Pseudo obstruction..I hope......

[Guest guest]

Back from Mayo...No GI consult for Cole. LP's were a terrible

experience for the boys. I do not know what they used to sedate them

but my kids are a complete mess---they did fine with the general for

the MRI---but this is not a happy house. Lots of abnormal

eyemovements, fingers twisting, tongues protruding and they are pale

and their dark circles are darker.....and

The night we returned Zack jumped off the couch and said " help me " he

began screaming, clutching his abdomen and could not walk. 50

minutes of this and I was about to call 911 when it resolved. 3

similar episodes the next day--all resolved spontaneously. Neuro

symptoms were fairy prominent during the episodes. Extremites were

mottled. I called the neuro at Mayo. The nurse called back and said

it is pain related (to the LP)--give them motrin (which someone else

said not to give them---and we never give it but I did). Today I had

to carry him all day because he was hunched over and whining, shows

me his belly hurts under his rib cage. It escaleted this evening--

came home and took him to the ER---they are there now. This is

not a headache or a bachache.

Does this sound like a pseudo-obstruction? He had pooped at least

twice every day (he does usually poop more than that). This BM's

were very mushy as usual (his are usually mushy as opposed to his

brother who always has diarrhea). His belly is very hard, but he is

still taking in fluid and food.

has not called me and I am beside myself.

Anyone else have problems with sedation for procedures (it was not

general and it was Mayo---I presume they now how to sedate a mito

patient).

Thanks,

Kris

[Guest guest]

Thats really scary, I hope you get some good news soon!

s been sedated twice, and has had an LP, and has never had

any sort of reaction like that... I really hope its nothing

serious!

Keely

> Back from Mayo...No GI consult for Cole. LP's were a terrible

> experience for the boys. I do not know what they used to sedate

them

> but my kids are a complete mess---they did fine with the general

for

> the MRI---but this is not a happy house. Lots of abnormal

> eyemovements, fingers twisting, tongues protruding and they are

pale

> and their dark circles are darker.....and

>

> The night we returned Zack jumped off the couch and said " help me "

he

> began screaming, clutching his abdomen and could not walk. 50

> minutes of this and I was about to call 911 when it resolved. 3

> similar episodes the next day--all resolved spontaneously. Neuro

> symptoms were fairy prominent during the episodes. Extremites

were

> mottled. I called the neuro at Mayo. The nurse called back and

said

> it is pain related (to the LP)--give them motrin (which someone

else

> said not to give them---and we never give it but I did). Today I

had

> to carry him all day because he was hunched over and whining,

shows

> me his belly hurts under his rib cage. It escaleted this evening--

> came home and took him to the ER---they are there now. This

is

> not a headache or a bachache.

>

> Does this sound like a pseudo-obstruction? He had pooped at least

> twice every day (he does usually poop more than that). This BM's

> were very mushy as usual (his are usually mushy as opposed to his

> brother who always has diarrhea). His belly is very hard, but he

is

> still taking in fluid and food.

>

> has not called me and I am beside myself.

>

> Anyone else have problems with sedation for procedures (it was not

> general and it was Mayo---I presume they now how to sedate a mito

> patient).

>

> Thanks,

>

> Kris

[Guest guest]

I am sorry I missed you here at Mayo. It has been kind of crazy around

here. I hope you get some answers for your son and that all will be ok

soon. Keep us posted.

Darla: mommy to:

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy,SID, dev. delays, asthma

Zipporrah (10 mon.) Mito, strokes, SID, G-tube, asthma, trach issues,

disautonomy, hypo & hypertonicity, migraines

>

>Reply-To: Mito

>To: Mito

>Subject: Pseudo obstruction..I hope......

>Date: Sat, 21 Aug 2004 03:00:19 -0000

>

>Back from Mayo...No GI consult for Cole. LP's were a terrible

>experience for the boys. I do not know what they used to sedate them

>but my kids are a complete mess---they did fine with the general for

>the MRI---but this is not a happy house. Lots of abnormal

>eyemovements, fingers twisting, tongues protruding and they are pale

>and their dark circles are darker.....and

>

>The night we returned Zack jumped off the couch and said " help me " he

>began screaming, clutching his abdomen and could not walk. 50

>minutes of this and I was about to call 911 when it resolved. 3

>similar episodes the next day--all resolved spontaneously. Neuro

>symptoms were fairy prominent during the episodes. Extremites were

>mottled. I called the neuro at Mayo. The nurse called back and said

>it is pain related (to the LP)--give them motrin (which someone else

>said not to give them---and we never give it but I did). Today I had

>to carry him all day because he was hunched over and whining, shows

>me his belly hurts under his rib cage. It escaleted this evening--

> came home and took him to the ER---they are there now. This is

>not a headache or a bachache.

>

>Does this sound like a pseudo-obstruction? He had pooped at least

>twice every day (he does usually poop more than that). This BM's

>were very mushy as usual (his are usually mushy as opposed to his

>brother who always has diarrhea). His belly is very hard, but he is

>still taking in fluid and food.

>

> has not called me and I am beside myself.

>

>Anyone else have problems with sedation for procedures (it was not

>general and it was Mayo---I presume they now how to sedate a mito

>patient).

>

>Thanks,

>

>Kris

>

>

>

>

>Please contact mito-owner with any problems or questions.

>