Suzanne -- Neuro-opthamologist

[Guest guest]

Suzanne --

Thanks for your post! Did you find a pediatric neuro-opthamologist? Also, if

you wouldn't mind, I'd be interested in finding out who you went to.

I was able to find one at NYU, which is only a few hours from me by train, but

not at any children's hospitals.

Thanks,

-- In Mito , " Embroidery Journal " wrote:

> Regarding your doctors vision, my mito doc asked me to take my daughter

to a

> nuero-opthamologist for an evaluation. There are only 300 in the country, so

> it may be rather tricky, however I found it to be very beneficial.

>

>

>

> They try to help determine the cause of the vision impairment or muscle

> weakness if it is nuerological, or energy related or otherwise.Some

> specialize in young children and some do not. In my case, my daughter has

> several eye muscle impairments that make her vision still functional, but

> helped pinpoint the mito.

>

>

>

> There is also a flash erg test that will help determine if the retina is

> affected- which often is the case with mitochondrial. This however may

> require sedation, so check with your doctor, and research affects of

> anesthia on mito patients ( see www.umdf.org http://www.umdf.org/> ) for

> paper written by Bruce Cohen on the subject.

>

>

>

> Anyway, I would research this and try to find that type of appointment (

> nuero-opthamologist). Bring brain MRI with you and complete med. History.

My

> opthamologist is the best in town but I was amazed at the 4 pages of info

> the nuero-opthamologist found and how it helped us.

>

>

>

>

> Suzanne

> http://us.adserver.yahoo.com/l?M=298184.5285298.6392945.3001176/D=

grphealth

> /S=:HM/A=2319501/rand=452059560>

>

> ( mom to Zoe, 27 mos. Suspected mito and scad ( fod)

>

> _____

>

>

[Guest guest]

I am in Phoenix Arizona

and we had one here. Yes, I found her myself. I take my daughter to the Cleveland

Clinic , she sees Dr. Cohen, he recommended it and like I said I thought it really

helped define what was happening with her vision and what the cause may be. Good

luck- I definitely think nuero’s are the ones in the know to find the nuero-opthamologists,

but not a lot of no’s see children….

From:

Sent: Thursday, August 26, 2004

6:42 AM

To: Mito

Subject: Suzanne -- Neuro-opthamologist

Suzanne --

Thanks for your post! Did you find a

pediatric neuro-opthamologist? Also, if

you wouldn't mind, I'd be interested in finding

out who you went to.

I was able to find one at NYU, which is only a few

hours from me by train, but

not at any children's hospitals.

Thanks,

-- In Mito , " Embroidery

Journal " <suzanne@e...> wrote:

> Regarding your doctors vision, my mito doc asked me to take

my daughter

to a

> nuero-opthamologist for an evaluation. There

are only 300 in the country, so

> it may be rather tricky, however I found it

to be very beneficial.

>

>

>

> They try to help determine the cause of the

vision impairment or muscle

> weakness if it is nuerological, or energy

related or otherwise.Some

> specialize in young children and some do not.

In my case, my daughter has

> several eye muscle impairments that make her

vision still functional, but

> helped pinpoint the mito.

>

>

>

> There is also a flash erg test that will help

determine if the retina is

> affected- which often is the case with

mitochondrial. This however may

> require sedation, so check with your doctor,

and research affects of

> anesthia on mito patients ( see www.umdf.org <http://www.umdf.org/> ) for

> paper written by Bruce Cohen on the subject.

>

>

>

> Anyway, I would research this and try to find

that type of appointment (

> nuero-opthamologist). Bring brain MRI with

you and complete med. History.

My

> opthamologist is the best in town but I was

amazed at the 4 pages of info

> the nuero-opthamologist found and how it

helped us.

>

>

>

>

> Suzanne

> <http://us.adserver.yahoo.com/l?M=298184.5285298.6392945.3001176/D=

grphealth

> /S=:HM/A=2319501/rand=452059560>

>

> ( mom to Zoe, 27 mos. Suspected mito and scad ( fod)

>

> _____

>

>