Re:e-Clouds and Blue Sky email list

[Guest guest]

Feel free to keep a part of the Mito too! We have had others that

found out Mito wasn't a part of their daughter's issues that still pop in

now and then to say hi. You have been a part of the group for so long I am

sure NO-ONE would care if you stayed. But I am also sure you are welcome to

this group too. It would be sad NOT to hear from you!

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy,SID, dev. delays, asthma, chronic vomiting...

Zipporrah (10 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma, trach

issues, disautonomy, hypo & hypertonicity, migraines, possible seizures,

dumping syndrome...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (7), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Re: Clouds and Blue Sky email list

> Lynne, Just wondering if I can sign up for this list? Chelsea's neuro

> disorder is quite pervasive, but she does have quirks that pop up every

> now and then.

> This might also be a way to keep in touch with my mito friends.

>

> e, Chelsea's mom, atypical Rett's Syndrome (FKA nonspecific mito)

>