Guest guest Posted March 13, 2007 Report Share Posted March 13, 2007 , My MRI states " chronic sinusitis " . I always have dry vocal chords, hoarseness and my sinuses feel weird. But of course they just put it off on something else. Do you have any issues with the parotid gland? Mine swells and at times (left side) has gotten quite large. Oh well, just thinkin out loud. Terri > > This is M > > I have thickening of my sinus's too. My nose and mouth are so dried out they hurt. I must put saline down my nose to get my voice box wet so that you can her me when I talk. > > I must uses artificial salvia and also artificial tears and special eye drops. My eyes get so dried out that I can actually feel the cells dehydrate when I put in cyclosporine in them. > I am going in and have special contact lenses that fit over my whites of my eyes to keep them mosist. It is something new that Mayo has. > I'm just recovering from my third open heart surgery they replaced a pig valve that had gone bad a second time, but now this new one is starting to have the same problem all the others had ,they think microscopic blood clots are forming on the back side of it and it sticks open to far. > they upped my comedian to give the valve time to heal. Then my next check up is with my cardiologist and the surgeon, so now I'm scared. Im doing well now but get times that last about 30 sec I cant get air at all. > > Its been awhile now and I am doing well, but walking on the tred mill I get pain in my neck pressure pain. > M > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2007 Report Share Posted March 13, 2007 Terri, have they considered Sjogren's syndrome? Dry eyes, dry mouth & swollen Parotid's are 3 prominent symptoms. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: SDate: Wed, 14 Mar 2007 02:33:13 -0000 ,My MRI states "chronic sinusitis". I always have dry vocal chords,hoarseness and my sinuses feel weird. But of course they just put itoff on something else. Do you have any issues with the parotid gland? Mine swells and at times (left side) has gotten quite large.Oh well, just thinkin out loud.Terri>> This is M>> I have thickening of my sinus's too. My nose and mouth are so driedout they hurt. I must put saline down my nose to get my voice box wet sothat you can her me when I talk.>> I must uses artificial salvia and also artificial tears and specialeye drops. My eyes get so dried out that I can actually feel the cellsdehydrate when I put in cyclosporine in them.> I am going in and have special contact lenses that fit over my whitesof my eyes to keep them mosist. It is something new that Mayo has.> I'm just recovering from my third open heart surgery they replaced apig valve that had gone bad a second time, but now this new one isstarting to have the same problem all the others had ,they thinkmicroscopic blood clots are forming on the back side of it and it sticksopen to far.> they upped my comedian to give the valve time to heal. Then my nextcheck up is with my cardiologist and the surgeon, so now I'm scared. Imdoing well now but get times that last about 30 sec I cant get air atall.>> Its been awhile now and I am doing well, but walking on the tred millI get pain in my neck pressure pain.> M> With tax season right around the corner, make sure to follow these few simple tips. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2007 Report Share Posted March 14, 2007 they upped my comedian to give the valve time to heal. Then my next check up is with my cardiologist and the surgeon, so now I'm scared. Im doing well now but get times that last about 30 sec I cant get air at all. Many comedians should be upped. Of that I am sure! , I know you mean coumadin-- the blood thinner. I'm wondering if the lack of air is that you are holding your breath-- instead of doing the inhale thru your nose, exhale FULLY thru persed lips. I'll explain more of this is another email-- as I have to go on to my son's computer so they cna do their workout in my computer room--- Hugs, Tracie************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2007 Report Share Posted March 14, 2007 Rose, Yep checked for Sjogren's - everything was negative. As a side note, I have a daughter-in-law that was just diagosed with Lyme's disease. This child hates it outdoors but put together a large golf/picnic in the fall for the bank she works for - Bingo. She has a great prognosis and it was caught in early stages although she has some arthritis in the wrist and knee. Gotta get her well so she can start on some babies. I need some grandbabies! Terri G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2007 Report Share Posted March 15, 2007 M, This is S. Good news on the contact lenses for your eyes. Hope they help alot. I am so sorry to hear you are having trouble with the newest work done on your heart. Is the sarc possibly causing some rejection problems?... Going without air is the most frightening thing to go through.. I had vocal cord dysfunction (caused by sarc) when this last bad flare(7plus years ago) happened. I would start coughing and then wheeze in and not be able to catch my breath for a long time. While I was coughing I'd also lose everything in my bladder, too, so wore 'help' for about eight months til it eased up with treatment. To this day I go NOWHERE without a bottle of water so my throat doesn't get dry and I start coughing. I am glad to hear you are up and walking. I hope you get good news with your cardio appointment. I also hope and pray the meds help your heart to heal up and accept the new valve. You surely deserve some good news and some good results for once. My prayers and good thoughts go with you. Take it easy. hugs S. Mommer wrote: This is M I have thickening of my sinus's too. My nose and mouth are so dried out they hurt. I must put saline down my nose to get my voice box wet so that you can her me when I talk. I must uses artificial salvia and also artificial tears and special eye drops. My eyes get so dried out that I can actually feel the cells dehydrate when I put in cyclosporine in them. I am going in and have special contact lenses that fit over my whites of my eyes to keep them mosist. It is something new that Mayo has. I'm just recovering from my third open heart surgery they replaced a pig valve that had gone bad a second time, but now this new one is starting to have the same problem all the others had ,they think microscopic blood clots are forming on the back side of it and it sticks open to far. they upped my comedian to give the valve time to heal. Then my next check up is with my cardiologist and the surgeon, so now I'm scared. Im doing well now but get times that last about 30 sec I cant get air at all. Its been awhile now and I am doing well, but walking on the tred mill I get pain in my neck pressure pain. M Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Yahoo! Autos' Green Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2007 Report Share Posted March 15, 2007 , I’m sorry you’re having problems again; I will keep you in my prayers, and hope the medication works, so you won’t need another surgery! Hang tough girl, I’m pulling for you. J Marla Bramer " Faith sees the invisible, believes the incredible and receives the impossible " From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Mommer Sent: Tuesday, March 13, 2007 12:36 PM To: neuro sarc group Subject: S This is M I have thickening of my sinus's too. My nose and mouth are so dried out they hurt. I must put saline down my nose to get my voice box wet so that you can her me when I talk. I must uses artificial salvia and also artificial tears and special eye drops. My eyes get so dried out that I can actually feel the cells dehydrate when I put in cyclosporine in them. I am going in and have special contact lenses that fit over my whites of my eyes to keep them mosist. It is something new that Mayo has. I'm just recovering from my third open heart surgery they replaced a pig valve that had gone bad a second time, but now this new one is starting to have the same problem all the others had ,they think microscopic blood clots are forming on the back side of it and it sticks open to far. they upped my comedian to give the valve time to heal. Then my next check up is with my cardiologist and the surgeon, so now I'm scared. Im doing well now but get times that last about 30 sec I cant get air at all. Its been awhile now and I am doing well, but walking on the tred mill I get pain in my neck pressure pain. M Quote Link to comment Share on other sites More sharing options...
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