DAWN Re: dysautonomia - how do YOU control low blood pressure???

[Guest guest]

Have you ever tried florinef?

This was what saved me as I had the identicle problem you have

described! I would drink 3 quarts of water, and it just meant I

peed 3 quarts of water LOL!

I also took in alot of salt, but they realised in my urine tests

that most of it was just getting passed with the water. Florinef is

a hormone that naturally helps your body retain salt (and therefor

water) and boosts the amount of blood you have (and therefor your

blood pressure). What i noticed big time the first few days of

taking it (it took a week to feel the full effects though) was that

I peed WAY less... I still peed enough and i didnt swell up at all,

but i didnt feel dried out all the time, and water didnt fly right

through me...

it has seriuosly saved my life... it would be worth it to ask about

it.. some docs are hesitant to perscribe it, as once you start

taking it, its difficult to stop, as your body becomes somewhat

dependant on it, however as far as quality of life goes its made

SUCH a difference, and there arent any MAJOR side effects. (the

only one ive experienced is masking of infections... when i get sick

i dont get a fever... it just means my docs have to be aware that

no fever doesnt mean no infection... took them a while to catch onto

this, but their doing better now! lol)

Midodrine is intense... it is a short acting (4

hours) " vasoconstricter " basically it squeezes your blood vessels

tight, and as a result boosts your blood pressure... it WORKS really

well when im in crisis and need something NOW, but its not a good

long term solution... first off if your mensturating and not

sterilized, most docs are extremely hesitant to perscribe it, as its

considered dangerous in early pregnancy... secondly the side

effects can be more severe... it can cause your blood pressure to go

WAY too high... when you take it you are not allowed to lay down for

4 hours, as that can make your BP shoot up...

it is extremely effective for short term symptom relief when you

need it (going out to an event or something), but as a long term

solution, you probably want to ask about florinef...

One other option is Paxil (peroxetine). its an antidepressent, but

they realised early on that a side effect is high blood pressure...

they have done alot of studies and have realised in people with low

BP problems, it can actually help them out. Ive never tried them as

im a bit nervous about antidepressants when i dont need them, but i

havent gotten to the point yet that nothing else works either.

Keely

> Sorry about the repost. Accident-total brain fog right now!

>

> Anyways I have very low bP too and have found no answers. Had a

tilt

> tabel test with moderate to severe findings, BP, pots, syncope. I

> have tried to increase fluid intake, but it just seems the more I

> drink the more I unrinate and I always feel dry and dehydrated. I

> have increased salt and nothing has worked. I would love to know

> about midridone (sp). Did it help when you could take it? I am

> suffering so much and doing all that I have been told to, but no

> relief. When I went to the conference a couple of weeks ago, I

think

> it was too much sitting in a chair. My legs were swollen and I

felt

> worse than ever. I know elevating my feet definately helps.

>

>

> Dawn