Guest guest Posted February 17, 2007 Report Share Posted February 17, 2007 Hey everyone, sorry I haven't been around much, and I do appologize about the Thursday and Sunday Chat's, I just can't see well enough right now to keep up with them.. So, I'm gonna put them on hold for awhile since no one has shown any interest in helping, till I can get my eyes under control... Please know that the chat room is open 24/7 and you can go there anytime and chat.. Marla's son has graciously provided us with this wonderful place where we can go and talk to one another in real time.. Marla and her son Joe have been a huge blessing to this group, and I want to say thank you.. the the both of them.. you can never say that enough.. Now, I do have a question, that I know I should know the answer to, but for some reason I just don't... I've been taking Procrit now for about a year because of my Hemocrit dropped last Feburary and I had to receive 2 units of blood.. and huge amounts of Normal saline IV..My Hemocrit has never gotten above 32 and normal is 38..even with the procrit and the blood transfusion. I've just recently had another drop to 27 no signs of active bleeding anywhere, I've had the colonoscopy, negative..This wouldn't bother me if I wasn't so symptomatic with it.. My heart feels like its pounding, and pounds all the way up into my ears, as crazy as that sounds. and I'm so short of breath with just standing up.. I know, when I first realized that something was wrong, and I mean before I was dx.. that I was a blood donor.. and I went to give blood and the refused me because my HCT and HGB were low.. that prompted me to start searching into what may be going on.. Even though, I've had these 3 surgeries with my eye, I don't think I would have lost that kind of blood from my eye? I'm beginning to think that this is a warning sign to me that my disease may be active again. Does anyone have a theory or a clue about this? They've increased my procrit to 40,000units weekly, and if I don't stablize at 36 I'm to increase it to 60,000units a week and then regular blood transfusions..I don't want that.. So as you see, I'm finding myself, seeking more answers.. And Becky, if you see this.. Please call me, I've lost your phone number.. and I'm worried about you... Hugs, Quote Link to comment Share on other sites More sharing options...
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