Re: ...ongoing life with sarcoid

[Guest guest]

, It's been awhile since I wrote anything to you. I'am allowed only 60 minutes on these computers at the library. These last few days, I asked for more time to have on the computer and was granted because not being busy. Today (Sunday), when a computer was available (this one I'am using), I had 56 minutes to use because the library closes at 5:00 p.m. on Sundays. You know I'am in a same situation as you are in few areas. We rent our residence like yourself. Because I didn't have enough work credits over these past 10 years, I cannot ever collect S.S.D.I. Possibility I can collect was is called S.S.I. Tracie, said a long time ago that I'am disabled. No I'am not. I can still run for a short distances, but not like years ago. I have sensory nerve damage like Tracie stated before herself. If I had seismotor (mispelled?) nerve damage or even more so of having motor nerve damage I more than likely wouldn't be walking or

standing now. Sensory nerve damage may very well be less severe than motor nerve damage in the legs such as I have, but I still have muscle weakness, occassional cramps, virbration of the nerves, tightness feeling sometimes, and just a achy feeling all over my legs. Enough of that. My writings with Tracie regarding having Peptic Ulcer Disease and with all this other health issues was just not getting no where. I know she is on vacation now, but anyway I just need to state, she just doesn't seem to grasp what is going on with myself. You know , if this Sarcoidosis all disapear like in a heartbeat or a blink of an eye right now, I STILL be in a high risk of developing one of those different kinds of stomach cancer for the rest of my life. When I was in the U.S.A.F., a Techinal Sargent (5 striper) had an stomach ulcer(s) that develop into a bleeding stomach ulcer. He was told if he didn't get this resolved at that time he would die in 4/5

months time. He did get better and was that way when I left that area. This was years and years before doctors have a patient use antibotics for this matter too. My situation is that this stomach ulcer has never went away permaintely. It just has been kept in check. It has gotten worse lately (last 3 weeks) to what it was for a long time not that way. For me taking any N.S.A.I.D. or immune suppressive drugs such as Prednisone will just make my stomach much worse. It's just a no win situation. Okay, so how is Wisconsin doing these days??? Cows there still making milk for cheese as always has been, huh??? You think Bret Farve is going to retire from N.F.L.??? I never been to Great America Amusement Park that straddles Wisconsin and ILLinois. Always wanted to go there. , you mentioned that you are a "stay at home mom". Why is it that you cannot get S.S.I. even being a "stay at home mom"? Anyway, maybe you have and maybe you haven't gone with

your family to Great America Amusement Park, but if you haven't gone there, go there if you can with your kids. This is with the "Looney Tunes" cartoon characters amusement park that have people dressed up like Tweety Bird, Bugs Bunny, Roadrunner, Daffy Duck, amoung others. Little kids go crazy seeing such cartoon characters. Bye now, Solberg wrote: Hi all! Well, I decided that just as I did putting up

all the Christmas stuff...I have to do the same with taking it down. I'll do it bit by bit til I get it done and not stress about all the boxes and bins all over the place. I will Not try to take it all down in one day like I used to do. There seems to be alot to think on and pray over lately. Death always seems to come in multiples of three or four in my life. On Dec. 10th my uncle Bob died, then last week my husband's aunt Beatrice died and just yesterday I learned of a close friend's husband who died in the line of duty as a fireman. That last one hit me harder cuz he was young-ish(in his early 50's) and I also know she has major health problems and two sons...just like me. It made me think what in the world would I do if something happened to my husband...sigh. I realize that I am surrounded by blessings but how 'much' am I in denial about handling all the things I should be doing?... I need to ask for help from

others to help me see the whole picture and do what I can and leave the rest for others to handle once I am gone. I think I worry more about my husband handling me dying than the other way around. I haven't driven a car for almost 6 years...maybe I should go out and try to go for short spurts...just in case I need to do so again. What do you do when you're all alone?... What things should we be talking about? I think I need to start thinking on this. hugs S. ps I can't get disability cuz I was an at-home mom raising kids and don't have enough hours worked to quality and we rent. __________________________________________________

[Guest guest]

Hi ,

I know what you mean, my husband just lost

an Aunt in Nov. and we just got back from his Uncle’s funeral, same city,

sisters. So his Aunt lost her sister and less then 2 months later her husband,

it was a shock to her about the uncle, but he was in his 80s had a good life. And

we are that age where our Aunts and Uncles are in their 70s and older.

does your husband have life

Insurance? There is no way I could take care of everything either if something

happened to my husband and he knows it, so he has more then enough life

Insurance, although I pray I never have to use it, but one never knows. We just

lost a young 36yo woman in our church to Breast Cancer, she had been sick for

awhile, so the husband planned ahead and will be able to take some time off and

just be a Dad until they can adjust to life without Mom, still a tough thing to

do.

I know the money can never, ever replace

our loved ones, but it will sure help if we end up that way, I could never work

full time and take care of the family and I know it!

Take Care,

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Solberg

Sent: Sunday, January 07, 2007

5:25 AM

To:

neurosarcoidosis

Subject:

....ongoing life with sarcoid

Hi all! Well, I decided that just as I did putting

up all the Christmas stuff...I have to do the same with taking it down.

I'll do it bit by bit til I get it done and not stress about all the boxes and

bins all over the place. I will Not try to take it all down in one day

like I used to do. There seems to be alot to think on and pray over

lately. Death always seems to come in multiples of three or four in my

life. On Dec. 10th my uncle Bob died, then last week my husband's aunt

Beatrice died and just yesterday I learned of a close friend's husband who died

in the line of duty as a fireman. That last one hit me harder cuz he was

young-ish(in his early 50's) and I also know she has major health problems and

two sons...just like me. It made me think what in the world would I do if

something happened to my husband...sigh. I realize that I am surrounded

by blessings but how 'much' am I in denial about handling all the things I

should be doing?... I need to ask for help from others to help me see the

whole picture and do what I can and leave the rest for others to handle once I

am gone. I think I worry more about my husband handling me dying than the

other way around. I haven't driven a car for almost 6 years...maybe I

should go out and try to go for short spurts...just in case I need to do so

again. What do you do when you're all alone?... What things should

we be talking about? I think I need to start thinking on

this. hugs S.

ps I can't get disability cuz I was an at-home mom raising kids and don't have

enough hours worked to quality and we rent.

__________________________________________________

[Guest guest]

Hi Marla, I wonder...how much insurance should we have? My husband has a small policy his dad got him and he has insurance through work while he's working and we have some accident insurance. I am thinking I'd have to move in with my sister or somebody else if something happened to Steve. I don't cook anymore cuz it's so hard on me to make a whole meal and I don't vacuum or do laundry either. I guess all I can do is do my part whatever that is...and trust the Lord to take care of the rest. My dad died over 23 years ago and he was on disability and my mom has gotten by all these years. But of course she hasn't had serious health problems. I am also going to give this some serious prayer and see what the Lord leads me to do or learn, etc. Day by day, moment by moment that's all I can live most of the time anyway. Marla, you're right... money can't replace them and I

hate even thinking about that but we do have to be practical. I still think Rose had the right idea...a sarcoid commune...lol. have a good day hugs S.Marla Bramer wrote: Hi , I know what you mean, my husband just lost an Aunt in Nov. and we just got back from his Uncle’s funeral, same city, sisters. So his Aunt lost her sister and less then 2 months later her husband, it was a shock to her about the uncle, but he was in his 80s had a good life. And we are that age where our Aunts and Uncles are in their 70s and older. does your husband have life Insurance? There is no way I could take care of everything either if something happened to my husband and he knows it, so he has more then enough life Insurance, although I pray I never have to use it, but one never knows. We just lost a young 36yo woman in our church to Breast Cancer, she had been sick for awhile, so the husband planned ahead and will be able to take some time off and just be a

Dad until they can adjust to life without Mom, still a tough thing to do. I know the money can never, ever replace our loved ones, but it will sure help if we end up that way, I could never work full time and take care of the family and I know it! Take Care, Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of SolbergSent: Sunday, January 07, 2007 5:25 AMTo: neurosarcoidosis Subject: ...ongoing life with

sarcoid Hi all! Well, I decided that just as I did putting up all the Christmas stuff...I have to do the same with taking it down. I'll do it bit by bit til I get it done and not stress about all the boxes and bins all over the place. I will Not try to take it all down in one day like I used to do. There seems to be alot to think on and pray over lately. Death always seems to come in multiples of three or four in my life. On Dec. 10th my uncle Bob died, then last week my husband's aunt Beatrice died and just yesterday I learned of a close friend's husband who died in the line of duty as a fireman. That last one hit me

harder cuz he was young-ish(in his early 50's) and I also know she has major health problems and two sons...just like me. It made me think what in the world would I do if something happened to my husband...sigh. I realize that I am surrounded by blessings but how 'much' am I in denial about handling all the things I should be doing?... I need to ask for help from others to help me see the whole picture and do what I can and leave the rest for others to handle once I am gone. I think I worry more about my husband handling me dying than the other way around. I haven't driven a car for almost 6 years...maybe I should go out and try to go for short spurts...just in case I need to do so again. What do you do when you're all alone?... What things should we be talking about? I think I need to start thinking on this. hugs S. ps I can't get disability cuz I

was an at-home mom raising kids and don't have enough hours worked to quality and we rent. __________________________________________________

[Guest guest]

, yeah it would have been nice to have a house but fate just never seemed to go that way for my husband and me. Right now i'd be happy with a double-wide trailer. Well, I think that because my husband makes too much we can't get any assistance but I suppose if something happened to him I would then qualify for something. I'm trusting in God that I won't have to worry about that for awhile. I'm glad you can still walk and run short distances. I have a wheelchair for anything other than very short distances. Even a walk through a store is too much for me. Maybe some of your stomach problems is also sarcoid cuz it can hit that hard, too, and mimic other diseases. I have to be very careful of what I eat or I can get violently ill. My husband cooked something with wine in it yesterday and I went to bed sick, nauseous, dizzy etc., for hours. I had told him to use chicken

broth but he said we were out of it and was too lazy to go to the store...and I paid the price, I tell ya. I think I'll dump all the wine out so no more 'mistakes' like that happen anymore. Yeah, I've been to Great America...years ago. No more rides for me, , or I'll throw up all over the other riders...lol. My boys have gone often with their friends and youth group from church. AS for the cheese, you just can't get away from it in Wisconsin. I probably eat some kindof dairy every day. But I'm trying to switch to sugar free pudding and the like... also low-carb frozen bars instead of ice cream. I am also diabetic and have to carefully watch the sugar in my diet. ...and the Packers...they've had a rough season and I can't tell you if Brett will retire or not. I hope not. But the other players sure do rely on him alot...maybe too much. I don't watch much sports anymore cuz I get so riled

up when watching them and I've been told to acquire less stressful hobbies. lol , keep warm there's another cold front going through the states from Canada, I believe. hugs from a cheesehead S.GARY WOOLARD wrote: , It's been awhile since I wrote anything to you. I'am allowed only 60 minutes on these computers at the library. These last few days, I asked for more time to have on the computer and was granted

because not being busy. Today (Sunday), when a computer was available (this one I'am using), I had 56 minutes to use because the library closes at 5:00 p.m. on Sundays. You know I'am in a same situation as you are in few areas. We rent our residence like yourself. Because I didn't have enough work credits over these past 10 years, I cannot ever collect S.S.D.I. Possibility I can collect was is called S.S.I. Tracie, said a long time ago that I'am disabled. No I'am not. I can still run for a short distances, but not like years ago. I have sensory nerve damage like Tracie stated before herself. If I had seismotor (mispelled?) nerve damage or even more so of having motor nerve damage I more than likely wouldn't be walking or standing now. Sensory nerve damage may very well be less severe than motor nerve damage in the legs such as I have, but I still have muscle weakness, occassional cramps, virbration of the nerves, tightness feeling sometimes, and just a

achy feeling all over my legs. Enough of that. My writings with Tracie regarding having Peptic Ulcer Disease and with all this other health issues was just not getting no where. I know she is on vacation now, but anyway I just need to state, she just doesn't seem to grasp what is going on with myself. You know , if this Sarcoidosis all disapear like in a heartbeat or a blink of an eye right now, I STILL be in a high risk of developing one of those different kinds of stomach cancer for the rest of my life. When I was in the U.S.A.F., a Techinal Sargent (5 striper) had an stomach ulcer(s) that develop into a bleeding stomach ulcer. He was told if he didn't get this resolved at that time he would die in 4/5 months time. He did get better and was that way when I left that area. This was years and years before doctors have a patient use antibotics for this matter too. My situation is that this stomach ulcer has never went away permaintely. It

just has been kept in check. It has gotten worse lately (last 3 weeks) to what it was for a long time not that way. For me taking any N.S.A.I.D. or immune suppressive drugs such as Prednisone will just make my stomach much worse. It's just a no win situation. Okay, so how is Wisconsin doing these days??? Cows there still making milk for cheese as always has been, huh??? You think Bret Farve is going to retire from N.F.L.??? I never been to Great America Amusement Park that straddles Wisconsin and ILLinois. Always wanted to go there. , you mentioned that you are a "stay at home mom". Why is it that you cannot get S.S.I. even being a "stay at home mom"? Anyway, maybe you have and maybe you haven't gone with your family to Great America Amusement Park, but if you haven't gone there, go there if you can with your kids. This is with the "Looney Tunes" cartoon characters amusement park that have people dressed up like Tweety Bird, Bugs Bunny,

Roadrunner, Daffy Duck, amoung others. Little kids go crazy seeing such cartoon characters. Bye now, Solberg <mary_s777 (AT) yahoo (DOT) com> wrote: Hi all! Well, I decided that just as I did putting up all the Christmas stuff...I have to do the same with taking it down. I'll do it bit by bit til I get it done and not stress about all the boxes and bins all over the place. I will Not try to take it all down in one day like I used to do. There seems to be alot to think on and pray over lately. Death always seems to come in multiples of three or four in my life. On Dec. 10th my uncle Bob died, then last week my husband's aunt Beatrice died and just yesterday I learned of a close friend's husband who died in

the line of duty as a fireman. That last one hit me harder cuz he was young-ish(in his early 50's) and I also know she has major health problems and two sons...just like me. It made me think what in the world would I do if something happened to my husband...sigh. I realize that I am surrounded by blessings but how 'much' am I in denial about handling all the things I should be doing?... I need to ask for help from others to help me see the whole picture and do what I can and leave the rest for others to handle once I am gone. I think I worry more about my husband handling me dying than the other way around. I haven't driven a car for almost 6 years...maybe I should go out and try to go for short spurts...just in case I need to do so again. What do you do when you're all alone?... What things should we be talking about? I think I need to start thinking on this. hugs

S. ps I can't get disability cuz I was an at-home mom raising kids and don't have enough hours worked to quality and we rent. __________________________________________________

[Guest guest]

, I’m not sure how much is

enough, but husband has way more then “I” think I need, but he

thinks with the illness and all I will need it.

We sat down with a financial planner and

looked at what would be enough, I think you can almost to that on line these

days, or there might be someone from your church that will help you. He looked

at what we made and what it would take to live in 10 years etc. we had this

done years ago, so we now have like 3 policies, my husband lost an eye when he

was 17, so he also carries disability insurance in case anything happens to his

other eye, my husband always does more, if you know what I mean, he is a

perfectionist, not a bad thing, except when you’re helping him with a

project and you can’t seem to do it right. When he ask the kids to come

and help him, they come and beg me to help him, or turn to their sibling and

say it’s your turn to be told your not doing it right! L0L, he’ a

great man and takes very good care of me, I am so blessed in this world. There

are things I can no longer do very well either, but that’s OK, God doesn’t

care how clean our house is, he cares how clean our soul is. God Bless,

Marla

" Faith

sees the invisible, believes the incredible and receives the impossible "

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Solberg

Sent: Monday, January 08, 2007

6:51 AM

To: Neurosarcoidosis

Subject: RE:

....ongoing life with sarcoid

Hi Marla, I wonder...how much insurance should we

have? My husband has a small policy his dad got him and he has

insurance through work while he's working and we have some accident

insurance. I am thinking I'd have to move in with my sister or somebody

else if something happened to Steve. I don't cook anymore cuz it's so

hard on me to make a whole meal and I don't vacuum or do laundry either.

I guess all I can do is do my part whatever that is...and trust the Lord to take

care of the rest. My dad died over 23 years ago and he was on disability

and my mom has gotten by all these years. But of course she hasn't had

serious health problems. I am also going to give this some serious prayer

and see what the Lord leads me to do or learn, etc. Day by day, moment by

moment that's all I can live most of the time anyway. Marla, you're

right... money can't replace them and I hate even thinking about that but we do

have to be practical. I still think Rose had the right idea...a sarcoid commune...lol.

have a good day hugs S.

Marla Bramer

<mebramer (AT) gmail (DOT) com> wrote:

Hi ,

I know what you mean, my husband just lost

an Aunt in Nov. and we just got back from his Uncle’s funeral, same city,

sisters. So his Aunt lost her sister and less then 2 months later her

husband, it was a shock to her about the uncle, but he was in his 80s had a

good life. And we are that age where our Aunts and Uncles are in their 70s and

older.

does your husband have life

Insurance? There is no way I could take care of everything either if

something happened to my husband and he knows it, so he has more then enough

life Insurance, although I pray I never have to use it, but one never

knows. We just lost a young 36yo woman in our church to Breast Cancer,

she had been sick for awhile, so the husband planned ahead and will be able to

take some time off and just be a Dad until they can adjust to life without Mom,

still a tough thing to do.

I know the money can never, ever replace

our loved ones, but it will sure help if we end up that way, I could never work

full time and take care of the family and I know it!

Take Care,

Marla

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ]

On Behalf Of Solberg

Sent: Sunday, January 07, 2007

5:25 AM

To: neurosarcoidosis

Subject:

....ongoing life with sarcoid

Hi all! Well, I decided that

just as I did putting up all the Christmas stuff...I have to do the same with taking

it down. I'll do it bit by bit til I get it done and not stress about all

the boxes and bins all over the place. I will Not try to take it all down

in one day like I used to do. There seems to be alot to think on and pray

over lately. Death always seems to come in multiples of three or four in

my life. On Dec. 10th my uncle Bob died, then last week my husband's aunt

Beatrice died and just yesterday I learned of a close friend's husband who died

in the line of duty as a fireman. That last one hit me harder cuz he was

young-ish(in his early 50's) and I also know she has major health problems and

two sons...just like me. It made me think what in the world would I do if

something happened to my husband...sigh. I realize that I am surrounded

by blessings but how 'much' am I in denial about handling all the things I

should be doing?... I need to ask for help from others to help me see the

whole picture and do what I can and leave the rest for others to handle once I

am gone. I think I worry more about my husband handling me dying than the

other way around. I haven't driven a car for almost 6 years...maybe I

should go out and try to go for short spurts...just in case I need to do so

again. What do you do when you're all alone?... What things should

we be talking about? I think I need to start thinking on

this. hugs

S. ps I can't get disability

cuz I was an at-home mom raising kids and don't have enough hours worked to

quality and we rent.

__________________________________________________

[Guest guest]

, When I got out of the U.S.A.F., I got a certificate for a V.A. approved guarantee eligibility for get a loan through the V.A. to buy a house trailer or is it called mobile home like in a mobile home park. This would only cover a portion of the cost. I would have to have other sources to pay on this such as from a bank or credit union. The way things went in the 1980's and the 1990's, I never had stability in employment and with a wage that a finciancial institution like I mentioned would give me a loan(s) to buy a mobile home. Sorry here, I just mixed up to what is the proper names for these types of dwellings compare to what those vehicles use to travel across the country that have beds, bathroom, kitchen, tvs', etc. in them. This certificate may perhaps is still valid, buy I don't have any source of income to get a house trailer anyway. This stomach situation I have is almost an entire certantly

cause by irritation in the stomach lining of stomach ulcer(s) develop by themselves. You and and anyone else in the world can develop a stomach ulcer(s) if you are taking Prednisone or anyother prescription form of anti-inflammatary drug. My writing/talking all along since I came to this group way back in August, 2004 is that taking a drug such Prednisone WILL make my stomach situation worse. The possibility of getting a bleeding stomach ulcer increases when you have irritation on the stomach lining. Compound that Prednisone slows down your immune system even to the point of shutting it down completely. This H-pylori Bacteria may be not completely eliminated and just now in a dormat state condition. See and taking Prednisone by the side affect it is by shutting down your immune system, there's nothing to stop germs, bacteria, viruses to control them. Like all those past e-mails I said these past years, my lymphocryte blood testing had from a low amount of just 8.6 % to

only up to 14. something %. The MININUM this should for ALL persons should be at least 20%. I've been running a DEFICET in this area for years. My body has the hardest time to get rid of colds, flu, etc at least since 2002. I suspect recently that I have an outbreak of Impetico which is a contagious skin infection there on my nose. I took antibotics years and years ago when I first had this about 1994 to rid myself of this, but this still comes up once in awhile. I'am afraid that if I was on Prednisone, infections would just run rampant in my body. Solberg wrote: , yeah it would have been nice to have a house but fate just never seemed to go that way for my husband and me. Right now i'd be happy with a double-wide trailer. Well, I think that because my husband makes too much we can't get any assistance but I suppose if something happened to him I would then qualify for something. I'm trusting in God that I won't have to worry about that for awhile. I'm glad you can still walk and run short distances. I have a wheelchair for anything other than very short distances. Even a walk through a store is too much for me. Maybe some of your stomach problems is also sarcoid cuz it can hit that hard, too, and mimic other diseases. I have to be very careful of what I eat or I can get violently ill. My husband cooked something with

wine in it yesterday and I went to bed sick, nauseous, dizzy etc., for hours. I had told him to use chicken broth but he said we were out of it and was too lazy to go to the store...and I paid the price, I tell ya. I think I'll dump all the wine out so no more 'mistakes' like that happen anymore. Yeah, I've been to Great America...years ago. No more rides for me, , or I'll throw up all over the other riders...lol. My boys have gone often with their friends and youth group from church. AS for the cheese, you just can't get away from it in Wisconsin. I probably eat some kindof dairy every day. But I'm trying to switch to sugar free pudding and the like... also low-carb frozen bars instead of ice cream. I am also diabetic and have to carefully watch the sugar in my diet. ...and the Packers...they've had a rough season and I can't tell you if Brett will retire or not. I hope not. But

the other players sure do rely on him alot...maybe too much. I don't watch much sports anymore cuz I get so riled up when watching them and I've been told to acquire less stressful hobbies. lol , keep warm there's another cold front going through the states from Canada, I believe. hugs from a cheesehead S.GARY WOOLARD <garyjwoolard (AT) yahoo (DOT) com> wrote: , It's been awhile since I wrote anything to you. I'am allowed only 60 minutes on these computers at the library. These last few days, I asked for more time to have on the computer and was granted because not being busy. Today (Sunday), when a computer was available (this one I'am using), I had 56 minutes to use because the library closes at 5:00 p.m. on Sundays. You

know I'am in a same situation as you are in few areas. We rent our residence like yourself. Because I didn't have enough work credits over these past 10 years, I cannot ever collect S.S.D.I. Possibility I can collect was is called S.S.I. Tracie, said a long time ago that I'am disabled. No I'am not. I can still run for a short distances, but not like years ago. I have sensory nerve damage like Tracie stated before herself. If I had seismotor (mispelled?) nerve damage or even more so of having motor nerve damage I more than likely wouldn't be walking or standing now. Sensory nerve damage may very well be less severe than motor nerve damage in the legs such as I have, but I still have muscle weakness, occassional cramps, virbration of the nerves, tightness feeling sometimes, and just a achy feeling all over my legs. Enough of that. My writings with Tracie regarding having Peptic Ulcer Disease and with all this other health issues was just

not getting no where. I know she is on vacation now, but anyway I just need to state, she just doesn't seem to grasp what is going on with myself. You know , if this Sarcoidosis all disapear like in a heartbeat or a blink of an eye right now, I STILL be in a high risk of developing one of those different kinds of stomach cancer for the rest of my life. When I was in the U.S.A.F., a Techinal Sargent (5 striper) had an stomach ulcer(s) that develop into a bleeding stomach ulcer. He was told if he didn't get this resolved at that time he would die in 4/5 months time. He did get better and was that way when I left that area. This was years and years before doctors have a patient use antibotics for this matter too. My situation is that this stomach ulcer has never went away permaintely. It just has been kept in check. It has gotten worse lately (last 3 weeks) to what it was for a long time not that way. For me taking any N.S.A.I.D. or immune suppressive drugs such as

Prednisone will just make my stomach much worse. It's just a no win situation. Okay, so how is Wisconsin doing these days??? Cows there still making milk for cheese as always has been, huh??? You think Bret Farve is going to retire from N.F.L.??? I never been to Great America Amusement Park that straddles Wisconsin and ILLinois. Always wanted to go there. , you mentioned that you are a "stay at home mom". Why is it that you cannot get S.S.I. even being a "stay at home mom"? Anyway, maybe you have and maybe you haven't gone with your family to Great America Amusement Park, but if you haven't gone there, go there if you can with your kids. This is with the "Looney Tunes" cartoon characters amusement park that have people dressed up like Tweety Bird, Bugs Bunny, Roadrunner, Daffy Duck, amoung others. Little kids go crazy seeing such cartoon characters. Bye now, Solberg

<mary_s777 (AT) yahoo (DOT) com> wrote: Hi all! Well, I decided that just as I did putting up all the Christmas stuff...I have to do the same with taking it down. I'll do it bit by bit til I get it done and not stress about all the boxes and bins all over the place. I will Not try to take it all down in one day like I used to do. There seems to be alot to think on and pray over lately. Death always seems to come in multiples of three or four in my life. On Dec. 10th my uncle Bob died, then last week my husband's aunt Beatrice died and just yesterday I learned of a close friend's husband who died in the line of duty as a fireman. That last one hit me harder cuz he was young-ish(in his early 50's) and I also know she has major health problems and two sons...just like

me. It made me think what in the world would I do if something happened to my husband...sigh. I realize that I am surrounded by blessings but how 'much' am I in denial about handling all the things I should be doing?... I need to ask for help from others to help me see the whole picture and do what I can and leave the rest for others to handle once I am gone. I think I worry more about my husband handling me dying than the other way around. I haven't driven a car for almost 6 years...maybe I should go out and try to go for short spurts...just in case I need to do so again. What do you do when you're all alone?... What things should we be talking about? I think I need to start thinking on this. hugs S. ps I can't get disability cuz I was an at-home mom raising kids and don't have enough hours worked to quality and we rent. __________________________________________________

[Guest guest]

Sorry I am late answering this email but I don't have access to the computer like I used to. If you quality you can still draw ssi without the hours.....Hope your feeling better..Connie Solberg wrote: Hi all! Well, I decided that just as I did putting up all the Christmas stuff...I have to do the same with taking it down. I'll do it bit by bit til I get it done and not stress about all the boxes and bins all over the place. I will Not try

to take it all down in one day like I used to do. There seems to be alot to think on and pray over lately. Death always seems to come in multiples of three or four in my life. On Dec. 10th my uncle Bob died, then last week my husband's aunt Beatrice died and just yesterday I learned of a close friend's husband who died in the line of duty as a fireman. That last one hit me harder cuz he was young-ish(in his early 50's) and I also know she has major health problems and two sons...just like me. It made me think what in the world would I do if something happened to my husband...sigh. I realize that I am surrounded by blessings but how 'much' am I in denial about handling all the things I should be doing?... I need to ask for help from others to help me see the whole picture and do what I can and leave the rest for others to handle once I am gone. I think I worry more about my husband handling me dying than the other way

around. I haven't driven a car for almost 6 years...maybe I should go out and try to go for short spurts...just in case I need to do so again. What do you do when you're all alone?... What things should we be talking about? I think I need to start thinking on this. hugs S. ps I can't get disability cuz I was an at-home mom raising kids and don't have enough hours worked to quality and we rent. __________________________________________________

[Guest guest]

, did you apply for SSDI & someone there told you that you weren't eligible, or are you just assuming that? It seems like there must be some way, whether it's through your husband's earnings, or something.

As for the being alone, I had been divorced for 5 years before the really difficult symptoms began, so I was used to being independent & responsible for myself. Which almost makes it harder now to ask for help. My niece has been a huge help. She's mid-20's & lives nearby. She came over & helped me with the Christmas decorations, so I was able to get it done in one day, because she did most of it! She even took the boxes up into the attic. Every couple of weeks, she comes & vacuums, does other housework, & either I pay her $10/hour (she won't let me give her any more) or babysat her 2 little ones for a couple of hours now & then. When I get behind on my laundry, Sharon will come over & get me caught up. She's really a gem. Right now she has plenty of time, as she's just working part-time (Putt Putt), but when it warms up & she's working full-time it will be harder. Maybe you can find someone like that to help you, a neighbor maybe. You might be able to trade the help for a painting or something.

Well, good luck, & don't be in too big a hurry on those Christmas decorations. I have a couple of things that I keep up all year round, and my tree is on the front porch. It still looked so pretty & was nice & green, I couldn't bear to get rid of it! One year I kept my tree on the deck, and by spring birds were nesting in it, so I couldn't move it then, even though the needles were falling off. I keep things around me that bring joy, laughter, good memories; doesn't matter to me if they look tacky or out of place. I'm not very stylish anyway.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: ...ongoing life with sarcoidDate: Wed, 14 Feb 2007 11:02:57 -0800 (PST)

Sorry I am late answering this email but I don't have access to the computer like I used to. If you quality you can still draw ssi without the hours.....Hope your feeling better..Connie Solberg <mary_s777 (AT) yahoo (DOT) com> wrote:

Hi all! Well, I decided that just as I did putting up all the Christmas stuff...I have to do the same with taking it down. I'll do it bit by bit til I get it done and not stress about all the boxes and bins all over the place. I will Not try to take it all down in one day like I used to do. There seems to be alot to think on and pray over lately. Death always seems to come in multiples of three or four in my life. On Dec. 10th my uncle Bob died, then last week my husband's aunt Beatrice died and just yesterday I learned of a close friend's husband who died in the line of duty as a fireman. That last one hit me harder cuz he was young-ish(in his early 50's) and I also know she has major health problems and two sons...just like me. It made me think what in the world would I do if something happened to my husband...sigh. I realize that I am surrounded by blessings but how 'much' am I in denial about handling all the things I should be doing?... I need to ask for help from others to help me see the whole picture and do what I can and leave the rest for others to handle once I am gone. I think I worry more about my husband handling me dying than the other way around. I haven't driven a car for almost 6 years...maybe I should go out and try to go for short spurts...just in case I need to do so again. What do you do when you're all alone?... What things should we be talking about? I think I need to start thinking on this. hugs S. ps I can't get disability cuz I was an at-home mom raising kids and don't have enough hours worked to quality and we rent.

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