pulmonary sarcoidosis

[Guest guest]

Hi,

This is Abhishek and my mother is recently diagnosed with Pulmonary Sarcoidosis.

She has the problem of short breath and all other symptoms including dark black patches in the XRay of lung. Earlier, due to having same symptoms, my mother was thought of having Tuberclosis and was treated for the same for nearly more that nine months with heavy antibiotics. She has started taking medicines for sarcoidosis from two months. But the Xray still shows the same black patches as earlier.

Can you help me in making me aware which cautions she has to take now so that the problem should not get worse. Well the doctor has told that the problem is in its second stage. What does second stage generally mean and how much possible is it to get rid of the problem fully? Besides that, i would also like to know how much bad impact the medicines taken for TB would have made on her condition. And is there any permanent cure of the problem?

I would really appreciate if you could help me in any of the questions that i have in my mind and give me additional information that i can not even think about. It will be a great help for my mother directly.

Thanks

Abhishek

Re: Anemia issues

In a message dated 3/11/07 8:15:54 PM Pacific Standard Time, topdat (AT) bellsouth (DOT) net writes:

everytime I stand up or walk to the bathroom, I'm so out of breath and my heart races and beats hard up into my head, I hate that feeling.. Good luck!

,Did they ever add the Folic Acid? If not, ask-- (demand) that they give you a script for at least 1mg a day. With our history of immunosupressive therapies-- this is one that the meds have permanently wiped out.Also-- this is also a sign of hypo or hyperthyroid. Either one can give you the heartbeat to the chest. With you being so extremely anemic-- there isn't enough redblood cells in your blood to carry oxygen anywhere! So you probably need supplemental oxygen also. Please ask for a PFT-- and have them see what your DLCO levels are. Diffusion Lung Capacity Oxygenation. This will tell them what is happening as your are

trying to walk around. Chances are that even if your pulse oxygenation shows 94 or 95%, you get up to move around, and you drop to the low 80%. This would show the need for portable oxygen at all times.What happens is that as we sit around the house, our bodies have acclimated to this-- and so sitting still, we're ok. We have numbness in our extremities, and we've come to think of this as normal. It's not!It is our bodies way of salvaging the oxygen we have to keep our organs functioning, and now you want to get up and go the bathroom. Your body needs more oxygen to the extremities, and so what little bit you have- becomes immediately depleted, and you are dizzy and lightheaded. When you sit back down, you may even notice that your extremities become even more numb and tingling- burning-- as your vital organs grab the oxygen again to survive.My local pulm refuses to look at the DLCO-- and so that has put me into the place

of having to have the specialist in LA instruct him. It will and is causing pulmonary hypertension- - and with oxygen supplemention- - we may be able to put off that PPH for a few more years. (It causes the lungs to need more oxygen, so the lungs make the heart pump harder and faster, and that makes the pulmonary artery have to handle increased blood pressure, and that makes the artery thicken to handle the increased blood pressure to the lungs-- and as it thickens- it narrows, and then we throw the blood clot that will hopefully kill us rather than leave us with a serious stroke and incapitation. )Get on it girlfriend, you have all the symptoms!Love ya,TracieNS Co-owner/moderator************ ********* ********* ********AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol. com.