Hi all

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We're all right by each other! Schedules are very business, but at least we're close. Donna Diane Duenas wrote:

Im on Water street which is directly behind the new Tower Mart being built> > >> > > Just checking in with everyone. Ive been reading along, just > really > > > really busy right now with school and work. Im glad everyone is > doing > > > so well. Dont forget about me..Im here. Hopefully I can post more > > > soon. I wish everyone well, even if I dont get a chance to post > saying > > > wooohoooo or congrats> > > > > > Huggles...Im thinking about all of you> > >> >> >

> > > > > > Donna Jordon> > DSJordon@y... > > ---------------------------------> Yahoo! Music Unlimited - Access over 1 million songs. Try it free. > >

[Guest guest]

Just thought I give yuu a quick update on happenings in sarcland

Washington.

After seeing the rhuemy and hearing that I would be able to start on

mxt soon, she called back and said that I have a serious vitamin D

deficit, and proscribed 50,000 mg's twice a week for the next eight

weeks until it is back where it should be, then we can start the new

therapy. (Seems like a long time, but I have already waited 15 years

for a treatment that works, eight little weeks ain't goin to kill me)

Meanwhile back at the ranch, (ok, it's not a ranch just a crappy

little city lot), I saw my neuro guy again, now you have to realize

that this guy is my new hero after steppin on my GP and his diagnosis

of 'stupid, lazy, ignorant and generally a real rock sucker of a guy,

(for those of you who haven't heard the medical term 'rock sucker', it

is much like my long deceased uncle's description of stupid people,

aka " dumber than a bag 'o' hammers " ', and went on to say that maybe,

just maybe it is the sarcoid causing the problems and the fact that I

am a rock sucker is only secondary to the disease.

He has suggested that I try a drug that should relieve my nerve pain

in my hands feet and face, now because I am a rock sucker I can only

remember the name of one of these drugs, " Celebrex " , and am only kinda

sure that's the right name, but after this amazingly precise

description I was hoping that someone might know what these drugs are

and if they work for what he is suggesting, also what are the side

effects. I still haven't made up my mind as the pain is tolerable at

present, as long as I am on the Prednisone, but I am worried that once

I start the taper after going on MXT, they will become much, much

worse like they did the last time they tried to take my dose of Pred down.

Any information you might have would be greatly appreciated, oh and as

for the rock sucker thing, I swear I haven't had a rock in my mouth

for at least three or four weeks, so there Dr. Dumbo!!! (yep, that's

really his name,(remember those hammers?), and it has nothing to do

with his prodigious ears!!)

Stu

[Guest guest]

Stu, Dr. DUMBo...? Don't you think a doc in his right mind might? have changed his name before 'practising' medicine...? hmmmm. Was that your first hint...lol? You know your sense of humor and sarcastic wit will carry you far dealing with this sarc beast...See yourself handling a sword and fighting the sarc-dragon? I do! Did he really write all that stuff in your records?! Bastard. keep hanging in there S.lizzyandstu wrote: Just thought I give yuu a quick update on happenings in sarclandWashington. After seeing the rhuemy and hearing that I would be able to start onmxt soon, she called back and said that I have a serious vitamin Ddeficit, and proscribed 50,000 mg's twice a week for the next eightweeks until it is back where it should be, then we can start the newtherapy. (Seems like a long time, but I have already waited 15 yearsfor a treatment that works, eight little weeks ain't goin to kill me)Meanwhile back at the ranch, (ok, it's not a ranch just a crappylittle city lot), I saw my neuro guy again, now you have to realizethat this guy is my new hero after steppin on my GP and his diagnosisof 'stupid, lazy, ignorant and generally a real rock sucker of a guy,(for those of you who haven't heard the medical term 'rock sucker', itis much like my long

deceased uncle's description of stupid people,aka "dumber than a bag 'o' hammers"', and went on to say that maybe,just maybe it is the sarcoid causing the problems and the fact that Iam a rock sucker is only secondary to the disease. He has suggested that I try a drug that should relieve my nerve painin my hands feet and face, now because I am a rock sucker I can onlyremember the name of one of these drugs, "Celebrex", and am only kindasure that's the right name, but after this amazingly precisedescription I was hoping that someone might know what these drugs areand if they work for what he is suggesting, also what are the sideeffects. I still haven't made up my mind as the pain is tolerable atpresent, as long as I am on the Prednisone, but I am worried that onceI start the taper after going on MXT, they will become much, muchworse like they did the last time they tried to take my dose of Pred down.Any

information you might have would be greatly appreciated, oh and asfor the rock sucker thing, I swear I haven't had a rock in my mouthfor at least three or four weeks, so there Dr. Dumbo!!! (yep, that'sreally his name,(remember those hammers?), and it has nothing to dowith his prodigious ears!!)Stu

Get your own web address. Have a HUGE year through Yahoo! Small Business.

[Guest guest]

Stu,

Get out and get some sunshine--I think it's available in Washington right now-- heck, what do I know, I'm in sunny hot California where we're breaking heat records for March. It's been 80+ for the last week. If I remember right-- when it was this hot in March-- it was gonna be a bugger of a summer.

Oh, well, maybe I'll go up to WA.

Take care, and yes, your humor will help get ya thru. (so my therapist says--(and what is behind that humor-- are you covering up some serious fear...- sometimes she can be a real pain in butt)

Tracie************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.