Re: flowers & butterflies...to Rose from S.

[Guest guest]

Mc Rosie, I went...though I had a rough time of it. I enjoyed the desert dome best with all the cacti, etc. But I was in my wheelchair which my husband doesn't have the knack of pushing yet.(...it's a transport chair.) I have felt increasingly sick since then. I think it's just a coincidence cuz I felt abit sick before I left, too. My chest is so sore and painful. We've had another snowstorm and every time we have one I feel worse. It's not in the lungs...more like around it and the whole chest area. Last year I got the same thing. So I'll give it another day or two and if it's not better I'll go to the doc again. Last year they just gave me the same pain pills that they gave me for my arm pain when it acts up so maybe I'll take one of those and see if I feel better. February and March are my depression months and I just thickly wade

through them hoping for the sunshine this side of April. ...good thoughts and prayers for me are welcome. hugs S.Rose wrote: , that sounds wonderful! Enjoy it for me too. Ramblin' Rose Moderator From: Solberg <mary_s777 (AT) yahoo (DOT) com>Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: One disease is not enough?Date: Tue, 27 Feb 2007 09:10:00 -0800 (PST) , I am glad that you are keeping a good outlook 'despite' the news you've been given. When I first got into my last bad flare, it seemed like it was dominoes... falling one right after another. Even my doc said I was having one bad year that year and he gave me a hug. I would suggest some

(very) gentle stretching and heat for your back. But if it hurts to stretch...even just a little...stop. There is a fine line with sarc. You need to do abit of stretching or walking, if you can, but overdoing exercise can put you back into agony. Speaking of Spring...I am leaving within the hour to go see The Domes in Milwaukee.(WI) It's an exhibit of flowers. There are three of them...one, arid(desert plants)...one, rain-forest, and one just full of all the regular flowers. The flowers in that exhibit are changed three or four times a year. They even have a butterfly exhibit where one of the domes also has loads of them and they land all over you. My husband took the day off and we're taking my wheelchair so I don't overdo it. Take care and hugs S.wendy_cidp <wendy_cidp (AT) yahoo (DOT) ca> wrote: Recently spoke to my other neurologist, the one in NYC. He said that Inot only have indications of sarcoidosis, but still also show symptomsof CIDP (chronic inflammatory demyelinating polyneuropathy). Myinternist explained today that sometimes these diseases do not have anice clean defining set of symptoms, there may be crossover to similardiseases. She gave Lupus as an example. And I thought just having oneor the other was bad enough, but two? At any rate I am being treatedand besides cranky ankles and feet, seem to be making progress - atleast lately. Funny how cautious I have become about being optimistic.One of weird things about this is that they need to do some sort ofbiopsy to find a definitive diagnosis, yet they don't dare because thetests could trigger more problems or cause complications because ofthe medications I am on. Sometimes it feels like I am caught in

somestrange pinball game, bouncing from point to point, not able to find adirection. I feel emotionally bruised from all the bouncing. Know whatI mean? In spite of it all I don't feel depressed. I am lookingforward to spring. Working in the yard. Seeing birds and butterflies.Planning a butterfly garden this year. Thanks for "listening" - Never Miss an EmailStay connected with Yahoo! Mail on your mobile. Get started! Find what you need at prices you’ll love. Compare products and save at MSN® Shopping.

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[Guest guest]

, I'm sorry you're feeling "poorly." I love the desert. I spent about half of my childhood living in Tucson, Arizona. The town wasn't developed a lot, like Phoenix, and we had lots of desert areas right in town. If I were ever going to retire somewhere warm, it would be Tucson. I was last there 4 years ago, and it was still much more natural than Phoenix. As a kid, we went barefoot all the time & our little feet just toughened up so that we could walk through the desert, even on the hottest days, and walk right on stickers. We were poor, but I didn't realize it. I guess this was before welfare & food stamps. My mom was an expert at stretching food. Oh, well, those were the days, my friend, we thought they'd never end . . . . .

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: flowers & butterflies...to Rose from S.Date: Sat, 3 Mar 2007 17:27:28 -0800 (PST)

Mc Rosie, I went...though I had a rough time of it. I enjoyed the desert dome best with all the cacti, etc. But I was in my wheelchair which my husband doesn't have the knack of pushing yet.(...it's a transport chair.) I have felt increasingly sick since then. I think it's just a coincidence cuz I felt abit sick before I left, too. My chest is so sore and painful. We've had another snowstorm and every time we have one I feel worse. It's not in the lungs...more like around it and the whole chest area. Last year I got the same thing. So I'll give it another day or two and if it's not better I'll go to the doc again. Last year they just gave me the same pain pills that they gave me for my arm pain when it acts up so maybe I'll take one of those and see if I feel better. February and March are my depression months and I just thickly wade through them hoping for the sunshine this side of April. ...good thoughts and prayers for me are welcome. hugs S.Rose <mamadogrose (AT) hotmail (DOT) com> wrote:

, that sounds wonderful! Enjoy it for me too.

Ramblin' Rose

Moderator

From: Solberg <mary_s777 (AT) yahoo (DOT) com>Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: One disease is not enough?Date: Tue, 27 Feb 2007 09:10:00 -0800 (PST)

, I am glad that you are keeping a good outlook 'despite' the news you've been given. When I first got into my last bad flare, it seemed like it was dominoes... falling one right after another. Even my doc said I was having one bad year that year and he gave me a hug. I would suggest some (very) gentle stretching and heat for your back. But if it hurts to stretch...even just a little...stop. There is a fine line with sarc. You need to do abit of stretching or walking, if you can, but overdoing exercise can put you back into agony. Speaking of Spring...I am leaving within the hour to go see The Domes in Milwaukee.(WI) It's an exhibit of flowers. There are three of them...one, arid(desert plants)...one, rain-forest, and one just full of all the regular flowers. The flowers in that exhibit are changed three or four times a year. They even have a butterfly exhibit where one of the domes also has loads of them and they land all over you. My husband took the day off and we're taking my wheelchair so I don't overdo it. Take care and hugs S.wendy_cidp <wendy_cidp (AT) yahoo (DOT) ca> wrote:

Recently spoke to my other neurologist, the one in NYC. He said that Inot only have indications of sarcoidosis, but still also show symptomsof CIDP (chronic inflammatory demyelinating polyneuropathy). Myinternist explained today that sometimes these diseases do not have anice clean defining set of symptoms, there may be crossover to similardiseases. She gave Lupus as an example. And I thought just having oneor the other was bad enough, but two? At any rate I am being treatedand besides cranky ankles and feet, seem to be making progress - atleast lately. Funny how cautious I have become about being optimistic.One of weird things about this is that they need to do some sort ofbiopsy to find a definitive diagnosis, yet they don't dare because thetests could trigger more problems or cause complications because ofthe medications I am on. Sometimes it feels like I am caught in somestrange pinball game, bouncing from point to point, not able to find adirection. I feel emotionally bruised from all the bouncing. Know whatI mean? In spite of it all I don't feel depressed. I am lookingforward to spring. Working in the yard. Seeing birds and butterflies.Planning a butterfly garden this year. Thanks for "listening" -

Never Miss an EmailStay connected with Yahoo! Mail on your mobile. Get started!

Find what you need at prices you’ll love. Compare products and save at MSN® Shopping.

Don't pick lemons.See all the new 2007 cars at Yahoo! Autos.

Win a Zune™—make MSN® your homepage for your chance to win!

[Guest guest]

Rose, that sounded great...and warm! gee I used to sing that song all the time....."we'd sing and dance forever and a day. We'd live the life we choose, we'd fight and never lose, for we were young and sure to have our way, LA la la la....etc." I grew up poor, too, cuz my dad was on disability and we ate a lot of garden foods and cow meat. I didn't really know we were poor til I went to friend's houses. keep warm and hugs S.Rose wrote: , I'm sorry you're feeling "poorly." I love the desert. I spent about half of my childhood living in Tucson, Arizona. The town wasn't developed a lot, like Phoenix, and we had lots of desert areas right in town. If I were ever going to retire somewhere warm, it would be Tucson. I was last there 4 years ago, and it was still much more natural than Phoenix. As a kid, we went barefoot all the time & our little feet just toughened up so that we could walk through the desert, even on the hottest days, and walk right on stickers. We were poor, but I didn't realize it. I guess this was before welfare & food stamps. My mom was an expert at stretching food. Oh, well, those were the days, my friend, we thought they'd never end . . . . . Ramblin' Rose Moderator From: Solberg <mary_s777 (AT) yahoo (DOT) com>Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: flowers & butterflies...to Rose from S.Date: Sat, 3 Mar 2007 17:27:28 -0800 (PST) Mc Rosie, I went...though I had a rough time of it. I

enjoyed the desert dome best with all the cacti, etc. But I was in my wheelchair which my husband doesn't have the knack of pushing yet.(...it's a transport chair.) I have felt increasingly sick since then. I think it's just a coincidence cuz I felt abit sick before I left, too. My chest is so sore and painful. We've had another snowstorm and every time we have one I feel worse. It's not in the lungs...more like around it and the whole chest area. Last year I got the same thing. So I'll give it another day or two and if it's not better I'll go to the doc again. Last year they just gave me the same pain pills that they gave me for my arm pain when it acts up so maybe I'll take one of those and see if I feel better. February and March are my depression months and I just thickly wade through them hoping for the sunshine this side of April. ...good thoughts and prayers for me are welcome.

hugs S.Rose <mamadogrose (AT) hotmail (DOT) com> wrote: , that sounds wonderful! Enjoy it for me too. Ramblin' Rose Moderator From: Solberg <mary_s777 (AT) yahoo (DOT) com>Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: One

disease is not enough?Date: Tue, 27 Feb 2007 09:10:00 -0800 (PST) , I am glad that you are keeping a good outlook 'despite' the news you've been given. When I first got into my last bad flare, it seemed like it was dominoes... falling one right after another. Even my doc said I was having one bad year that year and he gave me a hug. I would suggest some (very) gentle stretching and heat for your back. But if it hurts to stretch...even just a little...stop. There is a fine line with sarc. You need to do abit of stretching or walking, if you can, but overdoing exercise can put you back into agony. Speaking of Spring...I am leaving within the hour to go see The Domes in Milwaukee.(WI) It's an exhibit of flowers. There are three of them...one, arid(desert plants)...one,

rain-forest, and one just full of all the regular flowers. The flowers in that exhibit are changed three or four times a year. They even have a butterfly exhibit where one of the domes also has loads of them and they land all over you. My husband took the day off and we're taking my wheelchair so I don't overdo it. Take care and hugs S.wendy_cidp <wendy_cidp (AT) yahoo (DOT) ca> wrote: Recently spoke to my other neurologist, the one in NYC. He said that Inot only have indications of sarcoidosis, but still also show symptomsof CIDP (chronic inflammatory demyelinating polyneuropathy). Myinternist explained today that sometimes these diseases do not have anice clean defining set of symptoms, there may be crossover to similardiseases. She gave Lupus as an example. And I thought just

having oneor the other was bad enough, but two? At any rate I am being treatedand besides cranky ankles and feet, seem to be making progress - atleast lately. Funny how cautious I have become about being optimistic.One of weird things about this is that they need to do some sort ofbiopsy to find a definitive diagnosis, yet they don't dare because thetests could trigger more problems or cause complications because ofthe medications I am on. Sometimes it feels like I am caught in somestrange pinball game, bouncing from point to point, not able to find adirection. I feel emotionally bruised from all the bouncing. Know whatI mean? In spite of it all I don't feel depressed. I am lookingforward to spring. Working in the yard. Seeing birds and butterflies.Planning a butterfly garden this year. Thanks for "listening" - Never Miss an EmailStay connected with

Yahoo! Mail on your mobile. Get started! Find what you need at prices you’ll love. Compare products and save at MSN® Shopping. Don't pick lemons.See all the new 2007 cars at Yahoo! Autos. Win a Zune™—make MSN®

your homepage for your chance to win!

Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Yahoo! Autos' Green Center.

[Guest guest]

HI I

am praying for you. Marla

Marla

Bramer

" Faith

sees the invisible, believes the incredible and receives the impossible "

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Solberg

Sent: Saturday, March 03, 2007

6:27 PM

To: Neurosarcoidosis

Subject: Re:

flowers & butterflies...to Rose from S.

Mc Rosie, I

went...though I had a rough time of it. I enjoyed the desert dome best

with all the cacti, etc. But I was in my wheelchair which my husband

doesn't have the knack of pushing yet.(...it's a transport chair.) I have

felt increasingly sick since then. I think it's just a coincidence cuz I

felt abit sick before I left, too. My chest is so sore and painful. We've

had another snowstorm and every time we have one I feel worse. It's

not in the lungs...more like around it and the whole chest area.

Last year I got the same thing. So I'll give it another day or two and if

it's not better I'll go to the doc again. Last year they just gave me the

same pain pills that they gave me for my arm pain when it acts up so maybe I'll

take one of those and see if I feel better. February and March are my

depression months and I just thickly wade through them hoping for the sunshine

this side of April. ...good thoughts and prayers for me are

welcome. hugs S.

Rose

<mamadogrose (AT) hotmail (DOT) com> wrote:

, that sounds wonderful! Enjoy it for me too.

Ramblin' Rose

Moderator

From: Solberg <mary_s777 (AT) yahoo (DOT) com>

Reply-To: Neurosarcoidosis

To: Neurosarcoidosis

Subject: Re: One disease

is not enough?

Date: Tue, 27 Feb 2007 09:10:00 -0800 (PST)

,

I am glad that you are keeping a good outlook 'despite' the news you've been

given. When I first got into my last bad flare, it seemed like it

was dominoes... falling one right after another. Even my doc said I was having

one bad year that year and he gave me a hug. I would suggest some (very)

gentle stretching and heat for your back. But if it hurts to stretch...even

just a little...stop. There is a fine line with sarc. You need to

do abit of stretching or walking, if you can, but overdoing exercise can put

you back into agony. Speaking of Spring...I am leaving within the hour to

go see The Domes in Milwaukee.(WI) It's an exhibit of flowers.

There are three of them...one, arid(desert plants)...one, rain-forest, and one

just full of all the regular flowers. The flowers in that exhibit are

changed three or four times a year. They even have a butterfly exhibit

where one of the domes also has loads of them and they land all over

you. My husband took the day off and we're taking my wheelchair so

I don't overdo it. Take care and hugs S.

wendy_cidp

<wendy_cidp (AT) yahoo (DOT) ca> wrote:

Recently spoke to my other

neurologist, the one in NYC. He said that I

not only have indications of sarcoidosis, but still also show symptoms

of CIDP (chronic inflammatory demyelinating polyneuropathy). My

internist explained today that sometimes these diseases do not have a

nice clean defining set of symptoms, there may be crossover to similar

diseases. She gave Lupus as an example. And I thought just having one

or the other was bad enough, but two? At any rate I am being treated

and besides cranky ankles and feet, seem to be making progress - at

least lately. Funny how cautious I have become about being optimistic.

One of weird things about this is that they need to do some sort of

biopsy to find a definitive diagnosis, yet they don't dare because the

tests could trigger more problems or cause complications because of

the medications I am on. Sometimes it feels like I am caught in some

strange pinball game, bouncing from point to point, not able to find a

direction. I feel emotionally bruised from all the bouncing. Know what

I mean? In spite of it all I don't feel depressed. I am looking

forward to spring. Working in the yard. Seeing birds and butterflies.

Planning a butterfly garden this year. Thanks for " listening " -

Never Miss an Email

Stay connected with Yahoo! Mail on your mobile. Get

started!

Find

what you need at prices you’ll love. Compare products and save at MSN®

Shopping.

Don't pick lemons.

See all the new

2007 cars at Yahoo!

Autos.

[Guest guest]

, the problem with that song is that now I always picture Archie & Edith bunker singing it!

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: flowers & butterflies...to Rose from S.Date: Sat, 3 Mar 2007 21:44:16 -0800 (PST)

Rose, that sounded great...and warm! gee I used to sing that song all the time....."we'd sing and dance forever and a day. We'd live the life we choose, we'd fight and never lose, for we were young and sure to have our way, LA la la la....etc." I grew up poor, too, cuz my dad was on disability and we ate a lot of garden foods and cow meat. I didn't really know we were poor til I went to friend's houses. keep warm and hugs S.Rose <mamadogrose (AT) hotmail (DOT) com> wrote:

, I'm sorry you're feeling "poorly." I love the desert. I spent about half of my childhood living in Tucson, Arizona. The town wasn't developed a lot, like Phoenix, and we had lots of desert areas right in town. If I were ever going to retire somewhere warm, it would be Tucson. I was last there 4 years ago, and it was still much more natural than Phoenix. As a kid, we went barefoot all the time & our little feet just toughened up so that we could walk through the desert, even on the hottest days, and walk right on stickers. We were poor, but I didn't realize it. I guess this was before welfare & food stamps. My mom was an expert at stretching food. Oh, well, those were the days, my friend, we thought they'd never end . . . . .

Ramblin' Rose

Moderator

From: Solberg <mary_s777 (AT) yahoo (DOT) com>Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: flowers & butterflies...to Rose from S.Date: Sat, 3 Mar 2007 17:27:28 -0800 (PST)

Mc Rosie, I went...though I had a rough time of it. I enjoyed the desert dome best with all the cacti, etc. But I was in my wheelchair which my husband doesn't have the knack of pushing yet.(...it's a transport chair.) I have felt increasingly sick since then. I think it's just a coincidence cuz I felt abit sick before I left, too. My chest is so sore and painful. We've had another snowstorm and every time we have one I feel worse. It's not in the lungs...more like around it and the whole chest area. Last year I got the same thing. So I'll give it another day or two and if it's not better I'll go to the doc again. Last year they just gave me the same pain pills that they gave me for my arm pain when it acts up so maybe I'll take one of those and see if I feel better. February and March are my depression months and I just thickly wade through them hoping for the sunshine this side of April. ...good thoughts and prayers for me are welcome. hugs S.Rose <mamadogrose (AT) hotmail (DOT) com> wrote:

, that sounds wonderful! Enjoy it for me too.

Ramblin' Rose

Moderator

From: Solberg <mary_s777 (AT) yahoo (DOT) com>Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: One disease is not enough?Date: Tue, 27 Feb 2007 09:10:00 -0800 (PST)

, I am glad that you are keeping a good outlook 'despite' the news you've been given. When I first got into my last bad flare, it seemed like it was dominoes... falling one right after another. Even my doc said I was having one bad year that year and he gave me a hug. I would suggest some (very) gentle stretching and heat for your back. But if it hurts to stretch...even just a little...stop. There is a fine line with sarc. You need to do abit of stretching or walking, if you can, but overdoing exercise can put you back into agony. Speaking of Spring...I am leaving within the hour to go see The Domes in Milwaukee.(WI) It's an exhibit of flowers. There are three of them...one, arid(desert plants)...one, rain-forest, and one just full of all the regular flowers. The flowers in that exhibit are changed three or four times a year. They even have a butterfly exhibit where one of the domes also has loads of them and they land all over you. My husband took the day off and we're taking my wheelchair so I don't overdo it. Take care and hugs S.wendy_cidp <wendy_cidp (AT) yahoo (DOT) ca> wrote:

Recently spoke to my other neurologist, the one in NYC. He said that Inot only have indications of sarcoidosis, but still also show symptomsof CIDP (chronic inflammatory demyelinating polyneuropathy). Myinternist explained today that sometimes these diseases do not have anice clean defining set of symptoms, there may be crossover to similardiseases. She gave Lupus as an example. And I thought just having oneor the other was bad enough, but two? At any rate I am being treatedand besides cranky ankles and feet, seem to be making progress - atleast lately. Funny how cautious I have become about being optimistic.One of weird things about this is that they need to do some sort ofbiopsy to find a definitive diagnosis, yet they don't dare because thetests could trigger more problems or cause complications because ofthe medications I am on. Sometimes it feels like I am caught in somestrange pinball game, bouncing from point to point, not able to find adirection. I feel emotionally bruised from all the bouncing. Know whatI mean? In spite of it all I don't feel depressed. I am lookingforward to spring. Working in the yard. Seeing birds and butterflies.Planning a butterfly garden this year. Thanks for "listening" -

Never Miss an EmailStay connected with Yahoo! Mail on your mobile. Get started!

Find what you need at prices you’ll love. Compare products and save at MSN® Shopping.

Don't pick lemons.See all the new 2007 cars at Yahoo! Autos.

Win a Zune™—make MSN® your homepage for your chance to win!

Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Yahoo! Autos' Green Center.

Win a Zune™—make MSN® your homepage for your chance to win!