sick and tired . . .

[Guest guest]

sometimes we need to get on the jeans and get out of the house-- even if it's just to the mailbox. Tracie, so we have to get dressed just to get the mail? I usually go out in my pj's & slippers. Of course, that's how I lost a slipper in the snow drift! Hey, that's my good thing to report--as the snow began melting, one of my dogs found my slipper & brought it to the back door! Doesn't that brighten your day?

Ramblin' Rose

Moderator Don’t miss your chance to WIN 10 hours of private jet travel from Microsoft® Office Live

[Guest guest]

so we have to get dressed just to get the mail?

Rose, just put on the icebra--on your head of course, and prance that little arse right on out the door.

Hmm, aren't you the one with the leopard skin undies? Or was that Ron?************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

Hmm, aren't you the one with the leopard skin undies? Or was that Ron?I take the Fifth.

Ramblin' Rose

Moderator

From: tiodaat@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: sick and tired . . .Date: Tue, 6 Mar 2007 19:16:57 EST

In a message dated 3/6/07 12:06:51 AM Pacific Standard Time, mamadogrose (AT) hotmail (DOT) com writes:

so we have to get dressed just to get the mail? Rose, just put on the icebra--on your head of course, and prance that little arse right on out the door. Hmm, aren't you the one with the leopard skin undies? Or was that Ron?**************************************AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

Find a local pizza place, movie theater, and more….then map the best route!

[Guest guest]

LOL,.....yesterday the scrapbook lady came with my order and I was in my nightgown. Today a friend came to visit at 2 pm-ish and I had kept my nightgown on. Neither one even mentioned it cuz they know me well enough. My chest has been hurtin nightmareish-style. When I am in alot of pain I get bad dreams. real doozies.... In one of the last ones I was fighting off demons and one of the others I and some others were fightin off this big spiderish/octopusy thing...which by the way...some other big thing ate. lol Glad I woke up around then...yeah. Today I took my regular 2 Tramadol every 5 hours then my narcotic pill then later 6 msm capsules. I just took 2 acetaminaphen. (sp?) The doc said I could take them with the Tramadol. I am not going anywhere.... I am having trouble thinking straight through all the pain. I think the msm or

acet. is kicking in and I'm going to lay down again. Rose, I hope you have extra slippers on hand...lol. Watched Stranger Than Fiction dvd with Will Ferrel and I can say the I have fallen in love with Harold Crick. ...btw... Netflix is the best $26 I spend every month. hugs and wear socks(with your slippers) the next time you run outside...lol hugs S.Rose wrote: sometimes we need to get on the jeans and get out of the house-- even if it's just to the mailbox. Tracie, so we have to get dressed just to get the mail? I usually go out in my pj's & slippers. Of course, that's how I lost a slipper in the snow drift! Hey, that's my good thing to report--as the snow began melting, one of my dogs found my slipper & brought it to the back door! Doesn't that brighten your day? Ramblin' Rose Moderator Don’t miss your chance to WIN 10 hours of private jet travel from Microsoft® Office Live

It's here! Your new message!Get

new email alerts with the free Yahoo! Toolbar.

[Guest guest]

, are you sure you didn't watch Men in Black? Sounds like critters from that movie.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: sick and tired . . .Date: Tue, 6 Mar 2007 19:41:08 -0800 (PST)

LOL,.....yesterday the scrapbook lady came with my order and I was in my nightgown. Today a friend came to visit at 2 pm-ish and I had kept my nightgown on. Neither one even mentioned it cuz they know me well enough. My chest has been hurtin nightmareish-style. When I am in alot of pain I get bad dreams. real doozies.... In one of the last ones I was fighting off demons and one of the others I and some others were fightin off this big spiderish/octopusy thing...which by the way...some other big thing ate. lol Glad I woke up around then...yeah. Today I took my regular 2 Tramadol every 5 hours then my narcotic pill then later 6 msm capsules. I just took 2 acetaminaphen. (sp?) The doc said I could take them with the Tramadol. I am not going anywhere.... I am having trouble thinking straight through all the pain. I think the msm or acet. is kicking in and I'm going to lay down again. Rose, I hope you have extra slippers on hand...lol. Watched Stranger Than Fiction dvd with Will Ferrel and I can say the I have fallen in love with Harold Crick. ...btw... Netflix is the best $26 I spend every month. hugs and wear socks(with your slippers) the next time you run outside...lol hugs S.Rose <mamadogrose (AT) hotmail (DOT) com> wrote:

sometimes we need to get on the jeans and get out of the house-- even if it's just to the mailbox. Tracie, so we have to get dressed just to get the mail? I usually go out in my pj's & slippers. Of course, that's how I lost a slipper in the snow drift! Hey, that's my good thing to report--as the snow began melting, one of my dogs found my slipper & brought it to the back door! Doesn't that brighten your day?

Ramblin' Rose

Moderator

Don’t miss your chance to WIN 10 hours of private jet travel from Microsoft® Office Live

It's here! Your new message!Get new email alerts with the free Yahoo! Toolbar.

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[Guest guest]

Hmm, aren't you the one with the leopard skin undies? Or was that Ron?

I take the Fifth.

well, after a fifth, leopard skin looks good on anyone...

************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

Racie Tracie, you are a hum-dinger! And that's a compliment.

Ramblin' Rose

Moderator

From: tiodaat@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: sick and tired . . .Date: Wed, 7 Mar 2007 22:22:08 EST

In a message dated 3/6/07 5:10:17 PM Pacific Standard Time, mamadogrose (AT) hotmail (DOT) com writes:

Hmm, aren't you the one with the leopard skin undies? Or was that Ron?I take the Fifth. well, after a fifth, leopard skin looks good on anyone...**************************************AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

With tax season right around the corner, make sure to follow these few simple tips.

[Guest guest]

Rose,

Rose, Rose…. Don’t you know you should be dressed and have your hair

done and make up on before you go to the Mail Box, or at least I do, doesn’t

everyone else??? J

Marla

Bramer

Independent

Beauty Consultant

Kay

mbramer@...

" Faith

sees the invisible, believes the incredible and receives the impossible "

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose

Sent: Tuesday, March 06, 2007

12:57 AM

To: Neurosarcoidosis

Subject: sick

and tired . . .

sometimes we need to get on the jeans and get out of the house--

even if it's just to the mailbox.

Tracie, so we have to get dressed

just to get the mail? I usually go out in my pj's & slippers.

Of course, that's how I lost a slipper in the snow drift! Hey, that's my

good thing to report--as the snow began melting, one of my dogs found my

slipper & brought it to the back door! Doesn't that brighten your

day?

Ramblin' Rose

Moderator

Don’t

miss your chance to WIN 10 hours of private jet travel from Microsoft® Office

Live

[Guest guest]

Lol……………………………….

Marla

Bramer

" Faith

sees the invisible, believes the incredible and receives the impossible "

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of tiodaat@...

Sent: Wednesday, March 07, 2007

8:22 PM

To: Neurosarcoidosis

Subject: Re:

sick and tired . . .

In a message dated 3/6/07

5:10:17 PM Pacific Standard Time, mamadogrose (AT) hotmail (DOT) com writes:

Hmm, aren't you the one with the leopard

skin undies? Or was that Ron?

I take the Fifth.

well, after a fifth, leopard skin looks good on anyone...

**************************************

AOL now offers free email to everyone. Find out more about what's free from AOL

at http://www.aol.com.

[Guest guest]

Some days, especially thanks to pred, the only make up I really feel like puting on is American Indian Warpaint or camo. I know, I know I'm working on that. ConnieMarla Bramer wrote: Rose, Rose, Rose…. Don’t you know you should be dressed and have your hair done and make up on before you go to the

Mail Box, or at least I do, doesn’t everyone else??? J Marla Bramer Independent Beauty

Consultant Kay mbramer (AT) marykay (DOT) com "Faith sees the invisible, believes the incredible and receives the impossible" From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Tuesday, March 06, 2007 12:57 AMTo: Neurosarcoidosis Subject: sick and tired . . . sometimes we need to get on the jeans and get out of the house-- even if it's just to the mailbox. Tracie, so we have to get dressed just to get the mail? I usually go out in my pj's & slippers. Of course, that's how I lost a slipper in the snow drift! Hey, that's my good thing to report--as the snow began melting, one of my dogs found my slipper & brought it to the back door! Doesn't

that brighten your day? Ramblin' Rose Moderator Don’t miss your chance to WIN 10 hours of private jet travel from Microsoft® Office Live

Don't get soaked. Take a quick peek at the forecast with theYahoo! Search weather shortcut.

[Guest guest]

Well, I get dressed. One out of three ain't bad BarbMarla Bramer wrote: Rose, Rose, Rose…. Don’t you know you should be dressed and have your hair done and make up on before you go to the Mail Box, or at least I do, doesn’t everyone else??? J Marla Bramer Independent Beauty Consultant Kay mbramer (AT) marykay (DOT) com "Faith sees the invisible, believes the incredible and receives the impossible"

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Tuesday, March 06, 2007 12:57 AMTo: Neurosarcoidosis Subject: sick and tired . .

.. sometimes we need to get on the jeans and get out of the house-- even if it's just to the mailbox. Tracie, so we have to get dressed just to get the mail? I usually go out in my pj's & slippers. Of course, that's how I lost a slipper in the snow drift! Hey, that's my good thing to report--as the snow began melting, one of my dogs found my slipper & brought it to the back door! Doesn't that brighten your day? Ramblin' Rose Moderator Don’t miss your chance to WIN 10 hours of private jet travel from Microsoft® Office Live

Sucker-punch spam with award-winning protection. Try the free Yahoo! Mail Beta.

[Guest guest]

Well Connie

it’s a start let me know if you need some pointers.

Marla

Bramer

Independent

Beauty Consultant

Kay

" Faith

sees the invisible, believes the incredible and receives the impossible "

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Connie Griffis

Sent: Thursday, March 08, 2007

6:24 PM

To: Neurosarcoidosis

Subject: RE:

sick and tired . . .

Some

days, especially thanks to pred, the only make up I really feel like puting on

is American Indian Warpaint or camo. I know, I know I'm working on

that. Connie

Marla Bramer

<mebramer (AT) gmail (DOT) com> wrote:

Rose,

Rose, Rose…. Don’t you know you should be dressed and have

your hair done and make up on before you go to the Mail Box, or at least I

do, doesn’t everyone else??? J

Marla

Bramer

Independent

Beauty Consultant

Kay

mbramer (AT) marykay (DOT) com

" Faith

sees the invisible, believes the incredible and receives the impossible "

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ]

On Behalf Of Rose

Sent: Tuesday, March 06, 2007

12:57 AM

To: Neurosarcoidosis

Subject: sick

and tired . . .

sometimes we need to

get on the jeans and get out of the house-- even if it's just to the

mailbox.

Tracie, so we have to get dressed

just to get the mail? I usually go out in my pj's & slippers.

Of course, that's how I lost a slipper in the snow drift! Hey, that's my

good thing to report--as the snow began melting, one of my dogs found my

slipper & brought it to the back door! Doesn't that brighten your day?

Ramblin' Rose

Moderator

Don’t

miss your chance to WIN 10 hours of private jet travel from Microsoft® Office

Live

Don't get soaked. Take a

quick peek at the forecast

with theYahoo!

Search weather shortcut.

[Guest guest]

Hey Guys,

I had to weigh in on this one. When it is time for a birthday, Christmas or whatever, ask your family for a pair of nice lounging pajamas. That way, when your father-in-law drops over unannounced again, you look presentable and not like you have been sleeping for the last three days. I got 3 pairs for Christmas and I rotate them so it looks like I have acutally changed clothes during a particular week when the fatigue is horrendous.

I also watched a special on a disabled lady (polio) in the 50/60's who, even though she was in a wheelchair, did her hair and makeup everyday just to lift her own spirits. I am trying to learn from those who are in a more difficult position...

Take Care.

Terri G.

[Guest guest]

Hi Terri, I know that is a good idea, isn't it? I have my family trained! They give me comfortable lounging wear as you said and nightwear too because that is what I like to be in all the time. I do try to do the makeup thing too especially if I am going to the library. Thanks for passing on the suggestions. Hugs, Debbie T. Co-Moderator mosaicgirl1 wrote: Hey Guys, I had to weigh in on this one. When it is time for a birthday, Christmas or whatever, ask your family for a pair of nice lounging pajamas. That way, when your father-in-law drops over unannounced again, you look presentable and not like you have been sleeping for the last three

days. I got 3 pairs for Christmas and I rotate them so it looks like I have acutally changed clothes during a particular week when the fatigue is horrendous. I also watched a special on a disabled lady (polio) in the 50/60's who, even though she was in a wheelchair, did her hair and makeup everyday just to lift her own spirits. I am trying to learn from those who are in a more difficult position... Take Care. Terri G.

The fish are biting.

Get more visitors on your site using Yahoo! Search Marketing.

[Guest guest]

True,

Barb being dressed opposed to not being dressed is a good idea! J

Marla

Bramer

" Faith

sees the invisible, believes the incredible and receives the impossible "

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Barb

Sent: Thursday, March 08, 2007

10:39 PM

To: Neurosarcoidosis

Subject: RE:

sick and tired . . .

Well, I get dressed. One out of three ain't bad

Barb

Marla Bramer

<mebramer (AT) gmail (DOT) com> wrote:

Rose,

Rose, Rose…. Don’t you know you should be dressed and have

your hair done and make up on before you go to the Mail Box, or at least I

do, doesn’t everyone else??? J

Marla

Bramer

Independent

Beauty Consultant

Kay

mbramer (AT) marykay (DOT) com

" Faith

sees the invisible, believes the incredible and receives the impossible "

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ]

On Behalf Of Rose

Sent: Tuesday, March 06, 2007

12:57 AM

To: Neurosarcoidosis

Subject: sick

and tired . . .

sometimes we need to

get on the jeans and get out of the house-- even if it's just to the

mailbox.

Tracie, so we have to get dressed

just to get the mail? I usually go out in my pj's & slippers.

Of course, that's how I lost a slipper in the snow drift! Hey, that's my

good thing to report--as the snow began melting, one of my dogs found my

slipper & brought it to the back door! Doesn't that brighten your

day?

Ramblin' Rose

Moderator

Don’t

miss your chance to WIN 10 hours of private jet travel from Microsoft® Office

Live

Sucker-punch

spam with award-winning protection.

Try the free

Yahoo! Mail Beta.

[Guest guest]

Terri, the pajamas are a great idea. I used to have a pair made of satin; I felt like a queen wearing them (probably looked more like Cruella Deville, but how you feel is more important, right?!?). The poor things were totally worn out by the time I finally tossed them. Maybe I'll treat myself to another pair.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: sick and tired . . .Date: Fri, 09 Mar 2007 12:44:44 -0000

Hey Guys,

I had to weigh in on this one. When it is time for a birthday, Christmas or whatever, ask your family for a pair of nice lounging pajamas. That way, when your father-in-law drops over unannounced again, you look presentable and not like you have been sleeping for the last three days. I got 3 pairs for Christmas and I rotate them so it looks like I have acutally changed clothes during a particular week when the fatigue is horrendous.

I also watched a special on a disabled lady (polio) in the 50/60's who, even though she was in a wheelchair, did her hair and makeup everyday just to lift her own spirits. I am trying to learn from those who are in a more difficult position...

Take Care.

Terri G.

Mortgage rates as low as 4.625% - Refinance $150,000 loan for $579 a month. Intro*Terms

[Guest guest]

Hi, How many people feel like its so hard to get up and take a shower each day.That is the worst feeling I have when I am not doing well. I know I have to get up and do it, but the thought of it is so hard. I finally have to drag myself up to get in. I am not a bath type of person either. I do shower everyday, not to let everyone think I am a slob or anything. But I just wanted to share that feeling.Debbie T.Co-ModeratorRose wrote: Terri, the pajamas are a great idea. I used to have a pair made of satin; I felt like a queen wearing them (probably looked more like Cruella Deville, but how you feel is more important, right?!?). The poor things were totally worn out by the

time I finally tossed them. Maybe I'll treat myself to another pair. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: sick and tired . . .Date: Fri, 09 Mar 2007 12:44:44 -0000 Hey Guys, I had to weigh in on this one. When it is time for a birthday, Christmas or whatever, ask your family for a pair of nice lounging pajamas. That way, when your father-in-law drops over unannounced again, you look presentable and not like you have been sleeping for the last three days. I got 3 pairs for Christmas and I rotate them so it looks like I have acutally changed clothes during a particular week when the fatigue is horrendous. I also watched a special on a

disabled lady (polio) in the 50/60's who, even though she was in a wheelchair, did her hair and makeup everyday just to lift her own spirits. I am trying to learn from those who are in a more difficult position... Take Care. Terri G. Mortgage rates as low as 4.625% - Refinance $150,000 loan for $579 a month. Intro*Terms

Expecting? Get great news right away with email Auto-Check.Try the Yahoo! Mail Beta.

[Guest guest]

Debbie

you are not alone, some days I don’t shower, I usually throw on a pair of

jeans and a shirt though!

Marla

Bramer

" Faith

sees the invisible, believes the incredible and receives the impossible "

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Debbie

Sent: Monday, March 12, 2007 2:31

PM

To: Neurosarcoidosis

Subject: RE:

Re: sick and tired . . .

Hi,

How many people feel like its so hard to get up and take a

shower each day.

That is the worst feeling I have when I am not doing well. I know I have

to get up and do it, but the thought of it is so hard. I finally

have to drag myself up to get in. I am not a bath type of person

either.

I do shower everyday, not to let everyone think I am a slob or anything.

But I just wanted to share that feeling.

Debbie T.

Co-Moderator

Rose

<mamadogrose (AT) hotmail (DOT) com> wrote:

Terri, the pajamas are a great idea. I used to have a pair made

of satin; I felt like a queen wearing them (probably looked more like Cruella

Deville, but how you feel is more important, right?!?). The poor things

were totally worn out by the time I finally tossed them. Maybe I'll treat

myself to another pair.

Ramblin' Rose

Moderator

From: " mosaicgirl1 " <mosaicgirl1 (AT) yahoo (DOT) com>

Reply-To: Neurosarcoidosis

To: Neurosarcoidosis

Subject: Re: sick and

tired . . .

Date: Fri, 09 Mar 2007 12:44:44 -0000

Hey Guys,

I had to weigh in on this one. When it is time for a

birthday, Christmas or whatever, ask your family for a pair of nice lounging

pajamas. That way, when your father-in-law drops over unannounced

again, you look presentable and not like you have been sleeping for

the last three days. I got 3 pairs for Christmas and I rotate them so it

looks like I have acutally changed clothes during a particular week when the

fatigue is horrendous.

I also watched a special on a disabled lady (polio) in the

50/60's who, even though she was in a wheelchair, did her hair and makeup

everyday just to lift her own spirits. I am trying to learn from those

who are in a more difficult position...

Take Care.

Terri G.

Mortgage

rates as low as 4.625% - Refinance $150,000 loan for $579 a month. Intro*Terms

Expecting? Get great news right away with email

Auto-Check.

Try the Yahoo!

Mail Beta.

[Guest guest]

Debbie, at the risk of grossing everyone out, I don't do it every day. I do the "necessaries" at the sink, but like you, just the thought of it makes me tired. I bought a shower stool awhile back, so at least I can sit down, but my arms get so tired. I'm lucky that my hair doesn't get oily, because I only shampoo it 2-3x/week. Even after being in the hot tub, I don't always rinse the chlorine out. Heck, still better than the pioneers, right? And we don't even want to think about the n days.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: RE: Re: sick and tired . . .Date: Mon, 12 Mar 2007 13:31:21 -0700 (PDT)

Hi, How many people feel like its so hard to get up and take a shower each day.That is the worst feeling I have when I am not doing well. I know I have to get up and do it, but the thought of it is so hard. I finally have to drag myself up to get in. I am not a bath type of person either. I do shower everyday, not to let everyone think I am a slob or anything. But I just wanted to share that feeling.Debbie T.Co-ModeratorRose <mamadogrose (AT) hotmail (DOT) com> wrote:

Terri, the pajamas are a great idea. I used to have a pair made of satin; I felt like a queen wearing them (probably looked more like Cruella Deville, but how you feel is more important, right?!?). The poor things were totally worn out by the time I finally tossed them. Maybe I'll treat myself to another pair.

Ramblin' Rose

Moderator

From: "mosaicgirl1" <mosaicgirl1 (AT) yahoo (DOT) com>Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: sick and tired . . .Date: Fri, 09 Mar 2007 12:44:44 -0000

Hey Guys,

I had to weigh in on this one. When it is time for a birthday, Christmas or whatever, ask your family for a pair of nice lounging pajamas. That way, when your father-in-law drops over unannounced again, you look presentable and not like you have been sleeping for the last three days. I got 3 pairs for Christmas and I rotate them so it looks like I have acutally changed clothes during a particular week when the fatigue is horrendous.

I also watched a special on a disabled lady (polio) in the 50/60's who, even though she was in a wheelchair, did her hair and makeup everyday just to lift her own spirits. I am trying to learn from those who are in a more difficult position...

Take Care.

Terri G.

Mortgage rates as low as 4.625% - Refinance $150,000 loan for $579 a month. Intro*Terms

Expecting? Get great news right away with email Auto-Check.Try the Yahoo! Mail Beta.

Get a FREE Web site, company branded e-mail and more from Microsoft Office Live!

[Guest guest]

Hi Debbie, Lately that's the only thing I get done each day. I hate it too, but I don't feel too well or sleep well if I don't try to do it. The hot water has also been helping my sore back. I've had the chills the last week or so, among other things, and sitting with the hot water beating on my back til I'm all warmed up is a big plus. But it is exhausting. I have a rule that noone can talk to me for at least five minutes after I take a shower. I am just too exhausted. I usually try to paint every day but with this increased chest pain I can't manage it without increased agony. Tomorrow it's supposed to get in the 50's and maybe soon we'll get warmer and outside more often. hugs S.Debbie wrote: Hi, How many people feel like its so hard to get up and take a shower each day.That is the worst feeling I have when I am not doing well. I know I have to get up and do it, but the thought of it is so hard. I finally have to drag myself up to get in. I am not a bath type of person either. I do shower everyday, not to let everyone think I am a slob or anything. But I just wanted to share that feeling.Debbie T.Co-ModeratorRose <mamadogrose (AT) hotmail (DOT) com> wrote:

Terri, the pajamas are a great idea. I used to have a pair made of satin; I felt like a queen wearing them (probably looked more like Cruella Deville, but how you feel is more important, right?!?). The poor things were totally worn out by the time I finally tossed them. Maybe I'll treat myself to another pair. Ramblin' Rose Moderator From: "mosaicgirl1" <mosaicgirl1 (AT) yahoo (DOT) com>Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: sick and tired . . .Date: Fri, 09 Mar 2007 12:44:44 -0000 Hey Guys, I had to weigh in on this one. When it is time for a birthday, Christmas or whatever, ask your family for a pair of nice lounging pajamas. That way, when your father-in-law drops over unannounced again, you look presentable and not like you have been sleeping for the last three days. I got 3 pairs for Christmas and I rotate them so it looks like I have acutally changed clothes during a

particular week when the fatigue is horrendous. I also watched a special on a disabled lady (polio) in the 50/60's who, even though she was in a wheelchair, did her hair and makeup everyday just to lift her own spirits. I am trying to learn from those who are in a more difficult position... Take Care. Terri G. Mortgage rates as low as 4.625% - Refinance $150,000 loan for $579 a month. Intro*Terms Expecting? Get great news right away with email Auto-Check.Try the Yahoo! Mail Beta.

Food fight? Enjoy some healthy debatein the Yahoo! Answers Food Drink Q&A.

[Guest guest]

Hi, I know exactly what you mean. Taking a shower is big time work. I do mine at night because I couldn't do my shower and do anything else the same day. I do my shower at night, get up the next morning, do my hair and makeup (if i am forced to wear any) and if I have an appointment, (and don't we see some doctor every day?) my day is full.Debbie wrote: Hi, How many people feel like its so hard to get up and take a shower each day.That is the worst

feeling I have when I am not doing well. I know I have to get up and do it, but the thought of it is so hard. I finally have to drag myself up to get in. I am not a bath type of person either. I do shower everyday, not to let everyone think I am a slob or anything. But I just wanted to share that feeling.Debbie T.Co-ModeratorRose <mamadogrose (AT) hotmail (DOT) com> wrote: Terri, the pajamas are a great idea. I used to have a pair made of satin; I felt like a queen wearing them (probably looked more like Cruella Deville, but how you feel is more important, right?!?). The poor things were totally worn out by the time I finally tossed them. Maybe I'll treat myself to another pair. Ramblin' Rose Moderator From: "mosaicgirl1" <mosaicgirl1 (AT) yahoo (DOT) com>Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: sick and tired . . .Date: Fri, 09 Mar 2007 12:44:44 -0000 Hey Guys, I had to weigh in on this one. When it is time for a birthday, Christmas or whatever, ask your family for a pair of nice lounging pajamas. That way, when your father-in-law drops over unannounced again, you look presentable and not like you have been sleeping for the last three days. I got 3 pairs for Christmas and I rotate them so it looks like I have acutally changed clothes during a particular week when the fatigue is horrendous. I also watched a special on a disabled lady (polio) in the 50/60's who, even though she was in a wheelchair, did her hair and makeup everyday just to lift her own spirits. I am trying to learn from those who are in a more difficult position... Take Care. Terri G. Mortgage rates as low as 4.625% - Refinance $150,000 loan for $579 a month. Intro*Terms Expecting? Get great news right away with email Auto-Check.Try the Yahoo! Mail Beta.

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[Guest guest]

this cold was a killer for me this year too, I wish you warmer days soon!

Marla

Bramer

" Faith

sees the invisible, believes the incredible and receives the impossible "

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Solberg

Sent: Tuesday, March 13, 2007 3:30

AM

To: Neurosarcoidosis

Subject: RE:

Re: sick and tired . . .

Hi Debbie, Lately

that's the only thing I get done each day. I hate it too, but I

don't feel too well or sleep well if I don't try to do it. The hot

water has also been helping my sore back. I've had the chills the last

week or so, among other things, and sitting with the hot water beating on my

back til I'm all warmed up is a big plus. But it is

exhausting. I have a rule that noone can talk to me for at least

five minutes after I take a shower. I am just too

exhausted. I usually try to paint every day but with this increased

chest pain I can't manage it without increased agony. Tomorrow it's

supposed to get in the 50's and maybe soon we'll get warmer and outside more

often. hugs S.

Debbie

<rozebudz36 (AT) yahoo (DOT) com> wrote:

Hi,

How many people feel like its so hard to get up and take a

shower each day.

That is the worst feeling I have when I am not doing well. I know I have

to get up and do it, but the thought of it is so hard. I finally

have to drag myself up to get in. I am not a bath type of person

either.

I do shower everyday, not to let everyone think I am a slob or anything.

But I just wanted to share that feeling.

Debbie T.

Co-Moderator

Rose

<mamadogrose (AT) hotmail (DOT) com> wrote:

Terri, the pajamas are a great idea. I used to have a pair made

of satin; I felt like a queen wearing them (probably looked more like Cruella

Deville, but how you feel is more important, right?!?). The poor things

were totally worn out by the time I finally tossed them. Maybe I'll treat

myself to another pair.

Ramblin' Rose

Moderator

From: " mosaicgirl1 " <mosaicgirl1 (AT) yahoo (DOT) com>

Reply-To: Neurosarcoidosis

To: Neurosarcoidosis

Subject: Re: sick and

tired . . .

Date: Fri, 09 Mar 2007 12:44:44 -0000

Hey Guys,

I had to weigh in on this one. When it is time for a

birthday, Christmas or whatever, ask your family for a pair of nice lounging

pajamas. That way, when your father-in-law drops over unannounced

again, you look presentable and not like you have been sleeping for the

last three days. I got 3 pairs for Christmas and I rotate them so it

looks like I have acutally changed clothes during a particular week when the

fatigue is horrendous.

I also watched a special on a disabled lady (polio) in the

50/60's who, even though she was in a wheelchair, did her hair and makeup

everyday just to lift her own spirits. I am trying to learn from those

who are in a more difficult position...

Take Care.

Terri G.

Mortgage

rates as low as 4.625% - Refinance $150,000 loan for $579 a month. Intro*Terms

Expecting? Get great news right away with email

Auto-Check.

Try the Yahoo!

Mail Beta.

Food

fight? Enjoy some healthy debate

in the Yahoo!

Answers Food Drink Q & A.

[Guest guest]

Boy oh boy do my kids get tired of hearing this one!!!

For years I have fought this disease, and many times over those years

it has gotten me down to the point that I was barely able to function,

but every day, every single day I get up, shave shower and put on

clothes, even is I have to sit down and gasp for air, or shake from

the pain every other minute until I am donw, and yes there have been

many times that it took several hours to accomplish this amazing feat,

and often it is just so I can sit in front of the TV all day until it

is time to climb the stairs and chang back into my pj's go to bed and

start the whole thing over next day, but I refuse to allow myself to

look like I feel. ( maybe it has something to do with being so ugle

that the dog is repulsed, and hoping that by wearing reasonably nice

clothing I won';t make the neighbors move out, but maybe not, I not

all that fond of the neighbors anyway, and the dog just ate my lunch

off the table so he's on his way out anyhow!).

Yep, that's what my kids hear all the time, every time they whine

about having to do something that I ocnsider obligatory, I tell them

this, and I mean it. And these days it means even more than it used too.

Back when this adventure first started, I came down with a sarcoid

tumor in my lungs, now for those of you who haven't experienced this

particular joy, let it suffice to say that breathing feels like

someone is attacking the inner layers of your chest with a wood rasp,

movement is almost impossible without gasping for air, coughing is an

all day thing and often leads to blackouts until your oxegyn levels

return to what passes for normmal, and don't even ask about the stuff

that come up form your lungs when you do cough, it's just too

disgusting to talk about, or even rmember for that matter. Well

anyway, that's when I first discoverred that by putting a chair into

the shower, (preferrably not your grandmother's chipendale), even at

your worst you can take a nice hot shower and the steam will help

soothe the pain in your chest, ease the pain throughout your body, and

you are less likely to stink, (yes that is a problem for us dog lovers).

Now doesn't that sound manly, sitting on a chair in the shower!!!!!

Ah well, this thing has stolen just about everything else from me, why

not manliness as long as we are having fun together. So, now I find

myself once again having to sit my way through showers a couple of

times a week, but I am still resisting the pressure from my wife who

is bothered by the fact that I have nearly ruined the wooden stools in

our house from the hot water, to go to the medical supply store and

purchase a white metal and plastic shower chair that would last

forever, but damnit, then I would feel like a sick person, and I'm

just not ready for that!!! (Maybe tyhat's what the doctor meant when

he said there was sumtin wrong wit my hade!~!!!!!)

So, the jist of this story is that by barreling through regardless of

the personal costs, I have at least accomplished teaching my children

that you can do anything if you just dont' allow yourself to quit.

(That's my story and I'm sticking to it, at least until this thing

beats me, and then I'm an going to WHINNNNNNNNNE like nothing you've

ever seen before!!!)

Stu

[Guest guest]

Stu,

I so appreciate hearing that even you tough guys out there are going thru the same things. I know that for so many of us, we have to develop that tough hide that keeps the sanity in.

Teaching our kids that yep, even with chronic illness, one can find some assemblance of normal-- getting dressed, sitting at the breakfast table and starting the day laughing at them as they try to find their shoes and lunchboxes and the homework the dog at, after all we put the sandwich on top of it and roast beef and homework is a good match.

So my philosophy-- keep on keeping on. Or, Just keep swimming, or paddle dammit, or any one of those 1000 things that people say when the going gets tough and tough get tougher or some such stuff....

Blessings,

Tracie************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

Thanks, I may need that, since I don't have a horse I haven't figured out where to put the handprint when I'm victorious in battle.....(major haha)..........ConnieMarla Bramer wrote: Well Connie it’s a start let me know if you need some pointers. Marla Bramer Independent Beauty Consultant Kay "Faith sees the invisible, believes the incredible and receives the impossible" From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Connie GriffisSent: Thursday, March 08, 2007 6:24 PMTo: Neurosarcoidosis Subject: RE: sick and tired . . . Some days, especially thanks to pred, the only make up I really feel like puting on is American Indian Warpaint or camo. I know, I know I'm working on that.

ConnieMarla Bramer <mebramer (AT) gmail (DOT) com> wrote: Rose, Rose, Rose…. Don’t you know you should be dressed and have your hair done and make up on before you go to the Mail Box, or at least I do, doesn’t everyone else??? J Marla Bramer Independent Beauty Consultant Kay mbramer (AT) marykay (DOT) com "Faith sees the invisible, believes the incredible and receives the impossible" From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Tuesday, March 06, 2007 12:57 AMTo: Neurosarcoidosis Subject: sick and tired . . . sometimes we need to get on the jeans and get out of the house-- even if it's just to the mailbox. Tracie, so we have to get dressed just to get the mail? I usually go out in my pj's & slippers. Of course, that's how I lost a slipper in the snow drift! Hey, that's my good thing to

report--as the snow began melting, one of my dogs found my slipper & brought it to the back door! Doesn't that brighten your day? Ramblin' Rose Moderator Don’t miss your chance to WIN 10 hours of private jet travel from Microsoft® Office Live Don't get soaked. Take a quick peek at the forecast with theYahoo! Search weather shortcut.

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