Pain

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Rose, So, I am not a hypochondriac for thinking that I have all this pain in my butt? When I stand I get this pain that runs inderneath my buttock on the left side. It lasts as long as I stand. I can stand about three minutes and then I must sit down due to excruciating pain across my lower back. I always thought I used good body mechanics. Barb

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[Guest guest]

, I am not a hypochondriac for thinking that I have all this pain in my butt?

Nope, you're not a hypochondriac. It sounds like you may have some pressure on the sciatic nerve. Have you seen a chiropractor? Does icepacks help with the inflammation?

So many of us get comfort from heat-- but too much brings more inflammation, so you really need to do both ice and heat.

Oh, and the pain in the butt-- hmmm, does it have a name?

Blessings,

Tracie

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[Guest guest]

Now, Barb, I'm not saying that you are a pain in the butt . . . ., "but" your pain is real. Mine is like severe muscle spasms that just get worse & worse the longer I stand. I can take it for awhile by rocking & swaying, but within a few minutes I have to sit or lie down. To confirm that the pain was coming from my back I had a provocative discogram in Dec. They insert a needle into the discs that are suspected of causing the pain, in my case L3-4, L4-5 & L5-S1. That part wasn't bad, because they used a local. Then they insert dye to try to provoke your pain. If you experience the same pain you usually get, it's evidence that the disc itself is causing the pain, not referred pain from somewhere else. "Happily" for me, all 3 discs were positive. I say happily because it proved what I thought all along. The first 2 weren't too bad, but the L5-S1 was horrible; he couldn't even finish the test because the pain was so severe whenever he just got near it. So I think that one is probably the main culprit. The unhappy part is that the surgeon who ordered the test won't operate if more than two discs are involved. I do have an appt. in a couple of weeks with a neuro-surgeon in Indy to get another opinion. If surgery is not a safe option, I'm going to look into a spinal nerve stimulator. Has anyone had experience with those?

Barb, you might have used good body mechanics. I don't know how old you are, but many of us just begin to get disc degeneration as we age; probably some genetics involved too.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: PainDate: Wed, 7 Mar 2007 00:03:43 -0800 (PST)

Rose,

So, I am not a hypochondriac for thinking that I have all this pain in my butt? When I stand I get this pain that runs inderneath my buttock on the left side. It lasts as long as I stand. I can stand about three minutes and then I must sit down due to excruciating pain across my lower back. I always thought I used good body mechanics.

Barb

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[Guest guest]

Now- I must take the fifth Barbtiodaat@... wrote: In a message dated 3/7/07 8:38:44 AM Pacific Standard Time, wauwau75 (AT) yahoo (DOT) com writes: , I am not a hypochondriac for thinking that I have

all this pain in my butt? Nope, you're not a hypochondriac. It sounds like you may have some pressure on the sciatic nerve. Have you seen a chiropractor? Does icepacks help with the inflammation? So many of us get comfort from heat-- but too much brings more inflammation, so you really need to do both ice and heat.Oh, and the pain in the butt-- hmmm, does it have a name?Blessings,TracieNS Co-owner/moderator**************************************AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

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Rose, I have been told in theNursing Mangement part of my career that I could be a "pain in the butt". I never heard of a Provocative Discogram. I have had an MRI and I have many "bad" discs. They did surgery on C5-C6 and C6-C7 (the pain is worse now) I have 14 discs that are all messed up. L5 and S1 have dissicated so I thought they would not cause pain any more. Until the last 6 months I never had pain and I know the discs have been bad for a long time. I could never wear a scarf on my neck or a heavy coat for very long and could not sit with my head turned to the side for very long. If I did I got a bad headache, like a migraine. But I had no pain until they did surgery in an effort to stop the numbness in my hands. Now I have numbness and pain. SO - now I have a pain in my butt and a pain in my neck. lol I am almost embarrassed to say this but I bought a package of Doan's pills and it has helped some. I have taken care of two people with a Spinal Nerve Stimulator.and they were happy for a time with the results. After they were much older it didn't seem to help as much. Good luck to you. BarbRose wrote: Now, Barb, I'm not saying that you are a pain in the butt . . . ., "but" your pain is real. Mine is like severe muscle spasms that just get worse & worse the longer I stand. I can take it for awhile by rocking &

swaying, but within a few minutes I have to sit or lie down. To confirm that the pain was coming from my back I had a provocative discogram in Dec. They insert a needle into the discs that are suspected of causing the pain, in my case L3-4, L4-5 & L5-S1. That part wasn't bad, because they used a local. Then they insert dye to try to provoke your pain. If you experience the same pain you usually get, it's evidence that the disc itself is causing the pain, not referred pain from somewhere else. "Happily" for me, all 3 discs were positive. I say happily because it proved what I thought all along. The first 2 weren't too bad, but the L5-S1 was horrible; he couldn't even finish the test because the pain was so severe whenever he just got near it. So I think that one is probably the main culprit. The unhappy part is that the surgeon who ordered the test won't operate if more than two discs are involved. I do

have an appt. in a couple of weeks with a neuro-surgeon in Indy to get another opinion. If surgery is not a safe option, I'm going to look into a spinal nerve stimulator. Has anyone had experience with those? Barb, you might have used good body mechanics. I don't know how old you are, but many of us just begin to get disc degeneration as we age; probably some genetics involved too. Ramblin' Rose Moderator From: Barb

<wauwau75 (AT) yahoo (DOT) com>Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: PainDate: Wed, 7 Mar 2007 00:03:43 -0800 (PST) Rose, So, I am not a hypochondriac for thinking that I have all this pain in my butt? When I stand I get this pain that runs inderneath my buttock on the left side. It lasts as long as I stand. I can stand about three minutes and then I must sit down due to excruciating pain across my lower back. I always thought I used good body mechanics. Barb The fish are biting.Get more visitors on your site using

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Barb. I'm sorry that the surgery made things worse. I also have degenerative disc disease. Last summer I had MRI's of my entire spine. There were only 2 normal discs in the entire thing! 7 years ago, I ruptured C6-7 turning over in bed. I had severe, spasm-type pain in my shoulder, deep aching pain all down my arm, complete numbness in my fingers (worse than with the carpal tunnel) and eventually, severe weakness in that arm, with total loss of reflexes. My neck never hurt, although I did get such severe muscle spasms that I couldn't turn my head at all. After trying traction & LOTS of pain pills for two months, I had an anterior fusion. I was very fortunate--the pain was relieved immediately, the weakness within a month & the numbness within a couple of months. For the first couple of days after surgery, I wasn't sure it was such a good idea, because my neck was so sore! But even that didn't hurt as much as my shoulder had hurt, and the surgical pain resolved in a few days.

I wonder why your surgery made things worse. I do know that several doctors I worked with said to be sure to have a neurosurgeon do it, rather than an orthopedic surgeon. But sometimes even the best doctors can have bad outcomes.

Well, I'll let you all know what the neurosurgeon says after my visit on 3/22.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: RE: PainDate: Thu, 8 Mar 2007 21:34:02 -0800 (PST)

Rose,

I have been told in theNursing Mangement part of my career that I could be a "pain in the butt".

I never heard of a Provocative Discogram. I have had an MRI and I have many "bad" discs. They did surgery on C5-C6 and C6-C7 (the pain is worse now) I have 14 discs that are all messed up. L5 and S1 have dissicated so I thought they would not cause pain any more. Until the last 6 months I never had pain and I know the discs have been bad for a long time.

I could never wear a scarf on my neck or a heavy coat for very long and could not sit with my head turned to the side for very long. If I did I got a bad headache, like a migraine. But I had no pain until they did surgery in an effort to stop the numbness in my hands. Now I have numbness and pain. SO - now I have a pain in my butt and a pain in my neck. lol

I am almost embarrassed to say this but I bought a package of Doan's pills and it has helped some.

I have taken care of two people with a Spinal Nerve Stimulator.and they were happy for a time with the results. After they were much older it didn't seem to help as much.

Good luck to you.

BarbRose <mamadogrose (AT) hotmail (DOT) com> wrote:

Now, Barb, I'm not saying that you are a pain in the butt . . . ., "but" your pain is real. Mine is like severe muscle spasms that just get worse & worse the longer I stand. I can take it for awhile by rocking & swaying, but within a few minutes I have to sit or lie down. To confirm that the pain was coming from my back I had a provocative discogram in Dec. They insert a needle into the discs that are suspected of causing the pain, in my case L3-4, L4-5 & L5-S1. That part wasn't bad, because they used a local. Then they insert dye to try to provoke your pain. If you experience the same pain you usually get, it's evidence that the disc itself is causing the pain, not referred pain from somewhere else. "Happily" for me, all 3 discs were positive. I say happily because it proved what I thought all along. The first 2 weren't too bad, but the L5-S1 was horrible; he couldn't even finish the test because the pain was so severe whenever he just got near it. So I think that one is probably the main culprit. The unhappy part is that the surgeon who ordered the test won't operate if more than two discs are involved. I do have an appt. in a couple of weeks with a neuro-surgeon in Indy to get another opinion. If surgery is not a safe option, I'm going to look into a spinal nerve stimulator. Has anyone had experience with those?

Barb, you might have used good body mechanics. I don't know how old you are, but many of us just begin to get disc degeneration as we age; probably some genetics involved too.

Ramblin' Rose

Moderator

From: Barb <wauwau75 (AT) yahoo (DOT) com>Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: PainDate: Wed, 7 Mar 2007 00:03:43 -0800 (PST)

Rose,

So, I am not a hypochondriac for thinking that I have all this pain in my butt? When I stand I get this pain that runs inderneath my buttock on the left side. It lasts as long as I stand. I can stand about three minutes and then I must sit down due to excruciating pain across my lower back. I always thought I used good body mechanics.

Barb

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[Guest guest]

Rose, I probably made it sound worse than it is. I never really had any pain. They did the fusion because they thought it would relieve the symptoms of numbness and tingling in my hands and arms. It didn't help those symptoms and over the years I have developed arthritis ni the area where I had my surgery. So I say I have "a pain in the neck.". It is nothing big and It is nothing compared to those pains we have all had with sarcoid. BarbRose wrote: Barb. I'm sorry that the surgery made things worse. I also have degenerative disc disease. Last summer I had MRI's of my entire spine. There were only 2 normal discs in the entire thing! 7 years ago, I ruptured C6-7 turning over in bed. I had severe, spasm-type pain in my shoulder, deep aching pain all down my arm, complete numbness in my fingers (worse than with the carpal tunnel) and eventually, severe weakness in that arm, with total loss of reflexes. My neck never hurt, although I did get such severe muscle spasms that I couldn't turn my head at all. After trying traction & LOTS of pain pills for two months, I had an anterior fusion. I was very fortunate--the pain was relieved immediately, the weakness within a month & the numbness within a couple of months. For the first couple of days after surgery, I wasn't sure it was such a good idea, because my neck was so sore! But even

that didn't hurt as much as my shoulder had hurt, and the surgical pain resolved in a few days. I wonder why your surgery made things worse. I do know that several doctors I worked with said to be sure to have a neurosurgeon do it, rather than an orthopedic surgeon. But sometimes even the best doctors can have bad outcomes. Well, I'll let you all know what the neurosurgeon says after my visit on 3/22. Ramblin' Rose Moderator From: Barb

<wauwau75 (AT) yahoo (DOT) com>Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: RE: PainDate: Thu, 8 Mar 2007 21:34:02 -0800 (PST) Rose, I have been told in theNursing Mangement part of my career that I could be a "pain in the butt". I never heard of a Provocative Discogram. I have had an MRI and I have many "bad" discs. They did surgery on C5-C6 and C6-C7 (the pain is worse now) I have 14 discs that are all messed up. L5 and S1 have dissicated so I thought they would not cause pain any more. Until the last 6 months I never had pain and I know the discs have been bad for a long time. I could never wear a scarf on my neck or a heavy coat for very long and could not sit with my head turned to the side for very long. If I did I

got a bad headache, like a migraine. But I had no pain until they did surgery in an effort to stop the numbness in my hands. Now I have numbness and pain. SO - now I have a pain in my butt and a pain in my neck. lol I am almost embarrassed to say this but I bought a package of Doan's pills and it has helped some. I have taken care of two people with a Spinal Nerve Stimulator.and they were happy for a time with the results. After they were much older it didn't seem to help as much. Good luck to you. BarbRose <mamadogrose (AT) hotmail (DOT) com> wrote: Now, Barb, I'm not saying that you are a pain in the butt . . . ., "but" your pain is real. Mine is like severe muscle spasms that just get worse & worse the longer I stand. I can take it for awhile by rocking

& swaying, but within a few minutes I have to sit or lie down. To confirm that the pain was coming from my back I had a provocative discogram in Dec. They insert a needle into the discs that are suspected of causing the pain, in my case L3-4, L4-5 & L5-S1. That part wasn't bad, because they used a local. Then they insert dye to try to provoke your pain. If you experience the same pain you usually get, it's evidence that the disc itself is causing the pain, not referred pain from somewhere else. "Happily" for me, all 3 discs were positive. I say happily because it proved what I thought all along. The first 2 weren't too bad, but the L5-S1 was horrible; he couldn't even finish the test because the pain was so severe whenever he just got near it. So I think that one is probably the main culprit. The unhappy part is that the surgeon who ordered the test won't operate if more than two discs are involved.

I do have an appt. in a couple of weeks with a neuro-surgeon in Indy to get another opinion. If surgery is not a safe option, I'm going to look into a spinal nerve stimulator. Has anyone had experience with those? Barb, you might have used good body mechanics. I don't know how old you are, but many of us just begin to get disc degeneration as we age; probably some genetics involved too. Ramblin' Rose Moderator From: Barb

<wauwau75 (AT) yahoo (DOT) com>Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: PainDate: Wed, 7 Mar 2007 00:03:43 -0800 (PST) Rose, So, I am not a hypochondriac for thinking that I have all this pain in my butt? When I stand I get this pain that runs inderneath my buttock on the left side. It lasts as long as I stand. I can stand about three minutes and then I must sit down due to excruciating pain across my lower back. I always thought I used good body mechanics. Barb The fish are biting.Get more visitors on your site using

Yahoo! Search Marketing. Rates near 39yr lows! $430K Loan for $1,399/mo - Paying Too Much? Calculate new payment Don't pick lemons.See all the new 2007 cars at Yahoo! Autos. Mortgage rates as low as 4.625% - Refinance $150,000 loan for $579 a month. Intro*Terms

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