Clouds and Blue Sky email list

[Guest guest]

I want to announce the formation of a new email list, CloudsAndBlueSky.

This list is for parents of kids with intermittent neurological symptoms

- such as ataxia, memory problems, changes in muscle tone, sensory

changes, nystagmus, etc.

Intermittent symptoms such as these can be caused by many different

disorders, including but not limited to: Episodic Ataxia, hemiplegic

migraine, some metabolic disorders, pediatric MS, and others. Oftentimes

there are conditions that our children may have, but there are no names

for the conditions yet.

My hope is to provide a forum where we can share information on handling

episodes, medical treatments, education, our kids' accomplishments, and

other issues that affect our kids, or ourselves as caregivers.

To subscribe, send a blank email to

CloudsAndBlueSky-subscribe

Or, go to http://health.groups.yahoo.com/group/CloudsAndBlueSky/

Please feel free to pass on this information.

Thanks!

Lynne

nprw@...

[Guest guest]

I am not big on being on more than one e-mail group as the e-mails can tend to pile up quite a bit, but I think I will give this one a try for a while as the issues are ones we deal with quite a bit.

I hope you are doing well, Lynn. I think of you often.

Darla

Clouds and Blue Sky email list

I want to announce the formation of a new email list, CloudsAndBlueSky.This list is for parents of kids with intermittent neurological symptoms- such as ataxia, memory problems, changes in muscle tone, sensorychanges, nystagmus, etc.Intermittent symptoms such as these can be caused by many differentdisorders, including but not limited to: Episodic Ataxia, hemiplegicmigraine, some metabolic disorders, pediatric MS, and others. Oftentimesthere are conditions that our children may have, but there are no namesfor the conditions yet.My hope is to provide a forum where we can share information on handlingepisodes, medical treatments, education, our kids' accomplishments, andother issues that affect our kids, or ourselves as caregivers.To subscribe, send a blank email toCloudsAndBlueSky-subscribe Or, go to http://health.groups.yahoo.com/group/CloudsAndBlueSky/Please feel free to pass on this information.Thanks!Lynnenprw@...

[Guest guest]

Lynne, Just wondering if I can sign up for this list? Chelsea's neuro disorder is quite pervasive, but she does have quirks that pop up every now and then.

This might also be a way to keep in touch with my mito friends.

e, Chelsea's mom, atypical Rett's Syndrome (FKA nonspecific mito)

[Guest guest]

Yes, by all means! :-) I look forward to seeing you there!

Lynne

jayvelde@... wrote:

> Lynne, Just wondering if I can sign up for this list? Chelsea's neuro

> disorder is quite pervasive, but she does have quirks that pop up

> every now and then.This might also be a way to keep in touch with my

> mito friends.