Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Well, I am back to the beginning, again, regarding Gracies hypoglycemia. She is always low, but we do pretty good maintaining during the day. Her problem is that she drops so low in her sleep. We originally did the cornstarch, worked for a while but we had to keep increasing the dose. Eventually it became to constipating for her and we had to stop. Then we switched to a high complex carb diet all day, which also worked well for a while. Now she is back to the beginning, waking up about every hour during the night in a sweat. I have started giving her a big complex carb dinner as late as possible. Now I am feeding her dinner around 6:30 to 7 and she falls asleep usually around 8. This is giving her a few hours of good sleep, but then around 12 she is up every hour again. I do give her something to drink when she is up and it does put her back to sleep, but it does not last. She is also waking up in the morning and headed straight to the fridge. On average she eats two breakfasts a day. I am at a loss. She does have a g tube, but it is not for feeding so I hate to resort to putting her on a pump all night. I am hoping someone has any good suggestions, so we don't have to resort to this. Also I don't know if we will get good reception from the GI if I do ask for a pump. She is determined to keep her off any type of enternal feeding, fearing that she will only want to be fed that way, and the fact that she is maintaining herself quite well on her own (and a little help from Periactin, twice a day). I completely agree with her GI, but wonder if there is any more options. Sorry this got long. Thank you in advance. Quote Link to comment Share on other sites More sharing options...
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