Re: - Hand, foot, mouth disease has struck us too!

[Guest guest]

Other than Zipporrah being very crabby and a low grade fever she seems

to be handling it well. It did just hit me last night pretty hard and

another of my kids has a terrible migraine (like me) and both of us feel

very run down. I am sure it will pass quickly, but really wish we could

have avoided it! Thanks for your help. The ones who can eat will be

given the freezer yummies. Unfortunately for Zipporrah, the worst one, she

can't eat orally yet! Especially anything that produces liquid or extra

saliva, so guess we will have to just hope she gets through it quick.

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy,SID, dev. delays, asthma, chronic vomiting...

Zipporrah (10 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma, trach

issues, disautonomy, hypo & hypertonicity, migraines, possible seizures,

dumping syndrome...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (7), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Re: Hand, foot, mouth disease has struck us too!

> Hi Darla:

>

> Well I'm back from our summer place and have ALOT of emails to read

> through.

> Anyway, yes it is quick. Lasts about 3 days; but the blisters may last up

> to a

> week longer. Leah had a mild case of it. but she didn't want to drink

> much. I

> think it was more due to the fever than the sore throat because the next

> day she

> started eating again. The good news for kids is our ped always

> recommended

> popsicles, ice cream, and cold drinks. Jello works well, too. In order

> for

> your kids to have gotten it, your friends kids must have still had a

> fever.

> Because according to our nurse you aren't contagious when you have the

> blisters. Just the fever. Even if it was a very low grade fever, they

> were

> still contagious. And I agree with you that wasn't smart thinking on her

> part.

> I have a good friend who will tell me when they have a cold and not to

> bring

> Leah over to play or they can't take care of Leah because they are

> concerned she

> will get the colds they have. I always thank her for her thoughtfulness.

> Bedrest and cool drinks is all I can offer. But Leah handled it well.

> But then

> again, each child with mito handles illnesses differently and I would be

> concerned with yours. How is it going?

>

> Nerenhausen

> mom to leah

>

> Darla Klein wrote:

>

> > About a week and a half ago a friend stopped by our house and AFTER

> > Zipporrah was playing with her kids (as well as several other of my

> > children) she informed me her kids were just getting over foot, hand,

> > and

> > mouth disease. NOW our whole family has it too!!! I am frustrated that

> > a

> > friend would expose my kids when they KNOW about my kids' propensity

> > toward

> > strokes with viruses. All 9 of my kids as well as my hubby and I have

> > the

> > characteristic soar throats and blisters on the tongue and throat.

> > Zipporrah also has the blisters on her feet, legs, arms, hands, and

> > basically all over. Being a baby, she got it the worst and for this one

> > time I am actually happy she has the G-tube rather than having to orally

> > eat

> > for total sustenance. I know her throat must be very soar the way it

> > looks.

> > I have been totally run down, having a migraine, soar throat, and was

> > wondering why until we saw the ped and she told us what we were dealing

> > with. I know others have had this and would appreciate any helpful

> > hints

> > dealing with it. I have been told it is pretty quick and usually not

> > too

> > bad, but with Mito it is such an unknown.

> >

> > Darla: mommy to Asenath, Zipporrah, and the gang

> >

> >

> > Please contact mito-owner with any problems or

> > questions.

> >