I feel like all I do is whine

[Guest guest]

For the past several days my upper back, between my shoulder blades

has been hurting, to the point that taking a breath even hurts. I

don't know whats causing it, I figure its the sarc. My parents are

wonderful, they try to make things as easy for me as possible, but I

feel like all I do anymore is whine about this ache or pain. I've

started taking magnisium because I remember reading a post that said

it helps with some of the pains. I can't take calcium because I

produce way too much on my own. If anyone has any other suggestions

please let me know. Also I'm not sure how much magnisium I should

take, I got the 250mg tablets.

Thanks for letting me whine. I know I'm not the only one in pain and I

know that between all of us we might make each other suffer just a bit

less.

Kimber

[Guest guest]

Kimber, don't worry about whining, that's why we are here. Have you tried massage, warm packs or cold packs for the back pain? Do you have any shortness of breath or cough with it? It's probably musculoskeletal pain (a nice catch-all term for anything to do with muscles & joints), but another possibility is ____________ I can't think of the name, but it's inflammation around the lung sacs. Every time you take a breath it causes excruciating pain.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: I feel like all I do is whineDate: Tue, 27 Feb 2007 07:27:45 -0000

For the past several days my upper back, between my shoulder blades has been hurting, to the point that taking a breath even hurts. I don't know whats causing it, I figure its the sarc. My parents are wonderful, they try to make things as easy for me as possible, but I feel like all I do anymore is whine about this ache or pain. I've started taking magnisium because I remember reading a post that said it helps with some of the pains. I can't take calcium because I produce way too much on my own. If anyone has any other suggestions please let me know. Also I'm not sure how much magnisium I should take, I got the 250mg tablets.Thanks for letting me whine. I know I'm not the only one in pain and I know that between all of us we might make each other suffer just a bit less.Kimber

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[Guest guest]

but I

feel like all I do anymore is whine about this ache or pain. I've

started taking magnisium because I remember reading a post that said

it helps with some of the pains. I can't take calcium because I

produce way too much on my own. If anyone has any other suggestions

please let me know. Also I'm not sure how much magnisium I should

take, I got the 250mg tablets.

Calcium requires magnesium in order to be assimilated into the blood stream and muscles/ligaments. Do be careful tho- straight magnesium will give you the runs. Remember "Milk of Magnesia"-- it worked well on us as kids.

Manganese is mineral that really has shown promise, and I know that there are several articles that refer to it for muslce and joint pain.

I'll be interested to see if the Magnesium does help, if you are able to process the calcium better-- it could be a real benefit.

I have to go to my son's room to use his computer as I'm getting run out of here-- stationary bike use, and the weight bench is in my computer room-- so it's nuts in here--

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[Guest guest]

I

feel like all I do anymore is whine about this ache or pain. I've

started taking magnisium because I remember reading a post that said

it helps with some of the pains.

Kim,

When you get too much magnesium in your system, you'll end up with the runs. It is great for constipation.

Manganese is also a trace mineral that we need to build bone and cartlidge repair. This is one element that I'm just starting to learn about- so I"m not comfortable giving out advice on this one-- but I would talk to a pharmacist or a Health Store homeopathic doc--

I know that if your lymphnodes in your chest and the medial stinum area between the ribcage-- gets inflammed, and many times with pulm sarc that is a very susceptible area-- you will feel it between the shoulder blades.

Kim I know you don't have health insurance, do you qualify for your States MediCaid program. This would at least get some of the testing done, and if you're having that pain between the shoulder blades, they may very well confirm your sarc with a chest xray, ct's and a bronchoscopy where getting the biopsy is a simple procedure.

If you are serious about looking at alternative ways to handle your sarc--I'd be checking out the Health Food STores and finding one that has highly trained Naturpaths or Homeopaths to help you.

As far as the whining goes, we've all been there. When it seems as though the pain and uncertainity of living with chronic illness is all we have going on with our body and mind-- it's hard to not find yourself whining.

I've done quite a few posts on the Five Stages of Grieving-- and I highly recommend you check the ARCHIVES.

What you are going thru is normal, and it's ok. I see you looking for answers, and willing to try anything that may be out there. Just be careful and listen to that inner voice-- if it doesn't feel right-- don't jump into it.

In the meantime, be kind to yourself, and share your concerns iwht your parents. If they know you are aware of feeling like you're whining, and lost in yourself-- they sound like they'd be willing to hold you while you go thru this. Let them. And let them know that even if they can't fix you, their love is most important.

Blessings,

Tracie

NS Co-owner/moderator

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[Guest guest]

Hi Kimber and group, I feel the same way about whining because something seems to always be hurting or acting up. I have the hurting pain in my back. I think it is the sarcoids because it just comes for no reason and so far the only thing that has helped is to increase prednisone. I do have problems with cramping in my feet when tapering down from medicine. Is there anything that anyone knows might help. Shauna in atl

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[Guest guest]

Shauna, several years ago when I first started systemic symptoms, one

weird symptom was muscle cramping. I had cramps where I didn't even

know I had muscles! I couldn't wipe my ____ without getting cramps

in my hand, arm, back. Someone at work told me that her father had

taken quinine for cramps. My neuro prescribed it for me & I've taken

it ever since. I've stopped a couple of times when I ran out, but

within a week or two the cramps would start back up. You can't take

it with some of the drugs used to treat sarc because they are

related. For me it's worked great, without any side effects, and

it's cheap!

>

> Hi Kimber and group,

>

> I feel the same way about whining because something seems to

always be hurting or acting up. I have the hurting pain in my back.

I think it is the sarcoids because it just comes for no reason and so

far the only thing that has helped is to increase prednisone.

>

> I do have problems with cramping in my feet when tapering down

from medicine. Is there anything that anyone knows might help.

>

> Shauna in atl

>

>

> ---------------------------------

> Finding fabulous fares is fun.

> Let Yahoo! FareChase search your favorite travel sites to find

flight and hotel bargains.

>

[Guest guest]

Hello,

I have terrible cramps in my muscles as well. Unfortunately i cannot

take quinine because of a blood disease i previously have had.

Apparently stretching exercises before bed is good. Does anyone know

if the cramps are part of the sarcoidosis or the drugs? I am on

methotrexate at the moment but have had the cramps when i haven't

been on any meds.

.

> >

> > Hi Kimber and group,

> >

> > I feel the same way about whining because something seems to

> always be hurting or acting up. I have the hurting pain in my

back.

> I think it is the sarcoids because it just comes for no reason and

so

> far the only thing that has helped is to increase prednisone.

> >

> > I do have problems with cramping in my feet when tapering down

> from medicine. Is there anything that anyone knows might help.

> >

> > Shauna in atl

> >

> >

> > ---------------------------------

> > Finding fabulous fares is fun.

> > Let Yahoo! FareChase search your favorite travel sites to find

> flight and hotel bargains.

> >

>

[Guest guest]

Well I started taking the magnisium and its only been a few days,

but my back pain and body aches have seem to have eased up. I don't

know if thats whats done it or not, but at this stage of the game

I'm not going to stop taking it.

I have applied for state medicaid and am waiting for them to go

through there process. I just got some release of info forms to sign

for them. We also have Oregon Health Sciences University in

Portland and I was doing some research about them online and they

offer financial assistance for those who need care and can't afford

it, so I am looking into that also. If they can help me I think that

would be my best bet for treatment, since they are a med school and

are more into research than just a regular hospital or dr.

Thanks so much for all the replies and for all the support.

>

> In a message dated 2/27/2007 7:01:54 AM Pacific Standard Time,

> kimber31_1963@... writes:

>

> > I

> > feel like all I do anymore is whine about this ache or pain.

I've

> > started taking magnisium because I remember reading a post that

said

> > it helps with some of the pains.

>

> Kim,

> When you get too much magnesium in your system, you'll end up with

the runs.

> It is great for constipation.

> Manganese is also a trace mineral that we need to build bone and

cartlidge

> repair. This is one element that I'm just starting to learn about-

so I " m not

> comfortable giving out advice on this one-- but I would talk to a

pharmacist or

> a Health Store homeopathic doc--

> I know that if your lymphnodes in your chest and the medial stinum

area

> between the ribcage-- gets inflammed, and many times with pulm

sarc that is a very

> susceptible area-- you will feel it between the shoulder blades.

> Kim I know you don't have health insurance, do you qualify for

your States

> MediCaid program. This would at least get some of the testing

done, and if

> you're having that pain between the shoulder blades, they may very

well confirm

> your sarc with a chest xray, ct's and a bronchoscopy where getting

the biopsy is

> a simple procedure.

> If you are serious about looking at alternative ways to handle

your sarc--I'd

> be checking out the Health Food STores and finding one that has

highly

> trained Naturpaths or Homeopaths to help you.

>

> As far as the whining goes, we've all been there. When it seems

as though

> the pain and uncertainity of living with chronic illness is all we

have going on

> with our body and mind-- it's hard to not find yourself whining.

> I've done quite a few posts on the Five Stages of Grieving-- and I

highly

> recommend you check the ARCHIVES.

> What you are going thru is normal, and it's ok. I see you looking

for

> answers, and willing to try anything that may be out there. Just

be careful and

> listen to that inner voice-- if it doesn't feel right-- don't jump

into it.

> In the meantime, be kind to yourself, and share your concerns iwht

your

> parents. If they know you are aware of feeling like you're

whining, and lost in

> yourself-- they sound like they'd be willing to hold you while you

go thru this.

> Let them. And let them know that even if they can't fix you,

their love is

> most important.

>

> Blessings,

> Tracie

> NS Co-owner/moderator

>

>

>

> **************************************

> AOL now offers free email to everyone.

> Find out more about what's free from AOL at http://www.aol.com.

>