Guest guest Posted January 2, 2010 Report Share Posted January 2, 2010 Hi Everyone, My alternative doctor recently suggested that I take some cordycep tablets to give support to my adrenal gland. I only have one adrenal gland due to the other one being removed in 1994 because it had a tumor in it. Cordyceps sinensis extracts from all-natural mushrooms. I've tried to find some information about this being SCD legal or not but cannot find anything. Does anyone know if this is a legal product that I could take on the SCD diet? I have lyme disease and many of the herbs and supplements I need to take have stuff in it that are not legal. It's hard to find some of the things I need to take because of the ingredients in them. Hope to hear from someone who knows about this soon. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 Hey , My LLMD wanted me to take cordyceps too for the Lyme and Co. Why don't you post the name of the product with it's ingredients and a link. I have done some research on this subject. Sadly, we cannot know for sure the process in which they dehydrate the mushrooms and most of the supplements in this area contain some kind of binder like a starch. Jodi > > Hi Everyone, > > My alternative doctor recently suggested that I take some cordycep tablets to give support to my adrenal gland. I only have one adrenal gland due to the other one being removed in 1994 because it had a tumor in it. > > Cordyceps sinensis extracts from all-natural mushrooms. I've tried to find some information about this being SCD legal or not but cannot find anything. Does anyone know if this is a legal product that I could take on the SCD diet? > > I have lyme disease and many of the herbs and supplements I need to take have stuff in it that are not legal. It's hard to find some of the things I need to take because of the ingredients in them. > > Hope to hear from someone who knows about this soon. > > Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 Hi Jodi, Sorry to hear you too have Lyme. How long have you had it and how long have you been treating it? What protocol are you using? Are you getting better? I can't take abx anymore and am looking for a herbal protocol to go on. So far I'm not too impressed with what I'm finding with the herbal protocols but am leaning towards going with the Condensed Cowden protocol. Have you heard of that? Anyway, thanks for offering to help me know if this product I'm supposed to take is SCD compliant. It's called Adrenal Essence and it's made by Xymogen. Here's a list of the ingredients: Adrenal Essence™ * Vitamin B6 (as pyridoxine hydrochloride) 25 mg, 1250% * Pantothenic Acid (as d-calcium pantothenate) 50mg, 750% * Cordyceps Sinensis (standardized 8% cordycepic acid and 0.25% adenosine) 400mg, ** * Panax Ginseng (standardized 27-30% ginsenosides) 200mg, ** * Rhodiola rosea (standardized 1% salidroside) 100mg, ** *PABA 25 mg , ** Let me know it you think it's compliant or not. Thanks much and Happy New Year! P.S. Fell free to email me if you want to share more details about the Lyme protocol. Thanks! > > > > Hi Everyone, > > > > My alternative doctor recently suggested that I take some cordycep tablets to give support to my adrenal gland. I only have one adrenal gland due to the other one being removed in 1994 because it had a tumor in it. > > > > Cordyceps sinensis extracts from all-natural mushrooms. I've tried to find some information about this being SCD legal or not but cannot find anything. Does anyone know if this is a legal product that I could take on the SCD diet? > > > > I have lyme disease and many of the herbs and supplements I need to take have stuff in it that are not legal. It's hard to find some of the things I need to take because of the ingredients in them. > > > > Hope to hear from someone who knows about this soon. > > > > Thanks! > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2010 Report Share Posted January 4, 2010 Hi , > Sorry to hear you too have Lyme. How long have you had it and how long have you been treating it? What protocol are you using? Are you getting better? The suspicion between my three Lyme docs is that I have had Lyme and it's coinfections for about 15 years. Probably how I first started getting REALLY sick. I am totally better. I used the Bradford Protocol along with Klighardt's methodologies, homeopathics, frequency and resonance medicine as well as mind/body work. I consider the diet to be the foundation as to why I responded so beautifully to the alternative care. I do not poison myself via diet anymore which opened me up to healing on new levels. Which is nice seeing that connect. I am supremely grateful towards myself and all of my very very hard work! What I deal with now is tackling high mercury and lead levels (heavy metal toxicity, Candida overgrowth and Lyme and Co go hand in' hand.. if one neglects to treat the metal overload one can relapse with the Lyme. This can explain my systemic Candida issue as it feeds off the metals. But I find if I don't touch -MY- candida trigger foods I am totally fine!) I am getting a FIR sauna and am doing the slow route for chelation along with fresh diluted juicing. I also have to take care of Sleep Apnea. But with feeling better I have been painting and drawing again so I have less time with the whole health thing.. which makes me grateful. It's all a process. But I cannot express what a different life I am living today.. > I can't take abx anymore and am looking for a herbal protocol to go on. So far I'm not too impressed with what I'm finding with the herbal protocols but am leaning towards going with the Condensed Cowden protocol. Have you heard of that? Yes, I have heard of it. Someone from another list is doing it for herself and her son. Apparently, it brings Lyme to the surface to treat in an easier fashion. Also, makes testing easier like IGENEX. Cowden usually gives the protocol before testing to coax the bacteria. Have you had a CD57 test? I cannot take long term ABX as well as I get C Diff and usually end up hospitalized. It is a nightmare. It took a lot of research for me to find the right combo for Lyme and Co treatment. I am not very good with supplements and I don't break it down well. Makes the Crohn's go on fire. Have you checked out Zeolites at all? > Anyway, thanks for offering to help me know if this product I'm supposed to take is SCD compliant. It's called Adrenal Essence and it's made by Xymogen. Here's a list of the ingredients: > > Adrenal Essence™ > > * Vitamin B6 (as pyridoxine hydrochloride) 25 mg, 1250% > * Pantothenic Acid (as d-calcium pantothenate) 50mg, 750% > * Cordyceps Sinensis (standardized 8% cordycepic acid and 0.25% adenosine) 400mg, ** > * Panax Ginseng (standardized 27-30% ginsenosides) 200mg, ** > * Rhodiola rosea (standardized 1% salidroside) 100mg, ** > *PABA 25 mg , ** > > Let me know it you think it's compliant or not. Well, it has roots in it which makes it illegal. Also, we do not know how they are processing the mushrooms themselves. The fillers in general seem ok. In general next time also type up the fillers in the capsules (that's usually where they put all the garbage illegals in anyway) and provide a link.. that way many of us can help you find out if it's legal or not. > Thanks much and Happy New Year! Likewise. > P.S. Fell free to email me if you want to share more details about the Lyme protocol. Thanks! If you have any more questions email me at jodah235@... Jodi. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2010 Report Share Posted January 4, 2010 forgot to re-ask doc K today Jodi - but 3 times I had 1 of 3 bands for lyme - no syptoms right now - unless you count yeast - but how many bands did you have - and IF I have to treat it -I will be in touch - you know SO much!!! thanks eileen 2 years scd 1/8/10 > > Hi , > > > > > Sorry to hear you too have Lyme. How long have you had it and how long have you been treating it? What protocol are you using? Are you getting better? > > > > The suspicion between my three Lyme docs is that I have had Lyme and it's coinfections for about 15 years. Probably how I first started getting REALLY sick. > > I am totally better. I used the Bradford Protocol along with Klighardt's methodologies, homeopathics, frequency and resonance medicine as well as mind/body work. I consider the diet to be the foundation as to why I responded so beautifully to the alternative care. I do not poison myself via diet anymore which opened me up to healing on new levels. Which is nice seeing that connect. I am supremely grateful towards myself and all of my very very hard work! > > What I deal with now is tackling high mercury and lead levels (heavy metal toxicity, Candida overgrowth and Lyme and Co go hand in' hand.. if one neglects to treat the metal overload one can relapse with the Lyme. This can explain my systemic Candida issue as it feeds off the metals. But I find if I don't touch -MY- candida trigger foods I am totally fine!) I am getting a FIR sauna and am doing the slow route for chelation along with fresh diluted juicing. > I also have to take care of Sleep Apnea. > > But with feeling better I have been painting and drawing again so I have less time with the whole health thing.. which makes me grateful. > > It's all a process. But I cannot express what a different life I am living today.. > > > > > I can't take abx anymore and am looking for a herbal protocol to go on. So far I'm not too impressed with what I'm finding with the herbal protocols but am leaning towards going with the Condensed Cowden protocol. Have you heard of that? > > > Yes, I have heard of it. Someone from another list is doing it for herself and her son. Apparently, it brings Lyme to the surface to treat in an easier fashion. Also, makes testing easier like IGENEX. Cowden usually gives the protocol before testing to coax the bacteria. Have you had a CD57 test? > > I cannot take long term ABX as well as I get C Diff and usually end up hospitalized. It is a nightmare. It took a lot of research for me to find the right combo for Lyme and Co treatment. I am not very good with supplements and I don't break it down well. Makes the Crohn's go on fire. > > Have you checked out Zeolites at all? > > > > > Anyway, thanks for offering to help me know if this product I'm supposed to take is SCD compliant. It's called Adrenal Essence and it's made by Xymogen. Here's a list of the ingredients: > > > > Adrenal Essence™ > > > > * Vitamin B6 (as pyridoxine hydrochloride) 25 mg, 1250% > > * Pantothenic Acid (as d-calcium pantothenate) 50mg, 750% > > * Cordyceps Sinensis (standardized 8% cordycepic acid and 0.25% adenosine) 400mg, ** > > * Panax Ginseng (standardized 27-30% ginsenosides) 200mg, ** > > * Rhodiola rosea (standardized 1% salidroside) 100mg, ** > > *PABA 25 mg , ** > > > > Let me know it you think it's compliant or not. > > > > Well, it has roots in it which makes it illegal. > Also, we do not know how they are processing the mushrooms themselves. > The fillers in general seem ok. > > In general next time also type up the fillers in the capsules (that's usually where they put all the garbage illegals in anyway) and provide a link.. that way many of us can help you find out if it's legal or not. > > > > > Thanks much and Happy New Year! > > > Likewise. > > > > > P.S. Fell free to email me if you want to share more details about the Lyme protocol. Thanks! > > > If you have any more questions email me at jodah235@... > > Jodi. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2010 Report Share Posted January 4, 2010 Thanks for getting back with me regarding the information about cordyceps. Disappointing to find out it's illegal on the SCD. Need to think about what I'm going to do now. I have been told that zeolites should come later on once I get into the herbal treatment. I've read on the lyme forum of people having bad experiences with it from not taking it at the right time in their treatment program. Seems there's a right time to take it according to the different herbal protocols and apparently you can't start too early. That's just what I've read, but I really know very little about it. Never heard of the Bradford protocol but very familiar with Klighardt's methodologies. Would like to have ART done but we don't have anyone here in OK that practices that related to lyme disease. I'd have to fly to another state to get that treatment. I looked at the Bradford protocol that you mentioned but it's way over my head. Curious to learn more about it though. So glad that you got totally better with your protocols and diet. That's really wonderful that you've been able to overcome this terrible disease. I've definitely changed my diet and have totally eliminated sweets, carbs and pretty much stick to the SCD plan. My gut is still a mess and the GI doctor still can't figure it out. I am very frustrated and discouraged about the lack of progress I'm making with my stomach issues. No, I haven't had the CD57 test yet. I'm thinking of seeing an infectious disease doctor here and have him run some tests on me to see what they can find. I know these doctors don't believe in chronic lyme. I plan to just go in and take the approach that I may have lyme but maybe it's something else. Hopefully by doing this they'll do a whole battery of tests on me and I can find out what co-infections I have so that I can get the right herbs to treat it. Sad that so many doctors don't understand this disease, including infectious disease doctors of all people. Well, enough rambling on this subject. Thanks again for getting back to me regarding the cordyceps. So many of the supplements I need to take are filled with illegal substances but sometimes I have no choice but to take them. I want to get over this disease so badly. It's really got me down physically, emotionally and mentally. Not sure how much more I can take of it. Take care and thanks again. > > Hi , > > > > > Sorry to hear you too have Lyme. How long have you had it and how long have you been treating it? What protocol are you using? Are you getting better? > > > > The suspicion between my three Lyme docs is that I have had Lyme and it's coinfections for about 15 years. Probably how I first started getting REALLY sick. > > I am totally better. I used the Bradford Protocol along with Klighardt's methodologies, homeopathics, frequency and resonance medicine as well as mind/body work. I consider the diet to be the foundation as to why I responded so beautifully to the alternative care. I do not poison myself via diet anymore which opened me up to healing on new levels. Which is nice seeing that connect. I am supremely grateful towards myself and all of my very very hard work! > > What I deal with now is tackling high mercury and lead levels (heavy metal toxicity, Candida overgrowth and Lyme and Co go hand in' hand.. if one neglects to treat the metal overload one can relapse with the Lyme. This can explain my systemic Candida issue as it feeds off the metals. But I find if I don't touch -MY- candida trigger foods I am totally fine!) I am getting a FIR sauna and am doing the slow route for chelation along with fresh diluted juicing. > I also have to take care of Sleep Apnea. > > But with feeling better I have been painting and drawing again so I have less time with the whole health thing.. which makes me grateful. > > It's all a process. But I cannot express what a different life I am living today.. > > > > > I can't take abx anymore and am looking for a herbal protocol to go on. So far I'm not too impressed with what I'm finding with the herbal protocols but am leaning towards going with the Condensed Cowden protocol. Have you heard of that? > > > Yes, I have heard of it. Someone from another list is doing it for herself and her son. Apparently, it brings Lyme to the surface to treat in an easier fashion. Also, makes testing easier like IGENEX. Cowden usually gives the protocol before testing to coax the bacteria. Have you had a CD57 test? > > I cannot take long term ABX as well as I get C Diff and usually end up hospitalized. It is a nightmare. It took a lot of research for me to find the right combo for Lyme and Co treatment. I am not very good with supplements and I don't break it down well. Makes the Crohn's go on fire. > > Have you checked out Zeolites at all? > > > > > Anyway, thanks for offering to help me know if this product I'm supposed to take is SCD compliant. It's called Adrenal Essence and it's made by Xymogen. Here's a list of the ingredients: > > > > Adrenal Essence™ > > > > * Vitamin B6 (as pyridoxine hydrochloride) 25 mg, 1250% > > * Pantothenic Acid (as d-calcium pantothenate) 50mg, 750% > > * Cordyceps Sinensis (standardized 8% cordycepic acid and 0.25% adenosine) 400mg, ** > > * Panax Ginseng (standardized 27-30% ginsenosides) 200mg, ** > > * Rhodiola rosea (standardized 1% salidroside) 100mg, ** > > *PABA 25 mg , ** > > > > Let me know it you think it's compliant or not. > > > > Well, it has roots in it which makes it illegal. > Also, we do not know how they are processing the mushrooms themselves. > The fillers in general seem ok. > > In general next time also type up the fillers in the capsules (that's usually where they put all the garbage illegals in anyway) and provide a link.. that way many of us can help you find out if it's legal or not. > > > > > Thanks much and Happy New Year! > > > Likewise. > > > > > P.S. Fell free to email me if you want to share more details about the Lyme protocol. Thanks! > > > If you have any more questions email me at jodah235@... > > Jodi. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2010 Report Share Posted January 4, 2010 At 09:42 PM 1/4/2010, you wrote: So many of the supplements I need to take are filled with illegal substances but sometimes I have no choice but to take them. , What your situation will call for then, is being absolutely, utterly, totally and completely fanatical about every other part of your adherence to SCD. I have a supplement which cannot be compounded and which is definitely illegal. I use it to control muscle spasm in my back from a back injury back in 1982. My alternative is codeine and a muscle relaxant, which leaves me groggy and disordiented for days at a stretch, and then, just about the time the junk wears off, I have to take another dose. My illegal supplement controls the muscle spasm almost completely, with no drowsiness. I discussed the supplement with Elaine, because I really, really, really wanted to do SCD correctly -- I wanted to get WELL! She said that she felt that as long as I was fanatical about everything else, I should be able to take my supplement (about 10 grams once a day). She did warn me that it would take longer to see results because of the ingestion of illegals on a regular basis. Elaine was right -- it HAS taken me longer to heal, and I do have to be extra fanatical. But I am healing. So long as you recognize that if you are using illegals, SCD can't be as effective as without the illegals, you have to do what you have to do. Lyme is nothing to play around with. Then again, neither is IBD! So you must balance your treatments for each of those. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2010 Report Share Posted January 5, 2010 Hi , > Thanks for getting back with me regarding the information about cordyceps. Disappointing to find out it's illegal on the SCD. Need to think about what I'm going to do now. Well, you need to weigh the pro's and con's for yourself. I did not take it. What kind of bowel issue or diagnosis do you have? > I have been told that zeolites should come later on once I get into the herbal treatment. I've read on the lyme forum of people having bad experiences with it from not taking it at the right time in their treatment program. Seems there's a right time to take it according to the different herbal protocols and apparently you can't start too early. That's just what I've read, but I really know very little about it. It all really depends on your personal individual situation. One thing you must learn is there is no one size all fits policy with Lyme or the SCD or health in general. How long have you had Lyme? What Co-infections? What were your results after antibiotic treatment (did the test results change?) How is your CD57 test? Did you use IGENEX and Stonybrook? Both got Western Blots? Have you had extensive stool testing with a provocation and a rectal swab? Have you had Lyme and Co testing with a provocation? Heavy metal testing? The list goes on and on. Some people such as myself cannot follow one specific herbal protocol. Trust me, it gets challenging. So Lyme + Rigidity + SCD don't make a good mix. Do your research and see what works for you. > Never heard of the Bradford protocol but very familiar with Klighardt's methodologies. Would like to have ART done but we don't have anyone here in OK that practices that related to lyme disease. I'd have to fly to another state to get that treatment. I looked at the Bradford protocol that you mentioned but it's way over my head. Curious to learn more about it though. Dr Bradford (which Klinghardt uses as well) developed a 3 part IV that needs to be administered every 7 days. It sorta acts like bleach in the body and jolts immune system. I will email you off list about the recipe. I had Herx'ing hell. I also had Neural therapy (along organ meridians) done with this as well as IM injections. The doc I went to does a specific amount of detoxing before the IV (so he uses no benadryl) it is more expensive this way but is highly effective. > So glad that you got totally better with your protocols and diet. That's really wonderful that you've been able to overcome this terrible disease. I've definitely changed my diet and have totally eliminated sweets, carbs and pretty much stick to the SCD plan. My gut is still a mess and the GI doctor still can't figure it out. I am very frustrated and discouraged about the lack of progress I'm making with my stomach issues. I know, that must be super frustrating for you. All I can tell you is what I did.. and that is I was %110 fanatical for over 2 whole straight years.. Only recently I go out and even had a road trip. If my plate has an illegal on it I can just move it to the side and be fine. It's way superfly!! I also do mind/body work which really helps. > No, I haven't had the CD57 test yet. I'm thinking of seeing an infectious disease doctor here and have him run some tests on me to see what they can find. I know these doctors don't believe in chronic lyme. I plan to just go in and take the approach that I may have lyme but maybe it's something else. Hopefully by doing this they'll do a whole battery of tests on me and I can find out what co-infections I have so that I can get the right herbs to treat it. Sad that so many doctors don't understand this disease, including infectious disease doctors of all people. Those docs are useless but if you're doing it to test many things besides Lyme and Co go for it. If you want to dive more into the Lyme and Co subject though you need to find a LLMD. Do the IGENEX test with a provocation and Western Blot. Also, although dated get a CD57 test. Test your Adrenals, Thyroid and now I am learning you should get a sleep study. I wish I would of done this sooner. Seems to me good sleep helps the body fight. Also do stool testing with a provocation, Urine Dysbiosis test and a rectal swab. Can you find an LLMD in your area via ACAM.org? Would you work with one in a different state over the phone that would write you scripts for testing? FedEX and DHL rock! > Well, enough rambling on this subject. Thanks again for getting back to me regarding the cordyceps. So many of the supplements I need to take are filled with illegal substances but sometimes I have no choice but to take them. I want to get over this disease so badly. It's really got me down physically, emotionally and mentally. Not sure how much more I can take of it. Seems to me- a good way around this is to meditate your intention into your supplements.. You can pray if that works better for you... You do what you gotta do! Feel free to email me anytime.. It's possible. I am sheer proof of this. Sounds cheesy.. ehh like almost feeling lactose intolerance coming up.. LOL. but yeah.. I dug myself out of the catacombs of Crohn's, Lyme and so many other names. Mind/Body work is an important key. Jodi Quote Link to comment Share on other sites More sharing options...
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