Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 Hi everyone! Hope all is well with you and the flares are few and mild. My days are so wacky right now but I will try to post daily. But I have been reading the mail for the past few days. If anyone wants or need me is s absence feel free to write me anytime. love, hugs and hope Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 Hi everyone! Hope all is well with you and the flares are few and mild. My days are so wacky right now but I will try to post daily. But I have been reading the mail for the past few days. If anyone wants or need me is s absence feel free to write me anytime. love, hugs and hope Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 In a message dated 11/13/01 7:37:04 PM Pacific Standard Time, rpawareness@... writes: << If anyone wants or need me is s absence feel free to write me anytime. >> Angie, we always need you!!! You better start posting everyday! We all need to hear from you.. The newbies don't even know you and they must get to know the founder of the group... Hope you are as pain free as possible and can't wait to hear from you daily... LOl sending lots of hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 In a message dated 11/13/01 7:37:04 PM Pacific Standard Time, rpawareness@... writes: << If anyone wants or need me is s absence feel free to write me anytime. >> Angie, we always need you!!! You better start posting everyday! We all need to hear from you.. The newbies don't even know you and they must get to know the founder of the group... Hope you are as pain free as possible and can't wait to hear from you daily... LOl sending lots of hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 In a message dated 11/28/01 2:29:26 PM Pacific Standard Time, sisterslk@... writes: << I was on Plaquenil and had no side effects whatsoever. Hope you get started and it helps you. >> Thanks Sharon, think I'll start it tonight or tomorrow...You know me, I always have a strange reaction to drugs. Dr. says its from the fibro... I will think possitive and not have any side effect either... How are all your babies..??? Bet they are getting big (grandbaby and puppy) lOl hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 In a message dated 11/28/01 2:29:26 PM Pacific Standard Time, sisterslk@... writes: << I was on Plaquenil and had no side effects whatsoever. Hope you get started and it helps you. >> Thanks Sharon, think I'll start it tonight or tomorrow...You know me, I always have a strange reaction to drugs. Dr. says its from the fibro... I will think possitive and not have any side effect either... How are all your babies..??? Bet they are getting big (grandbaby and puppy) lOl hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 --- RCColloran@... wrote: > Still haven't had a cigarette. > > I was suppose to start Planquenil last week, but > they changed my heart > medicine and I didn't want to start 2 new drugs at > one time. Can any of you > tell me if you are on plaq. WAY TO GO, CLAUDIA, ON THE NON-SMOKING! I was on Plaquenil and had no side effects whatsoever. Hope you get started and it helps you. Take care, Sharon ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 --- RCColloran@... wrote: > Still haven't had a cigarette. > > I was suppose to start Planquenil last week, but > they changed my heart > medicine and I didn't want to start 2 new drugs at > one time. Can any of you > tell me if you are on plaq. WAY TO GO, CLAUDIA, ON THE NON-SMOKING! I was on Plaquenil and had no side effects whatsoever. Hope you get started and it helps you. Take care, Sharon ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 --- RCColloran@... wrote: > Thanks Sharon, think I'll start it tonight or > tomorrow...You know me, I > always have a strange reaction to drugs. Dr. says > its from the fibro... I > will think possitive and not have any side effect > either... > > How are all your babies..??? Bet they are getting > big (grandbaby and puppy) > lOl > > hugs > Oh , please don't have a reaction to this drug! You know the famous saying-- " just say NO " ! My sister was on plaquenil also and she didn't have side effects either. My babies are all getting big. Got to play with my three year old granddaughter for a bit today, and will take care of baby Logan tomorrow. He is already 3 1/2 months old, and is as cute as can be. My granddaughter, Cassandra, (the 3 year old) sent me an e-card yesterday and it said, " why don't you come over and play in my room and do what I say " . I could sure tell those were her exact words! My bruiser of a puppy is about twice as big as she was when I got her three weeks ago. But, she is still my baby--or so she thinks. Her favorite thing is when I sit at my computer. She comes and lays on my fuzzy slippers and falls asleep. So sweet! How are your daughters and granddaughter? Hope all is well. I will say a prayer that the plaq will not make you sick. Love, Sharon ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 --- RCColloran@... wrote: > Thanks Sharon, think I'll start it tonight or > tomorrow...You know me, I > always have a strange reaction to drugs. Dr. says > its from the fibro... I > will think possitive and not have any side effect > either... > > How are all your babies..??? Bet they are getting > big (grandbaby and puppy) > lOl > > hugs > Oh , please don't have a reaction to this drug! You know the famous saying-- " just say NO " ! My sister was on plaquenil also and she didn't have side effects either. My babies are all getting big. Got to play with my three year old granddaughter for a bit today, and will take care of baby Logan tomorrow. He is already 3 1/2 months old, and is as cute as can be. My granddaughter, Cassandra, (the 3 year old) sent me an e-card yesterday and it said, " why don't you come over and play in my room and do what I say " . I could sure tell those were her exact words! My bruiser of a puppy is about twice as big as she was when I got her three weeks ago. But, she is still my baby--or so she thinks. Her favorite thing is when I sit at my computer. She comes and lays on my fuzzy slippers and falls asleep. So sweet! How are your daughters and granddaughter? Hope all is well. I will say a prayer that the plaq will not make you sick. Love, Sharon ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 , I was on Plaqunil for several months-- before being diagnosed with RP. I had no side effects from it. I tend to be a person who doesn't have side effects from medicine though. Good luck with it!! Kathi >From: RCColloran@... >Reply-To: Rpolychondritis >To: Rpolychondritis >Subject: Hi All >Date: Wed, 28 Nov 2001 12:39:37 EST > >Well, I've done it again... I've waited too long to read my mail and now >I've >bombarded you with tons of mail...Sorry. Just a little up date. > >Still haven't started my Christmas shopping. LOL >Did put up my tree and decorated the WHOLE house. >Got my flu shot yesterday......FINALLY! >Still haven't had a cigarette. > >I go back to Stanford on Sunday for a Monday appt with the ENT and to have >a >ultrasound of my aorta to check for an anyeurism (I know that's spelled >wrong)LOL >Then I go back on the 11th for another PFT and to see the Pulmonologist. >Then I go back on the 19th to have a bone density test. Whew......think >that >about covers it, unless the ENT and pulmonologist want more appt. LOL >Think >I've found a wonderful group of drs, so well worth the trip. > >I was suppose to start Planquenil last week, but they changed my heart >medicine and I didn't want to start 2 new drugs at one time. Can any of >you >tell me if you are on plaq. and if you have any side effects...I would >appreciate any input. I'm so chicken to start another new drug.. I haven't >had much luck with the others...Don't want to get sick........the I really >wouldn't get my shopping done. LOL > >I talked to Marie-Pia today and she said that Coralie is doing better. > is sick again also. Please keep them in your thoughts. > >Hope everyone is doing okay.... I will try to keep up better... > >hugs > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 , I was on Plaqunil for several months-- before being diagnosed with RP. I had no side effects from it. I tend to be a person who doesn't have side effects from medicine though. Good luck with it!! Kathi >From: RCColloran@... >Reply-To: Rpolychondritis >To: Rpolychondritis >Subject: Hi All >Date: Wed, 28 Nov 2001 12:39:37 EST > >Well, I've done it again... I've waited too long to read my mail and now >I've >bombarded you with tons of mail...Sorry. Just a little up date. > >Still haven't started my Christmas shopping. LOL >Did put up my tree and decorated the WHOLE house. >Got my flu shot yesterday......FINALLY! >Still haven't had a cigarette. > >I go back to Stanford on Sunday for a Monday appt with the ENT and to have >a >ultrasound of my aorta to check for an anyeurism (I know that's spelled >wrong)LOL >Then I go back on the 11th for another PFT and to see the Pulmonologist. >Then I go back on the 19th to have a bone density test. Whew......think >that >about covers it, unless the ENT and pulmonologist want more appt. LOL >Think >I've found a wonderful group of drs, so well worth the trip. > >I was suppose to start Planquenil last week, but they changed my heart >medicine and I didn't want to start 2 new drugs at one time. Can any of >you >tell me if you are on plaq. and if you have any side effects...I would >appreciate any input. I'm so chicken to start another new drug.. I haven't >had much luck with the others...Don't want to get sick........the I really >wouldn't get my shopping done. LOL > >I talked to Marie-Pia today and she said that Coralie is doing better. > is sick again also. Please keep them in your thoughts. > >Hope everyone is doing okay.... I will try to keep up better... > >hugs > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 HI Coralie has been on plaquenil during 4 years without side effects neither good(lol) Marie-pia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 HI Coralie has been on plaquenil during 4 years without side effects neither good(lol) Marie-pia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Hi, I was on Plaquinel for a couple years. No side effects but then I got a really bad case of some sort of dermatitis. Plaquinel is known to produce skin problems. Just be aware....Sue M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Hi, I was on Plaquinel for a couple years. No side effects but then I got a really bad case of some sort of dermatitis. Plaquinel is known to produce skin problems. Just be aware....Sue M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 In a message dated 11/29/01 8:23:51 AM Pacific Standard Time, grandm4@... writes: << I was on Plaquinel for a couple years. No side effects but then I got a really bad case of some sort of dermatitis. Plaquinel is known to produce skin problems. Just be aware....Sue M >> Thanks Sue.. I appreciate the information... The dr told me it could cause problems with my eyes too.. That it why I had to see an opthomolagist before starting. She didn't say anything about skin problems...Do they ever tell you everything? LOL Was it just a rash or what? I sure hope you are doing better.. You sure have had a rough time... Know I'm thinking of you and hoping you will be better real soon. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 In a message dated 11/29/01 8:23:51 AM Pacific Standard Time, grandm4@... writes: << I was on Plaquinel for a couple years. No side effects but then I got a really bad case of some sort of dermatitis. Plaquinel is known to produce skin problems. Just be aware....Sue M >> Thanks Sue.. I appreciate the information... The dr told me it could cause problems with my eyes too.. That it why I had to see an opthomolagist before starting. She didn't say anything about skin problems...Do they ever tell you everything? LOL Was it just a rash or what? I sure hope you are doing better.. You sure have had a rough time... Know I'm thinking of you and hoping you will be better real soon. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Dear , I just to so ticked off...no wonder I " m not better. My pcp only puts me on the minium of everything. All that time on Plaaquinel was only 200 mg. No I did not get eye exams or anything else. It has to do with no insurance. The major side effect of Plaq is skin problems. My legs and arms broke out majorly...Not on the body but arms and legs. They didn't really itch just hurt and were disgusting to look at. Big red welts. In fact after over 8 months some are still there. Can't get the ones on my feet and lower legs to clear up. Two doctors and several medications did not clear it up. You take care of YOU...Sue M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Dear , I just to so ticked off...no wonder I " m not better. My pcp only puts me on the minium of everything. All that time on Plaaquinel was only 200 mg. No I did not get eye exams or anything else. It has to do with no insurance. The major side effect of Plaq is skin problems. My legs and arms broke out majorly...Not on the body but arms and legs. They didn't really itch just hurt and were disgusting to look at. Big red welts. In fact after over 8 months some are still there. Can't get the ones on my feet and lower legs to clear up. Two doctors and several medications did not clear it up. You take care of YOU...Sue M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 OMG I may just take you up on that!!!! Im having a really hard time!! > > > > > > Just checking in with everyone. Ive been reading along, just > really > > > really busy right now with school and work. Im glad everyone is > doing > > > so well. Dont forget about me..Im here. Hopefully I can post more > > > soon. I wish everyone well, even if I dont get a chance to post > saying > > > wooohoooo or congrats > > > > > > Huggles...Im thinking about all of you > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 Barbara, Are you in Bay Point? I am. Donna"Hokoana, Barbara" wrote: Hey ! I am great at Algebra if you need some help and I'm right down the street! Barbara (LTLJSMOM) From: Diane Duenas Sent: Tuesday, October 11, 2005 12:40 PMTo: gastric-bypass-support-kaiser-patients Subject: Re: Hi All Thanks CathyIm working on my BA in education. I have my AA in early childhood education already. This semester I took the wrong classes together; biology and algebra...two very demanding classes. On top of that we are getting ready for our state contract monitoring review at work, have a co worker out for a month due to a fall and just overwhelmed. Im not sure Im gonna make it. I feel like Im drowning.Plus I have surgery next week!Huggles> >> > Just checking in with everyone. Ive been reading along, just really > > really busy right now with school and work. Im glad everyone is doing > > so well. Dont forget about me..Im here. Hopefully I can post more > > soon. I wish everyone well, even if I dont get a chance to post saying > > wooohoooo or congrats> > > > Huggles...Im thinking about all of you> >>Donna JordonDSJordon@... Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 Yes Ma'am I am! On Island View! Where are you? Barbara (LTLJSMOM( From: Donna Jordon Sent: Wednesday, October 12, 2005 10:21 PMTo: gastric-bypass-support-kaiser-patients Subject: RE: Re: Hi All Barbara, Are you in Bay Point? I am. Donna"Hokoana, Barbara" wrote: Hey ! I am great at Algebra if you need some help and I'm right down the street! Barbara (LTLJSMOM) From: Diane Duenas Sent: Tuesday, October 11, 2005 12:40 PMTo: gastric-bypass-support-kaiser-patients Subject: Re: Hi All Thanks CathyIm working on my BA in education. I have my AA in early childhood education already. This semester I took the wrong classes together; biology and algebra...two very demanding classes. On top of that we are getting ready for our state contract monitoring review at work, have a co worker out for a month due to a fall and just overwhelmed. Im not sure Im gonna make it. I feel like Im drowning.Plus I have surgery next week!Huggles> >> > Just checking in with everyone. Ive been reading along, just really > > really busy right now with school and work. Im glad everyone is doing > > so well. Dont forget about me..Im here. Hopefully I can post more > > soon. I wish everyone well, even if I dont get a chance to post saying > > wooohoooo or congrats> > > > Huggles...Im thinking about all of you> >>Donna JordonDSJordon@... Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 I'm in the Lynn Brook, Rivershore homes on the other side of Port Chicago, the side where Bon Fair sets on. If you turn in on I'm back in down there at le. I know we went to support group together, and I realized I knew her from past years when her oldest boy and my 2 boys played baseball together. I know she lives close, not sure where. Donna"Hokoana, Barbara" wrote: Yes Ma'am I am! On Island View! Where are you? Barbara (LTLJSMOM( From: Donna Jordon Sent: Wednesday, October 12, 2005 10:21 PMTo: gastric-bypass-support-kaiser-patients Subject: RE: Re: Hi All Barbara, Are you in Bay Point? I am. Donna"Hokoana, Barbara" wrote: Hey ! I am great at Algebra if you need some help and I'm right down the street! Barbara (LTLJSMOM) From: Diane Duenas Sent: Tuesday, October 11, 2005 12:40 PMTo: gastric-bypass-support-kaiser-patients Subject: Re: Hi All Thanks CathyIm working on my BA in education. I have my AA in early childhood education already. This semester I took the wrong classes together; biology and algebra...two very demanding classes. On top of that we are getting ready for our state contract monitoring review at work, have a co worker out for a month due to a fall and just overwhelmed. Im not sure Im gonna make it. I feel like Im drowning.Plus I have surgery next week!Huggles> >> > Just checking in with everyone. Ive been reading along, just really > > really busy right now with school and work. Im glad everyone is doing > > so well. Dont forget about me..Im here. Hopefully I can post more > > soon. I wish everyone well, even if I dont get a chance to post saying > > wooohoooo or congrats> > > > Huggles...Im thinking about all of you> >>Donna JordonDSJordon@... Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Donna JordonDSJordon@... Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Im on Water street which is directly behind the new Tower Mart being built > > > > > > Just checking in with everyone. Ive been reading along, just > really > > > really busy right now with school and work. Im glad everyone is > doing > > > so well. Dont forget about me..Im here. Hopefully I can post more > > > soon. I wish everyone well, even if I dont get a chance to post > saying > > > wooohoooo or congrats > > > > > > Huggles...Im thinking about all of you > > > > > > > > > > > > > Donna Jordon > > DSJordon@y... > > --------------------------------- > Yahoo! Music Unlimited - Access over 1 million songs. Try it free. > > Quote Link to comment Share on other sites More sharing options...
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