Re: OT (sort of) and long--oh no, I really need some guidance with diet

January 8, 2010

,

This has to be a shock, I am so sorry. I hope I can help clear up some diet

questions.

One of the main functions of the kidney is the Urea Cycle which removes nitrogen

from the body. The main source of nitrogen in the diet is protein, so the

suggested diet limits protein. Much of the extra foods- like cherry pie, have no

real value except to give you extra calories and fill you up since you can not

eat too much protein. I can't imagine that eating pie would do anything for your

kidneys.

It is harder, but possible, to stay on SCD and limit protein. Instead of this

sample diet, is it possible to get a more specific diet such as how many grams

of protein, etc. you can have?

Then, hopefully, you can take these requirements to a sympathetic dietitian who

can help you work this out within the parameters of SCD. Nut flours have

protein, but less than steak, so perhaps with limits on the very high protein

foods you can still stay on a " legal " diet.

I hope you feel better soon.

PJ

>

> I was the one who posted about iron and needing some for pregnancy. I just

found out yesterday after some tests that I have stage 3 kidney disease, so for

now, pregnancy is on hold. A while ago I posted about having blood in my urine

and asked if anyone had had that experience with their medications. All

preliminary tests, surgeries, biopsies, ect. came back normal, but now I learn

this!! They are saying that my anemia could very well be because of the kidney

disease. My drs are urging me to adopt a diet that will halt my kidneys from

becoming more damaged, which I am used to doing anyway for my colon...trouble is

eating for my kidney health means compromising my colon health. Basically, from

what I have read, I will have to drastically cut out most of the foods I eat for

my UC/C and add in foods I have not touched in such a long time. Here is a

sample daily menu that they gave me of what would be acceptable:

>

> Breakfast

>

> • 1/2 cup (4 ounces) orange juice • 1 English muffin or 2 slices bread

> • At least one tablespoon margarine with jelly

> • Coffee or tea with non-dairy creamer and sugar

>

> SNACK

>

> • 2 canned pear halves in heavy syrup

>

> LUNCH

>

> • 2 slices white bread • At least 2 tablespoons mayonnaise with lettuce and

tomato

> • 1 ounce chicken (such as a small thigh) or 1 hard boiled egg

> • 2 canned peach halves in heavy syrup

> • 7-UP, lemonade or Hawaiian Punch

>

> SNACK

>

> • Baked apple with 1/2 cup non-dairy whipped topping

>

> DINNER

>

> • 3-4 ounces steak (weigh after cooking, without bone) , sauté in tablespoons

olive oil

> • 1 small baked potato with at least 2 tablespoons margarine

> • 1/2 cup fresh green beans, carrots or broccoli with margarine

> • Lettuce, onions, cucumbers, green pepper

> • At least 2 tablespoons olive oil with vinegar or lemon

> • 1/8 apple or cherry pie with 1/2 cup fruit sorbet (this is not sherbet)

> • Iced tea with sugar and lemon or Sprite

>

> SNACK

>

> • 1 small banana and 10 vanilla wafers

> • Coffee or tea with non-dairy creamer and sugar

>

> NOTE: Olive oil, margarine and mayonnaise contain little or no protein.

>

> OMG!!! What am I going to do?!? Half of this food isn't even real, of course

I am not going to eat it!! You guys, I don't know what to do. I know you are

not doctors and I know you don't give medical advice, but how can I eat to

maintain the health of BOTH my intestines AND my kidneys? I will have to live

on small amounts of meat (they said I am eating WAY too much protein), coconut

oil (they were frowny with this) and fruit and very few veggies (I don't

tolerate raw ones very well). I don't know how to do this and I am beside

myself, freaking out. Anyone else have this conundrum? I am basically talking

out loud just to talk because I feel like I am about to explode, but if anyone

can help, I would be very thankful.

>

> UC/C (2003/2002)

> Stage 3 Kidney disease

> Remicade (which I might be stopping)

> SCD since May of 2007

>

January 8, 2010

Don't panic [grin]

I found that due to my upper GI dysfunctions, I can't eat everything that is

permitted on SCD -- in fact, I ended up only able to tolerate about half of the

food suggestions. But I do very well on the SCD foods my body accepts. I found

it helpful to do research into my digestive disorders so I'd understand better

what I should avoid. Then I considered each of the SCD permitted foods, and

started trying them. I also have to deal with other health issues besides

digestive, and again, I apply what I understand about the processes to my SCD

food choices.

If I was experiencing kidney disease, I would still stay on SCD to help my colon

health. I'd certainly not eat the starches and the fruit in heavy syrup!! I

would take what my doctor advised me to eat, do my research on the disease or

disorder, then figure out what SCD foods were OK and what were off-limits.

From the little I've come across on kidney issues, too much protein is one of

the problems. So you can cut back on the meat, fish and eggs, and eat more

cooked veggies and other SCD foods that work well for your digestion as well as

your kidneys. Don't need to go to raw veggies yet -- or ever. You are probably

just beginning to experience significant colon healing aren't you, after two

years on SCD? I wouldn't want to go backwards.

I have found it relatively easy to apply the different restrictions and

strategies the various health issues my body experiences with my food choices on

SCD. Took some experimenting, of course, and I had to do my research to

understand the processes at work so I'd know better what foods (and supplements)

would help or hinder. My doctors couldn't help me, and the one dietician I went

to knew nothing about SCD, so I just figured out what would work best for me.

If you can find a dietician familiar with SCD, and with kidney disease, then it

would be helpful to have a meeting with them. I'd still trust my own instincts

about things, and would adjust the recommendations based on my body's reactions.

But it would be a place to start.

Kim M.

SCD 5+ years