specialist appt... hypoglycemia, palmitate oxidation, etc

[Guest guest]

well we are now testing brandons blood sugar 4 times a day because

it was so low for his fasting test (under 50). his palmitate

oxidation was 30% (normal is 100% i was told).

this after all his july tests were normal! carnatine, lactait, it

all came back normal, but nowthis! I was so excited about his good

results i didnt expect this at all.

so we are being booked for a muscle biopsy, hopefully in the next

few months. i dont know what the wait is like up here (canada) but

i imagine it will be a while.

in the mean time i have to figure out how to poke my child every 6

hours.

anyone test their kiddos sugar on a regular basis? brandons 21

months, any suggestions???

how do you keep their sugar from dropping overnight while they

sleep... his is always so low first thing in the morning that he

cant even stand up well... he shaky and sweaty and just a mess...

[Guest guest]

Hypoglycemia seems to run our house sometimes. We have been advised, though, that testing is not really necessary since it is obvious when she is low. We are treating it with a high complex carb diet during the day. She is two years old, so sometimes it is not as strict as others. We also feed her about every hour or two. She commonly needs just a little snack here and there. Although we are unable to do it anymore, raw cornstarch works great to maintain blood sugar during the night. We started giving Grace 1 tsp. of uncooked cornstarch right before bedtime (you can put it in applesauce, pudding, or whatever). It may sound strange but it really works well. Unfortunately for Grace she needed too much for her tummy to handle, and constipation became a big issue. We are now dealing with finding a way to keep her blood sugar maintained during the night. It is looking like she will have to be on a feeding pump all night. She already has a g tube in place, we just do not feed her through it, so we are trying everything else first.

In the morning I will try to have a sippy already made for her waiting in the fridge. She is also bad first thing, so it is routine for her to get up and go straight to the kitchen for a drink and a snack. We will then give her breakfast about an hour later. It helps the shakes.

Best wishes.