bobbleheads

[Guest guest]

Ron, I read about a company that makes "Bobbleheads" to order. You could buy your very own Ron Bobblehead! Cool, yeah?

Ramblin' Rose

Moderator

From: anewronald@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re:New to this groupDate: Tue, 20 Feb 2007 18:46:54 EST

Hello ,

I am so sorry that we have to meet this way. I can identify with everything you said. My name is and I was diagnosed neurosarcoidosis 12 years ago. I continue to experience every symptom you mentioned, especially the "BOBBLE HEAD SYNDROM", very cute name for a not so cute condition. It shows you have good humor through all of this.

I am a 47 year old African American male that retired and applied for Social Security Disability six years ago. I was approved on my first submission. I was blessed by this occurrence. I applied after quitting my job when my short term disability expired. Fortunately, my employer had a long term disability program as well. Check and see what your employer offers. Read your new hire materials from Human Resources to see what your options are at work. Make sure your cover all your basis before you make a permanent decision regarding your employment status.

When I read your post I felt a special connection because December 22 is my birthday. Has been for the past 47 years now. After reading that and all the other things that are similar I felt like I had to respond to your questions and concerns.

I think your tapering may have been to quick. Having an MRI a few months afterwards is not very beneficial. Perhaps a year after the treatment would have been more significant. The treatment should have lasted longer in my opinion, taking the oral Prednisone.

I am still on Prednisone, 6 mg per day. I am also on Methotrexate injections once a week. I am hoping and praying that it is helping. My sarc is in my spinal cord and brain. All my cranial nerves are affected as well.

So, that makes me a MAJOR BOBBLE HEAD!

Please keep in touch. The website is very supportive with a lot of knowledgeable and compassionate members. I will be here to answer your questions if I can as well as the moderators and other members.

Your new friend,

BOBBLE HEAD

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[Guest guest]

, Sorry Ron, Was just picturing you as a bobblehead. Lots of Love LynneRose wrote: Ron, I read about a company that makes

"Bobbleheads" to order. You could buy your very own Ron Bobblehead! Cool, yeah? Ramblin' Rose Moderator From: anewronald (AT) aol (DOT) comReply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re:New to this groupDate: Tue, 20 Feb 2007 18:46:54 EST Hello , I am so sorry that we have to meet this way. I can identify with everything you said. My name is and I was diagnosed neurosarcoidosis 12 years ago. I continue to experience every symptom you mentioned, especially the "BOBBLE HEAD SYNDROM", very cute name for a not so cute condition. It shows you have good humor through all of this. I am a 47 year old African American male that retired and applied for Social Security Disability six years ago. I was approved on my first submission. I was blessed by this occurrence. I applied after quitting my job when my short term disability expired. Fortunately, my employer had a long term disability program as well. Check and see what your employer offers. Read your new hire materials from Human Resources to see what your options are at work. Make sure your cover all your basis before you make a permanent decision regarding your

employment status. When I read your post I felt a special connection because December 22 is my birthday. Has been for the past 47 years now. After reading that and all the other things that are similar I felt like I had to respond to your questions and concerns. I think your tapering may have been to quick. Having an MRI a few months afterwards is not very beneficial. Perhaps a year after the treatment would have been more significant. The treatment should have lasted longer in my opinion, taking the oral Prednisone. I am still on Prednisone, 6 mg per day. I am also on Methotrexate injections once a week. I am hoping and praying that it is helping. My sarc is in my spinal cord and brain. All my cranial nerves are affected as well. So, that makes me a MAJOR BOBBLE HEAD! Please keep in touch. The website is very supportive with a lot of knowledgeable and compassionate members. I will be here to answer your questions if I can as well as the moderators and other members. Your new friend, BOBBLE HEAD Check out free AOL. Most comprehensive set of free safety and security tools, millions of free high-quality videos from across the web, free AOL Mail and much more. Want a degree but can't afford to quit? Top school degrees online - in as fast as 1 year

To My New Family

Love Lynne

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[Guest guest]

OH! It's otay! I was a bobble head or rock head before I contracted NS. My relatives and friends would always say how big my head was. So I am used to the big head teasings.

Smiles,

ron bobble headAOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

OH! It's otay! I was a bobble head or rock head before I contracted NS. My relatives and friends would always say how big my head was

Ron, my good hard headed friend-- we knew this about you-- and we still love you!

gnomelady************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.