Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Ann updated her Heartbeats for Mito web site to include a photo journey into Mito using Asenath and Zipporrah since we had lots of medical photos. Take a look at it as she did a great job. Brought tears to my eyes to see it there. I hope many people who visit the site get a good look into what it is like to have a Mito child/children and that this site and the book Ann has put together will help educate many. A big round of applause for Ann for doing all of this!!! Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy,SID, dev. delays, asthma, chronic vomiting... Zipporrah (10 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma, trach issues, disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping syndrome... Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (7), Kezia (3), & Marquis (2) (some with Mito symptoms) Quote Link to comment Share on other sites More sharing options...
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