Guest guest Posted March 16, 2007 Report Share Posted March 16, 2007 Tony, How did you finally get your dx? I am still in the probable category and my symptoms started 7-8 years ago. Thanks. Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2007 Report Share Posted March 16, 2007 Terri, I had a flair which resulted paralysis on the left side of my face. I went in to see a neurologist who I had seen years earlier due to what was described as 'ideopathic demylenating peripheral neuropathy " . In other words, I lost the feeling in my hands & feet but they had no clue as to why. This time around, the neuro was thinking along the lines of Bell's palsy, at least until the paralysis became bi- lateral. He briefly mentioned something about neurological sarcoid. I had no clue what he was talking about so I asked...good thing I have a big mouth. The symptoms he described were similiar to some of mine...then he mentioned skin lesions. I held out my hands and showed him the nodules on my fingers. He sent me off to a dematologist for a biopsy. The report came back describing the lesions as non-caseacting granulomas. After 14+ years after the initial flair I had a diagnosis...I have sarcoid. Hang in there...Tony > > > Tony, > > How did you finally get your dx? I am still in the probable category > and my symptoms started 7-8 years ago. > > Thanks. > > Terri > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2007 Report Share Posted March 18, 2007 Tony, Well, if I follow your time line; I am about half-way there. Thanks for the enouragement. I appreciate it. Terri G. > > > > > > Tony, > > > > How did you finally get your dx? I am still in the probable category > > and my symptoms started 7-8 years ago. > > > > Thanks. > > > > Terri > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2007 Report Share Posted March 21, 2007 >Hi Tony, I was diagnosed with a lymphnoid biopsy than a brain biopsy and a biopsy in my mouth where is seems to have begun! The spinal taps are always normal so i do not have taps anymore. Anne > > Tony, > > How did you finally get your dx? I am still in the probable category > and my symptoms started 7-8 years ago. > > Thanks. > > Terri > Quote Link to comment Share on other sites More sharing options...
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