form of arthritis. Sarcoidosis can cause painless holes in bones and painless swelling, most commonly in the fingers. Sarcoidosis also can affect the bone marrow (soft, organic material that fills bone cavities), which produces blood cells. This can result in anemia, in which there are too few red blood cells, or a lowered number of white blood cells. Red blood cells are needed to deliver oxygen to the body; white blood cells help fight infections. The site is: http://www.stopsarcoidosis.org/sarcoidosis/symptoms.htm LOOK UP OSSEOUS SARCOIDOSIS hERE IS A VERY GOOD SITE WITH ARTICLES ON OSSEOUS SARCOIDOSIS. http://www.sarcoidlife.com/backpain.htm bLESSINGS, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
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