Black stools-Blood in stool???

[Guest guest]

Darla,

Have they ever did a test to see if there was blood in her stool? Usually they just rub a little of the "poo" on a slide and have a chemical that can tell them right there if there is blood in the stool. Every GI office I have ever been to has these slides right on the counter, because they are used all the time. I would be surprised if you GI has not run this test. I am sure you can do this at your normal pediatrician if they have not done it. Literally it is a 5 second test.

Also, Grace had the exact same stools as you described for Zipporah. She also very commonly did have pussy BM's too. They never did figure out what caused it, but by the time she started eating other foods with her Neocate they slowly got better. Her GI did say some of it was due to the Neocate, as it can cause some funky BM's. If she is taking any sort of multivitamin with iron in it, or an actual iron supplement this can cause a harmless greenish or black stool.

I would make sure you do get ahold of your GI as soon as you can. It is probably nothing too serious, but you need to make sure. They should have told you, at least, that Neocate can cause some very interesting BM's. We were so relieved to end the "Neocate Poo" as it was called in our house. I guess it was worth it, in the end. It was the only thing she could handle.

Best wishes, try to stay calm until you can get answers from the GI.

[Guest guest]

I am quite worried after visiting with a doctor today concerning the

iron deficiency/restless leg syndrome. It caused me to research a little on

the topic of iron deficiency and I also have been quite frustrated with the

constant color and smell of Zipporrah's stools, so I was also researching

why stools turn greenish or black. From the research I discovered several

things. One, dark stools in a child who does NOT eat anything that will

turn the stools another color is an indication of internal bleeding,

especially stools with a very foul smell. Two, greenish stools in a child

who does not eat items that affect appearance indicate possible bile issues.

And, three, slowed passage of food through the bowels (another issue that

occurs with dumping syndrome which Zipporrah has) can cause them to be

greenish and also indicated probable malabsorption problems which in turn

can cause iron deficiency.

My questions are these...Has anyone had to deal with internal bleeding

causing black stools? What was done to diagnose the problem and stop the

bleeding? Why wouldn't the GI and other docs know this is a sign of

bleeding and be more proactive to find out what the problem is? The color

has been almost constant since she was a infant. How serious should I be

taking this if they seem not to be. (As a footnote, a long-time GI nurse I

spoke to about the issue a couple days ago said there has to be some type of

problem for her to be having black stools and that it should not be

overlooked as it could be serious.)

I plan to talk to the GI doc as soon as I see her on Sunday or Monday,

but am frustrated this hasn't been taken more seriously!

Darla: mommy to:

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy,SID, dev. delays, asthma, chronic vomiting

issues...

Zipporrah (10 mon. tomorrow) Mito, strokes, SID, GERD, 100 % G-tube fed,

asthma, trach issues, disautonomy, hypo & hypertonicity, migraines, possible

seizures, dumping syndrome...

[Guest guest]

Darla,

I forgot to say, whenever we suspected blood in her stool, her

doctor ususally got a stool sample to do a Hemocult(sp?) to find out

for sure. Her doctor told us always to check if we suspected blood.

In our daughters case, she had cirrhosis of the liver causing her

bleeding due to low platelets. She would get platelet transfusions,

red blood cells and fresh frozen plasma transfusions if these levels

were low enough. This usually always stopped her from bleeding

rectally. I guess treatment would depend on what's causing the

bleeding. Sometimes kids that are immobile get hemmorroids and are

constipated a lot and this could be the cause.

~Melody

> I am quite worried after visiting with a doctor today

concerning the

> iron deficiency/restless leg syndrome. It caused me to research a

little on

> the topic of iron deficiency and I also have been quite frustrated

with the

> constant color and smell of Zipporrah's stools, so I was also

researching

> why stools turn greenish or black. From the research I discovered

several

> things. One, dark stools in a child who does NOT eat anything

that will

> turn the stools another color is an indication of internal

bleeding,

> especially stools with a very foul smell. Two, greenish stools in

a child

> who does not eat items that affect appearance indicate possible

bile issues.

> And, three, slowed passage of food through the bowels (another

issue that

> occurs with dumping syndrome which Zipporrah has) can cause them

to be

> greenish and also indicated probable malabsorption problems which

in turn

> can cause iron deficiency.

> My questions are these...Has anyone had to deal with internal

bleeding

> causing black stools? What was done to diagnose the problem and

stop the

> bleeding? Why wouldn't the GI and other docs know this is a sign

of

> bleeding and be more proactive to find out what the problem is?

The color

> has been almost constant since she was a infant. How serious

should I be

> taking this if they seem not to be. (As a footnote, a long-time GI

nurse I

> spoke to about the issue a couple days ago said there has to be

some type of

> problem for her to be having black stools and that it should not

be

> overlooked as it could be serious.)

> I plan to talk to the GI doc as soon as I see her on Sunday

or Monday,

> but am frustrated this hasn't been taken more seriously!

>

>

>

> Darla: mommy to:

> Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-

tube,

> hypotonicity, disautonomy,SID, dev. delays, asthma, chronic

vomiting

> issues...

> Zipporrah (10 mon. tomorrow) Mito, strokes, SID, GERD, 100 % G-

tube fed,

> asthma, trach issues, disautonomy, hypo & hypertonicity,

migraines, possible

> seizures, dumping syndrome...

[Guest guest]

Darla,

I know she is fed only through the gtube, but has she tested for

any kind of food sensitivities? Allergies to food (milk, soy based

formulas too) can also cause malabsoprtion issues which can turn any

food, funky.

Just a thought, Dawn

[Guest guest]

Last year I had a chronic intestinal infection for quite some time,

and off and on I had black stools that tested positive for 'occult

blood' (meaning the bleeding happens higher up in the stomach or

small intestine, and is black by the time it hits the other end).

for me it ultimately turned out to be caused by the infection,

however long term causes im not to familiar with.

I would assume you guys have had stool samples tested in the past?

It would be worht it to ask specifically if it has ever been tested

for blood... its a very easy test, and will tell you quite quickly

if its indeed blood or something else.

(any type of iron supplimentation, or iron fortified foods/formulas

can cause black stools as well... if she is having absorption issues

and isnt absorbing extra iron this *may* be an explanation? Im

working on limited knowledge here... does she take any type of iron

suppliments/fortified foods or drinks?)

> I am quite worried after visiting with a doctor today

concerning the

> iron deficiency/restless leg syndrome. It caused me to research a

little on

> the topic of iron deficiency and I also have been quite frustrated

with the

> constant color and smell of Zipporrah's stools, so I was also

researching

> why stools turn greenish or black. From the research I discovered

several

> things. One, dark stools in a child who does NOT eat anything

that will

> turn the stools another color is an indication of internal

bleeding,

> especially stools with a very foul smell. Two, greenish stools in

a child

> who does not eat items that affect appearance indicate possible

bile issues.

> And, three, slowed passage of food through the bowels (another

issue that

> occurs with dumping syndrome which Zipporrah has) can cause them

to be

> greenish and also indicated probable malabsorption problems which

in turn

> can cause iron deficiency.

> My questions are these...Has anyone had to deal with internal

bleeding

> causing black stools? What was done to diagnose the problem and

stop the

> bleeding? Why wouldn't the GI and other docs know this is a sign

of

> bleeding and be more proactive to find out what the problem is?

The color

> has been almost constant since she was a infant. How serious

should I be

> taking this if they seem not to be. (As a footnote, a long-time GI

nurse I

> spoke to about the issue a couple days ago said there has to be

some type of

> problem for her to be having black stools and that it should not

be

> overlooked as it could be serious.)

> I plan to talk to the GI doc as soon as I see her on Sunday

or Monday,

> but am frustrated this hasn't been taken more seriously!

>

>

>

> Darla: mommy to:

> Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-

tube,

> hypotonicity, disautonomy,SID, dev. delays, asthma, chronic

vomiting

> issues...

> Zipporrah (10 mon. tomorrow) Mito, strokes, SID, GERD, 100 % G-

tube fed,

> asthma, trach issues, disautonomy, hypo & hypertonicity,

migraines, possible

> seizures, dumping syndrome...

[Guest guest]

sorry I wanted to clarify my last comment...

any type of iron suppliments or iron fortified foods or drinks very

often causes black stools, and it is NOT a sign of a problem if

thats the cause...

I just read that shes fed through a g-tube, do you use boost, or any

of those? alot of them have extra iron... may be all it is...

its best to make sure thats the source...

The biggest worry is something called Melena... its gooey, black,

tarry, VERY foul smelling, often mucousy stools... this is a sign

of serious bleeding and needs to be adressed quickly...

> > I am quite worried after visiting with a doctor today

> concerning the

> > iron deficiency/restless leg syndrome. It caused me to research

a

> little on

> > the topic of iron deficiency and I also have been quite

frustrated

> with the

> > constant color and smell of Zipporrah's stools, so I was also

> researching

> > why stools turn greenish or black. From the research I

discovered

> several

> > things. One, dark stools in a child who does NOT eat anything

> that will

> > turn the stools another color is an indication of internal

> bleeding,

> > especially stools with a very foul smell. Two, greenish stools

in

> a child

> > who does not eat items that affect appearance indicate possible

> bile issues.

> > And, three, slowed passage of food through the bowels (another

> issue that

> > occurs with dumping syndrome which Zipporrah has) can cause them

> to be

> > greenish and also indicated probable malabsorption problems

which

> in turn

> > can cause iron deficiency.

> > My questions are these...Has anyone had to deal with

internal

> bleeding

> > causing black stools? What was done to diagnose the problem and

> stop the

> > bleeding? Why wouldn't the GI and other docs know this is a

sign

> of

> > bleeding and be more proactive to find out what the problem is?

> The color

> > has been almost constant since she was a infant. How serious

> should I be

> > taking this if they seem not to be. (As a footnote, a long-time

GI

> nurse I

> > spoke to about the issue a couple days ago said there has to be

> some type of

> > problem for her to be having black stools and that it should not

> be

> > overlooked as it could be serious.)

> > I plan to talk to the GI doc as soon as I see her on Sunday

> or Monday,

> > but am frustrated this hasn't been taken more seriously!

> >

> >

> >

> > Darla: mommy to:

> > Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures,

G-

> tube,

> > hypotonicity, disautonomy,SID, dev. delays, asthma, chronic

> vomiting

> > issues...

> > Zipporrah (10 mon. tomorrow) Mito, strokes, SID, GERD, 100 % G-

> tube fed,

> > asthma, trach issues, disautonomy, hypo & hypertonicity,

> migraines, possible

> > seizures, dumping syndrome...

[Guest guest]

My son had dark stool diarrhea, and his GI DR. dismissed this. With in a month he started having fresh blood, his platelets dropped, and he became anemic. GI did a colonoscopy, he was diagnosed with ulcerative colitis. He also has malabsorption, and has been on pancreatic enzymes since 4yrs old. He's still very much underweight, but the enzymes stopped the chronic diarrhea when he was little. We still deal with dumping. Low carb diet helps keep that under control.

Lori

Black stools-Blood in stool???

I am quite worried after visiting with a doctor today concerning the iron deficiency/restless leg syndrome. It caused me to research a little on the topic of iron deficiency and I also have been quite frustrated with the constant color and smell of Zipporrah's stools, so I was also researching why stools turn greenish or black. From the research I discovered several things. One, dark stools in a child who does NOT eat anything that will turn the stools another color is an indication of internal bleeding, especially stools with a very foul smell. Two, greenish stools in a child who does not eat items that affect appearance indicate possible bile issues. And, three, slowed passage of food through the bowels (another issue that occurs with dumping syndrome which Zipporrah has) can cause them to be greenish and also indicated probable malabsorption problems which in turn can cause iron deficiency. My questions are these...Has anyone had to deal with internal bleeding causing black stools? What was done to diagnose the problem and stop the bleeding? Why wouldn't the GI and other docs know this is a sign of bleeding and be more proactive to find out what the problem is? The color has been almost constant since she was a infant. How serious should I be taking this if they seem not to be. (As a footnote, a long-time GI nurse I spoke to about the issue a couple days ago said there has to be some type of problem for her to be having black stools and that it should not be overlooked as it could be serious.) I plan to talk to the GI doc as soon as I see her on Sunday or Monday, but am frustrated this hasn't been taken more seriously!Darla: mommy to:Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy,SID, dev. delays, asthma, chronic vomiting issues...Zipporrah (10 mon. tomorrow) Mito, strokes, SID, GERD, 100 % G-tube fed, asthma, trach issues, disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping syndrome...Please contact mito-owner with any problems or questions.

[Guest guest]

Carsen has REALLY low iron ( via iron studies done at the hematologist office). He does have pancreatic insf./malabsorption. His iron has shown a slight improvement since starting enzyme therapy but hasn't gained any weight yet. We'll be upping his dose soon to see if this helps.

Krystena

Black stools-Blood in stool???

I am quite worried after visiting with a doctor today concerning the iron deficiency/restless leg syndrome. It caused me to research a little on the topic of iron deficiency and I also have been quite frustrated with the constant color and smell of Zipporrah's stools, so I was also researching why stools turn greenish or black. From the research I discovered several things. One, dark stools in a child who does NOT eat anything that will turn the stools another color is an indication of internal bleeding, especially stools with a very foul smell. Two, greenish stools in a child who does not eat items that affect appearance indicate possible bile issues. And, three, slowed passage of food through the bowels (another issue that occurs with dumping syndrome which Zipporrah has) can cause them to be greenish and also indicated probable malabsorption problems which in turn can cause iron deficiency. My questions are these...Has anyone had to deal with internal bleeding causing black stools? What was done to diagnose the problem and stop the bleeding? Why wouldn't the GI and other docs know this is a sign of bleeding and be more proactive to find out what the problem is? The color has been almost constant since she was a infant. How serious should I be taking this if they seem not to be. (As a footnote, a long-time GI nurse I spoke to about the issue a couple days ago said there has to be some type of problem for her to be having black stools and that it should not be overlooked as it could be serious.) I plan to talk to the GI doc as soon as I see her on Sunday or Monday, but am frustrated this hasn't been taken more seriously!Darla: mommy to:Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy,SID, dev. delays, asthma, chronic vomiting issues...Zipporrah (10 mon. tomorrow) Mito, strokes, SID, GERD, 100 % G-tube fed, asthma, trach issues, disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping syndrome...Please contact mito-owner with any problems or questions.

[Guest guest]

She does not presently take any iron suppliments and I am not sure if

Neocate contains iron or not. She used to get it in her different formulas

but has been on Neocate since about 6 months of age. She is 10 months old

now so if there isn't added iron it has been a while since she would have

gotten any.

Darla: mommy to:

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy,SID, dev. delays, asthma

Zipporrah 10 mon.) Mito, strokes, SID, G-tube, asthma, trach issues,

disautonomy, hypo & hypertonicity, migraines

>

>Reply-To: Mito

>To: Mito

>Subject: Re: Black stools-Blood in stool???

>Date: Sat, 21 Aug 2004 00:19:47 -0000

>

>Last year I had a chronic intestinal infection for quite some time,

>and off and on I had black stools that tested positive for 'occult

>blood' (meaning the bleeding happens higher up in the stomach or

>small intestine, and is black by the time it hits the other end).

>for me it ultimately turned out to be caused by the infection,

>however long term causes im not to familiar with.

>I would assume you guys have had stool samples tested in the past?

>It would be worht it to ask specifically if it has ever been tested

>for blood... its a very easy test, and will tell you quite quickly

>if its indeed blood or something else.

>(any type of iron supplimentation, or iron fortified foods/formulas

>can cause black stools as well... if she is having absorption issues

>and isnt absorbing extra iron this *may* be an explanation? Im

>working on limited knowledge here... does she take any type of iron

>suppliments/fortified foods or drinks?)

>

>

>

>

> > I am quite worried after visiting with a doctor today

>concerning the

> > iron deficiency/restless leg syndrome. It caused me to research a

>little on

> > the topic of iron deficiency and I also have been quite frustrated

>with the

> > constant color and smell of Zipporrah's stools, so I was also

>researching

> > why stools turn greenish or black. From the research I discovered

>several

> > things. One, dark stools in a child who does NOT eat anything

>that will

> > turn the stools another color is an indication of internal

>bleeding,

> > especially stools with a very foul smell. Two, greenish stools in

>a child

> > who does not eat items that affect appearance indicate possible

>bile issues.

> > And, three, slowed passage of food through the bowels (another

>issue that

> > occurs with dumping syndrome which Zipporrah has) can cause them

>to be

> > greenish and also indicated probable malabsorption problems which

>in turn

> > can cause iron deficiency.

> > My questions are these...Has anyone had to deal with internal

>bleeding

> > causing black stools? What was done to diagnose the problem and

>stop the

> > bleeding? Why wouldn't the GI and other docs know this is a sign

>of

> > bleeding and be more proactive to find out what the problem is?

>The color

> > has been almost constant since she was a infant. How serious

>should I be

> > taking this if they seem not to be. (As a footnote, a long-time GI

>nurse I

> > spoke to about the issue a couple days ago said there has to be

>some type of

> > problem for her to be having black stools and that it should not

>be

> > overlooked as it could be serious.)

> > I plan to talk to the GI doc as soon as I see her on Sunday

>or Monday,

> > but am frustrated this hasn't been taken more seriously!

> >

> >

> >

> > Darla: mommy to:

> > Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-

>tube,

> > hypotonicity, disautonomy,SID, dev. delays, asthma, chronic

>vomiting

> > issues...

> > Zipporrah (10 mon. tomorrow) Mito, strokes, SID, GERD, 100 % G-

>tube fed,

> > asthma, trach issues, disautonomy, hypo & hypertonicity,

>migraines, possible

> > seizures, dumping syndrome...

>

>

>

>

>Please contact mito-owner with any problems or questions.

>

[Guest guest]

>The biggest worry is something called Melena... its gooey, black,

>tarry, VERY foul smelling, often mucousy stools... this is a sign

>of serious bleeding and needs to be adressed quickly...

That is why I am so concerned!!! This is exactly how it often looks

and smells. The smell is so intense that her clothes even after being

washed still smell like the BM. I can't explain the smell it is so strong.

But she has been dealing with this colored, smelling BM's for several months

now. It has gotten worse since her G-tube/nissen at 6 months of age, but

even before then she had this issue. I am getting anxious for answers and

for it to be taken seriously.

Darla

>

>

>

>

>

> > > I am quite worried after visiting with a doctor today

> > concerning the

> > > iron deficiency/restless leg syndrome. It caused me to research

>a

> > little on

> > > the topic of iron deficiency and I also have been quite

>frustrated

> > with the

> > > constant color and smell of Zipporrah's stools, so I was also

> > researching

> > > why stools turn greenish or black. From the research I

>discovered

> > several

> > > things. One, dark stools in a child who does NOT eat anything

> > that will

> > > turn the stools another color is an indication of internal

> > bleeding,

> > > especially stools with a very foul smell. Two, greenish stools

>in

> > a child

> > > who does not eat items that affect appearance indicate possible

> > bile issues.

> > > And, three, slowed passage of food through the bowels (another

> > issue that

> > > occurs with dumping syndrome which Zipporrah has) can cause them

> > to be

> > > greenish and also indicated probable malabsorption problems

>which

> > in turn

> > > can cause iron deficiency.

> > > My questions are these...Has anyone had to deal with

>internal

> > bleeding

> > > causing black stools? What was done to diagnose the problem and

> > stop the

> > > bleeding? Why wouldn't the GI and other docs know this is a

>sign

> > of

> > > bleeding and be more proactive to find out what the problem is?

> > The color

> > > has been almost constant since she was a infant. How serious

> > should I be

> > > taking this if they seem not to be. (As a footnote, a long-time

>GI

> > nurse I

> > > spoke to about the issue a couple days ago said there has to be

> > some type of

> > > problem for her to be having black stools and that it should not

> > be

> > > overlooked as it could be serious.)

> > > I plan to talk to the GI doc as soon as I see her on Sunday

> > or Monday,

> > > but am frustrated this hasn't been taken more seriously!

> > >

> > >

> > >

> > > Darla: mommy to:

> > > Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures,

>G-

> > tube,

> > > hypotonicity, disautonomy,SID, dev. delays, asthma, chronic

> > vomiting

> > > issues...

> > > Zipporrah (10 mon. tomorrow) Mito, strokes, SID, GERD, 100 % G-

> > tube fed,

> > > asthma, trach issues, disautonomy, hypo & hypertonicity,

> > migraines, possible

> > > seizures, dumping syndrome...

>

>

>

>

>Please contact mito-owner with any problems or questions.

>

[Guest guest]

The stools should be tested for sure. It is an easy process, and is really fast!!! Abby has also had black stools. Hers are caused by the mtio cocktail. When her stools turned black they tested three in a row to ensure there wasn't blood in them. Then they cultured them to make sure nothing awful was happenig. In her case it is just a side note of the mito cocktail. I hope it is something as simple for you.

Hoping for the best. MystDarla Klein wrote:

I am quite worried after visiting with a doctor today concerning the iron deficiency/restless leg syndrome. It caused me to research a little on the topic of iron deficiency and I also have been quite frustrated with the constant color and smell of Zipporrah's stools, so I was also researching why stools turn greenish or black. From the research I discovered several things. One, dark stools in a child who does NOT eat anything that will turn the stools another color is an indication of internal bleeding, especially stools with a very foul smell. Two, greenish stools in a child who does not eat items that affect appearance indicate possible bile issues. And, three, slowed passage of food through the bowels (another issue that occurs with dumping syndrome which Zipporrah has) can cause

them to be greenish and also indicated probable malabsorption problems which in turn can cause iron deficiency. My questions are these...Has anyone had to deal with internal bleeding causing black stools? What was done to diagnose the problem and stop the bleeding? Why wouldn't the GI and other docs know this is a sign of bleeding and be more proactive to find out what the problem is? The color has been almost constant since she was a infant. How serious should I be taking this if they seem not to be. (As a footnote, a long-time GI nurse I spoke to about the issue a couple days ago said there has to be some type of problem for her to be having black stools and that it should not be overlooked as it could be serious.) I plan to talk to the GI doc as soon as I see her on Sunday or Monday, but am frustrated this hasn't been taken more

seriously!Darla: mommy to:Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy,SID, dev. delays, asthma, chronic vomiting issues...Zipporrah (10 mon. tomorrow) Mito, strokes, SID, GERD, 100 % G-tube fed, asthma, trach issues, disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping syndrome...Please contact mito-owner with any problems or questions. __________________________________________________

[Guest guest]

-Hi Darla

When you see the GI doc, maybe you could get a BIG STACK of hemoccult

cards and do one for every stool for the next few weeks. Then bring

them back to have every poop tested.

's had on-and-off heme positive stools her whole life. She's

had many possible sources (esophagitis, gastritis, granulation tissue

from the g tube tract, colitis, etc.) and it's never been totally

cleared up. As far as the iron, gets IV iron when her

numbers get too low. She didn't absorb enteral iron and she didn't

have a fantastic response to the IV iron but her numbers are a whole

lot better. Beats having transfusions! Have the girls had iron

studies done or just blood counts? The iron studies can be really

bad without the blood count being too scary. But, then there are no

reserves in case of illness and that's when you run into trouble.

's bloody poop is usually coffee grounds. It's lots of black

dots in a greenish liquid poop. When she's had actual bleeds it's

looked remarkably like meconium. gets maroon poops with C

diff and she also gets coffee grounds and bile from her g tube. What

a rainbow.

Is Zipporrah on anything for reflux? Protonix has worked really well

for us, especially IV. It would be very interesting if reflux meds

changed the color of her poop and got rid of the black poops.

I hope you can get some answers. It's really hard to watch little

signs that something's wrong and being told it's fine until something

big happens. Then, instead of saying " I told you so " we have to act

like the doctor figured it out on his own... How is your pedi doing

with handling such complicated kids with so many specialists?

Hang in there

Heidi, 's Mom

-- In Mito , " Darla Klein " wrote:

>

>

>

> >The biggest worry is something called Melena... its gooey, black,

> >tarry, VERY foul smelling, often mucousy stools... this is a sign

> >of serious bleeding and needs to be adressed quickly...

>

> That is why I am so concerned!!! This is exactly how it often

looks

> and smells. The smell is so intense that her clothes even after

being

> washed still smell like the BM. I can't explain the smell it is so

strong.

> But she has been dealing with this colored, smelling BM's for

several months

> now. It has gotten worse since her G-tube/nissen at 6 months of

age, but

> even before then she had this issue. I am getting anxious for

answers and

> for it to be taken seriously.

>

>

[Guest guest]

Hi Ann:

Have you ever removed all foods & drinks containing milk protein (casein)?

What intolerance doctors sometimes link to lactose, is actually an inability

to break down the milk protein- as it is hard to digest

Cindy-GA

All his tests proved negative. He was on Similac until 6 months ago. He still has black stools ocassionally and green diapers are very frequent (a sign he may be getting sick). He cannot have straight milk, so he drinks 100 % lactose free, vitamin D milk.

Ann