Re: One more question/Increased Thirst?!

[Guest guest]

If he is that thirsty, I would defiantly have his blood sugar tested. Extreme thirst is usually a first sign of diabetes. Blood sugar problems are very common with mito, so it is a good idea to know where he is at anyway. Our daughter is hypoglycemic (low blood sugar) and she always has a sippy or something. We never discourage her from drinking as the fluids are great for her, she dehydrates extremely quick. We are also very fortunate to have a two year old who loves to drink water.

[Guest guest]

Hey

sorry I can't remember a scientific reason for this...altho I remember that did have polyuria as well. I just remember at the conference a lot of moms talking about it and then on the list it being mentioned a great deal. With Mito kids it does seem more common (and not related to diabetes but you should rule that out) that they guzzle the drinks down. still wore pull-ups to bed every night of his life. He didn't have a mito symptoms until he was 5.5 and then died right before he was seven but even before we knew something was wrong he was thirsty and never fully trained at night. He was 115 pounds when he died so you can imagine trying to diaper him but we managed.

I honestly can't remember how we/they explained his excessive thirst. I have a mito-mom friend whose daughter has it even worse than did and I will try to remember to ask her and let you know if she can give me a reason.

deb...mom to three great kids and wife to one amazing guy!http://www.lifeofloveproject.org/http://www.heartliftersgallery.com/ Crazy Lizzies!! PURSES!

[Guest guest]

Do you have to prick his finger like my husband has to do? I worry because diabetes runs in both my husband's and my family. It's a real possibility that he could be affected by it, if not now, then when he gets older.

e...

I would definitely check it in this case! Yes you can just use your husband's machine. My step-dad had one and we used it periodically. There is a condition called Diabetes Mellitus that I think can be a secondary issue in mito kids. I am sure you can find some info on it. There are also some forms of mitos/fods that deal with hypoglycemic issues...like Fructosemia and those kids have excessive thirst too I think. Sugar issues can also be autonomic (meaning a dysfuction in the brain as compared to the pancreas). I would definitely reading up on Rubinol or the like before giving it to him for drooling if you are considering it.

deb...mom to three great kids and wife to one amazing guy!http://www.lifeofloveproject.org/http://www.heartliftersgallery.com/ Crazy Lizzies!! PURSES!

[Guest guest]

" (and many mito kids) had increased thirst"

Ok, wait a minute! Deb, are you telling me Mito children have increased thirst? I had no idea! Is this common? This is a *huge* deal for Devin! Ever since we can remember, he has only wanted to drink, drink, drink!! I mean, I've never seen any child gulp down drinks like this boy does! He begs for water, juice, anything he can get his hands on! At a meal, he chugs all his milk or water first, then barely has room for food. When we take away his drink from the table, he pitches a fit! You'd have thought he just lost his best friend! He also goes to bed every night with a water cup. We have been trying to get him out of Pull Ups at night, so of course we took the water away. He was very upset. Anyway, when I went to check on him after he had fallen asleep, I saw that in a feeble attempt to get some water, he had taken the top off of one of those little water games they sell for $1.50 at Wal*Mart where you push the button on the front of it and you try to get the little ring around the stick, or catch the fish, and drank all the water out of it!!! I had no idea just how desperate for water he really was!

I just can't believe this. My husband and I have often wondered if he had juvenille diabetes or something with his ongoing *excessive!* thirst! Please, tell me what you know about this!

Thank you so much!

e

Re: One more question *Ü*

had this problem too and just drooled once he progressed and that was the way it was. He also had dysautonomia. I know there is a drooling medicine but I don't think its recommended for our kids. It dries everything up and considering (and many mito kids) had increased thirst, it would have made other problems worse. With him, some days were worse than others but we have many pictures with a wet shirt!

deb...mom to three great kids and wife to one amazing guy!http://www.lifeofloveproject.org/http://www.heartliftersgallery.com/ Crazy Lizzies!! PURSES!Please contact mito-owner with any problems or questions.

[Guest guest]

Thanks . That's a good idea to have his blood sugar tested. How do you do that in a child? Do you have to prick his finger like my husband has to do? I worry because diabetes runs in both my husband's and my family. It's a real possibility that he could be affected by it, if not now, then when he gets older.

Oh this Mito! You learn something new every day.

e *Ü*

[Guest guest]

I would suggest having the pediatrician run a fasting glucose test. I know the fasting part is no fun, but my pediatrician had us come first thing in the morning. You can also do the finger prick kind, but it is not as controlled as the fasting.

Best wishes.