Sarcoid and Bone Marrow

March 11, 2007

Hello,

I don't post much but often read the posts. I was just wondering if

many people have had a problem with there bone marrow - white and red

blood cell counts???? I seem to and just wondered if anyone else had?

Take Care

March 11, 2007

Hi , I have had trouble with both, I've been taking procrit for about a year.. after receiving 2 units of whole blood last year in Feburary.. Now, my Hct has taken another nose dive even on the procrit and I'm to get a blood transfusion tomorrow.. and I think they will increase my procrit from 40000units to 60000units. every week.. I was a LPN for 25 years and so I can give them to myself.. which I give my insulin 5 shots a day what's one more...I hope this works.. they never given me a reason except they call it chronic illness anemia... the problem I have with that diagnosises is, before I was sick, I was a firm believer in blood donation, I went to give blood one day, just not feeling up to par but still working 4-5 12 hour shifts a week.. just thought I was tired from all of that.. when they checked my hemagoblin, they said it was too low.. I told them something was wrong with their machine..they said nada.. they didn't think so.. so they sent me home with a box of rasins, with the instructions to follow up with my pcp.. that's when all the crap started hitting the fan.. and they found pulmonary sarc.. now, they've never given me the opportunity to tell this story.. as to why its not the Imuran, because when it started I wasn't on Imuran, actually I wasn't on anything.. Anyway, I feel for ya.. everytime I stand up or walk to the bathroom, I'm so out of breath and my heart races and beats hard up into my head, I hate that feeling.. Good luck!

-- Sarcoid and Bone Marrow

Hello,I don't post much but often read the posts. I was just wondering if many people have had a problem with there bone marrow - white and red blood cell counts???? I seem to and just wondered if anyone else had?Take Care

March 11, 2007

Thanks. I have had a problem with my white cell count being low.

Funny - it was like that before i was even on any drugs, even before

i was diagnosed with sarcoid. But now they seem to want to blame it

on the methotrexate.... My haemoglobin and Red cell count have now

just taken a nose dive into the low zone. Did you have to take iron

tablets? I have another blood test next week so we will see what is

happening but i feel very tired these days......

THanks

>

> Hi , I have had trouble with both, I've been taking procrit

for about

> a year.. after receiving 2 units of whole blood last year in

Feburary.. Now,

> my Hct has taken another nose dive even on the procrit and I'm to

get a

> blood transfusion tomorrow.. and I think they will increase my

procrit from

> 40000units to 60000units. every week.. I was a LPN for 25 years and

so I can

> give them to myself.. which I give my insulin 5 shots a day what's

one more.

> .I hope this works.. they never given me a reason except they call

it

> chronic illness anemia... the problem I have with that diagnosises

is,

> before I was sick, I was a firm believer in blood donation, I went

to give

> blood one day, just not feeling up to par but still working 4-5 12

hour

> shifts a week.. just thought I was tired from all of that.. when

they

> checked my hemagoblin, they said it was too low.. I told them

something was

> wrong with their machine..they said nada.. they didn't think so..

so they

> sent me home with a box of rasins, with the instructions to follow

up with

> my pcp.. that's when all the crap started hitting the fan.. and

they found

> pulmonary sarc.. now, they've never given me the opportunity to

tell this

> story.. as to why its not the Imuran, because when it started I

wasn't on

> Imuran, actually I wasn't on anything.. Anyway, I feel for ya..

everytime I

> stand up or walk to the bathroom, I'm so out of breath and my heart

races

> and beats hard up into my head, I hate that feeling.. Good luck!

>

> -- Sarcoid and Bone Marrow

>

> Hello,

>

> I don't post much but often read the posts. I was just wondering if

> many people have had a problem with there bone marrow - white and

red

> blood cell counts???? I seem to and just wondered if anyone else

had?

>

> Take Care

>

March 12, 2007

Hi , I have always had problems with my white blood cell count. When I first became ill, it was a big issue. Then as treatment went along, it was as well.I was on Methotrexate for about a year and it seemed to be helping a bit, anyway. Then right when then the Remicade came out, I was approved for it, (my dr. told the insurance co. that I had rheumatoid arthritis, which made it go right thru).. I was so excited, I thought the Remicade was going to be the drug to help me. I had heard such great things about it. I only got to have 2 infusions. After that my white blood cell count got dangerously low, they took me off that right away and also off the Methotrexate and any kind of immune suppressants. I was really disappointed. I couldn't even take the Methotrexate which was helping me .So even today, they watch my watch my white blood cell count. Not to scare you, but you are not

alone.Debbie T.Co-Moderator wrote:

Hi , I have had trouble with both, I've been taking procrit for about a year.. after receiving 2 units of whole blood last year in Feburary.. Now, my Hct has taken another nose dive even on the procrit and I'm to get a blood transfusion tomorrow.. and I think they will increase my procrit from 40000units to 60000units. every week.. I was a LPN for 25 years and so I can give them to myself.. which I give my insulin 5 shots a day what's one more...I hope this works.. they never given me a reason except they call it chronic illness anemia... the problem I have with that diagnosises is, before I was sick, I was a firm believer in blood donation, I went to give blood one day, just not feeling up to par but still working 4-5 12 hour shifts a week.. just thought I was tired from all of that.. when they checked my hemagoblin, they said it was too low.. I told

them something was wrong with their machine..they said nada.. they didn't think so.. so they sent me home with a box of rasins, with the instructions to follow up with my pcp.. that's when all the crap started hitting the fan.. and they found pulmonary sarc.. now, they've never given me the opportunity to tell this story.. as to why its not the Imuran, because when it started I wasn't on Imuran, actually I wasn't on anything.. Anyway, I feel for ya.. everytime I stand up or walk to the bathroom, I'm so out of breath and my heart races and beats hard up into my head, I hate that feeling.. Good luck! -- Sarcoid and Bone Marrow Hello,I don't post much but often read the posts. I was just wondering if many people have had a problem with there bone marrow - white and red blood cell counts???? I seem to and just wondered if anyone else had?Take Care

Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Yahoo! Autos' Green Center.

March 12, 2007

Hello,

Thank you for your reply. Do you mind me asking what your white cell

count got to? Did you at any time have problems with your

haemoglobin?

Thanks

#ygrp-mlmsg { FONT: x-small

arial,helvetica,clean,sans-serif } #ygrp-mlmsg TABLE { FONT-WEIGHT:

normal; FONT-SIZE: 100%; LINE-HEIGHT: normal; FONT-STYLE: normal;

FONT-VARIANT: normal } #ygrp-mlmsg SELECT { FONT: 99%

arial,helvetica,clean,sans-serif } INPUT { FONT: 99%

arial,helvetica,clean,sans-serif } TEXTAREA { FONT: 99%

arial,helvetica,clean,sans-serif } #ygrp-mlmsg PRE { FONT: 100%

monospace } CODE { FONT: 100% monospace } #ygrp-mlmsg { LINE-

HEIGHT: 1.22em } #ygrp-text { FONT-FAMILY: Georgia } #ygrp-text P {

MARGIN: 0px 0px 1em } #ygrp-tpmsgs { CLEAR: both; FONT-FAMILY:

Arial } #ygrp-vitnav { FONT-SIZE: 77%; MARGIN: 0px; PADDING-TOP:

10px; FONT-FAMILY: Verdana } #ygrp-vitnav A { PADDING-RIGHT: 1px;

PADDING-LEFT: 1px; PADDING-BOTTOM: 0px; PADDING-TOP: 0px } #ygrp-

actbar { CLEAR: both; MARGIN: 25px 0px; COLOR: #666; WHITE-SPACE:

nowrap; TEXT-ALIGN: right } #ygrp-actbar .left { FLOAT: left; WHITE-

SPACE: nowrap } .bld {

> FONT-WEIGHT: bold } #ygrp-grft { PADDING-RIGHT: 0px; PADDING-

LEFT: 0px; FONT-SIZE: 77%; PADDING-BOTTOM: 15px; PADDING-TOP: 15px;

FONT-FAMILY: Verdana } #ygrp-ft { PADDING-RIGHT: 0px; BORDER-TOP:

#666 1px solid; PADDING-LEFT: 0px; FONT-SIZE: 77%; PADDING-BOTTOM:

5px; PADDING-TOP: 5px; FONT-FAMILY: verdana } #ygrp-mlmsg #logo {

PADDING-BOTTOM: 10px } #ygrp-vital { PADDING-RIGHT: 0px; PADDING-

LEFT: 8px; MARGIN-BOTTOM: 20px; PADDING-BOTTOM: 8px; PADDING-TOP:

2px; BACKGROUND-COLOR: #e0ecee } #ygrp-vital #vithd { FONT-WEIGHT:

bold; FONT-SIZE: 77%; TEXT-TRANSFORM: uppercase; COLOR: #333; FONT-

FAMILY: Verdana } #ygrp-vital UL { PADDING-RIGHT: 0px; PADDING-LEFT:

0px; PADDING-BOTTOM: 0px; MARGIN: 2px 0px; PADDING-TOP: 0px } #ygrp-

vital UL LI { CLEAR: both; BORDER-RIGHT: #e0ecee 1px solid; BORDER-

TOP: #e0ecee 1px solid; BORDER-LEFT: #e0ecee 1px solid; BORDER-

BOTTOM: #e0ecee 1px solid; LIST-STYLE-TYPE: none } #ygrp-vital UL

LI .ct { PADDING-RIGHT: 0.5em; FONT-WEIGHT: bold;

> FLOAT: right; WIDTH: 2em; COLOR: #ff7900; TEXT-ALIGN: right }

#ygrp-vital UL LI .cat { FONT-WEIGHT: bold } #ygrp-vital A { TEXT-

DECORATION: none } #ygrp-vital A:hover { TEXT-DECORATION:

underline } #ygrp-sponsor #hd { FONT-SIZE: 77%; COLOR: #999 } #ygrp-

sponsor #ov { PADDING-RIGHT: 13px; PADDING-LEFT: 13px; MARGIN-

BOTTOM: 20px; PADDING-BOTTOM: 6px; PADDING-TOP: 6px; BACKGROUND-

COLOR: #e0ecee } #ygrp-sponsor #ov UL { PADDING-RIGHT: 0px; PADDING-

LEFT: 8px; PADDING-BOTTOM: 0px; MARGIN: 0px; PADDING-TOP: 0px } #ygrp-

sponsor #ov LI { PADDING-RIGHT: 0px; PADDING-LEFT: 0px; FONT-SIZE:

77%; PADDING-BOTTOM: 6px; PADDING-TOP: 6px; LIST-STYLE-TYPE: square }

#ygrp-sponsor #ov LI A { FONT-SIZE: 130%; TEXT-DECORATION: none }

#ygrp-sponsor #nc { PADDING-RIGHT: 8px; PADDING-LEFT: 8px; MARGIN-

BOTTOM: 20px; PADDING-BOTTOM: 0px; PADDING-TOP: 0px; BACKGROUND-

COLOR: #eee } #ygrp-sponsor .ad { PADDING-RIGHT: 0px; PADDING-LEFT:

0px; PADDING-BOTTOM: 8px; PADDING-TOP: 8px } #ygrp-sponsor

> .ad #hd1 { FONT-WEIGHT: bold; FONT-SIZE: 100%; COLOR: #628c2a;

LINE-HEIGHT: 122%; FONT-FAMILY: Arial } #ygrp-sponsor .ad A { TEXT-

DECORATION: none } #ygrp-sponsor .ad A:hover { TEXT-DECORATION:

underline } #ygrp-sponsor .ad P { MARGIN: 0px } o { FONT-SIZE:

0px } .MsoNormal { MARGIN: 0px } #ygrp-text TT { FONT-SIZE: 120% }

BLOCKQUOTE { MARGIN: 0px 0px 0px 4px } .replbq { MARGIN: 4px }

FLAVOR00-NONE-0000-0000-000000000000 4.0 ; Hi , I have

had trouble with both, I've been taking procrit for about a year..

after receiving 2 units of whole blood last year in Feburary.. Now,

my Hct has taken another nose dive even on the procrit and I'm to get

a blood transfusion tomorrow.. and I think they will increase my

procrit from 40000units to 60000units. every week.. I was a LPN for

25 years and so I can give them to myself.. which I give my insulin 5

shots a day what's one more...I hope this works.. they never given me

a reason except they call it chronic

> illness anemia... the problem I have with that diagnosises is,

before I was sick, I was a firm believer in blood donation, I went to

give blood one day, just not feeling up to par but still working 4-5

12 hour shifts a week.. just thought I was tired from all of that..

when they checked my hemagoblin, they said it was too low.. I told

them something was wrong with their machine..they said nada.. they

didn't think so.. so they sent me home with a box of rasins, with the

instructions to follow up with my pcp.. that's when all the crap

started hitting the fan.. and they found pulmonary sarc.. now,

they've never given me the opportunity to tell this story.. as to why

its not the Imuran, because when it started I wasn't on Imuran,

actually I wasn't on anything.. Anyway, I feel for ya.. everytime I

stand up or walk to the bathroom, I'm so out of breath and my heart

races and beats hard up into my head, I hate that feeling.. Good luck!

>

> -- Sarcoid and Bone Marrow

>

> Hello,

>

> I don't post much but often read the posts. I was just wondering if

> many people have had a problem with there bone marrow - white and

red

> blood cell counts???? I seem to and just wondered if anyone else

had?

>

> Take Care

>

> #ygrp-mlmsg { FONT: x-small arial,helvetica,clean,sans-serif }

#ygrp-mlmsg TABLE { FONT-WEIGHT: normal; FONT-SIZE: 100%; LINE-

HEIGHT: normal; FONT-STYLE: normal; FONT-VARIANT: normal } #ygrp-

mlmsg SELECT { FONT: 99% arial,helvetica,clean,sans-serif } INPUT {

FONT: 99% arial,helvetica,clean,sans-serif } TEXTAREA { FONT: 99%