Guest guest Posted February 27, 2007 Report Share Posted February 27, 2007 , that sounds wonderful! Enjoy it for me too. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: One disease is not enough?Date: Tue, 27 Feb 2007 09:10:00 -0800 (PST) , I am glad that you are keeping a good outlook 'despite' the news you've been given. When I first got into my last bad flare, it seemed like it was dominoes... falling one right after another. Even my doc said I was having one bad year that year and he gave me a hug. I would suggest some (very) gentle stretching and heat for your back. But if it hurts to stretch...even just a little...stop. There is a fine line with sarc. You need to do abit of stretching or walking, if you can, but overdoing exercise can put you back into agony. Speaking of Spring...I am leaving within the hour to go see The Domes in Milwaukee.(WI) It's an exhibit of flowers. There are three of them...one, arid(desert plants)...one, rain-forest, and one just full of all the regular flowers. The flowers in that exhibit are changed three or four times a year. They even have a butterfly exhibit where one of the domes also has loads of them and they land all over you. My husband took the day off and we're taking my wheelchair so I don't overdo it. Take care and hugs S.wendy_cidp <wendy_cidp (AT) yahoo (DOT) ca> wrote: Recently spoke to my other neurologist, the one in NYC. He said that Inot only have indications of sarcoidosis, but still also show symptomsof CIDP (chronic inflammatory demyelinating polyneuropathy). Myinternist explained today that sometimes these diseases do not have anice clean defining set of symptoms, there may be crossover to similardiseases. She gave Lupus as an example. And I thought just having oneor the other was bad enough, but two? At any rate I am being treatedand besides cranky ankles and feet, seem to be making progress - atleast lately. Funny how cautious I have become about being optimistic.One of weird things about this is that they need to do some sort ofbiopsy to find a definitive diagnosis, yet they don't dare because thetests could trigger more problems or cause complications because ofthe medications I am on. Sometimes it feels like I am caught in somestrange pinball game, bouncing from point to point, not able to find adirection. I feel emotionally bruised from all the bouncing. Know whatI mean? In spite of it all I don't feel depressed. I am lookingforward to spring. Working in the yard. Seeing birds and butterflies.Planning a butterfly garden this year. Thanks for "listening" - Never Miss an EmailStay connected with Yahoo! Mail on your mobile. Get started! Find what you need at prices you’ll love. Compare products and save at MSN® Shopping. Quote Link to comment Share on other sites More sharing options...
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