Guest guest Posted March 20, 2007 Report Share Posted March 20, 2007 Barb, I think you were the one who mentioned the stem cell trial in Chicago. I talked to a research nurse about that project & she mailed me a packet of info. I was really intrigued, but the cost was prohibitive, plus I would have had to spend weeks at a time in Chicago (4 hrs. from home), with no one there to bunk with. I haven't seen anything recently, but it sounded promising, using the patient's own stem cells. Ramblin' Rose Moderator i'm making a difference. Make every IM count for the cause of your choice. Join Now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 Rose, Yes, I got the packet also. They told me they would find a donor in my family. You know when my daughter had her baby two years ago we tried to get them to save his cord blood and we weretold that nobody was close to doing anything like this. They would not save it. You know, I live much closer to Chicago and I don't want to stay there for all that time either. Did they quote you a price? They just told me that if I had insurance there would be no problem. I said I must have some insurance that I am not aware of becasue my insurance questions everything. Think about it though, to be all well again.Do you think it would woprk? Barb Rose wrote: Barb, I think you were the one who mentioned the stem cell trial in Chicago. I talked to a research nurse about that project & she mailed me a packet of info. I was really intrigued, but the cost was prohibitive, plus I would have had to spend weeks at a time in Chicago (4 hrs. from home), with no one there to bunk with. I haven't seen anything recently, but it sounded promising, using the patient's own stem cells. Ramblin' Rose Moderator i'm making a difference. Make every IM count for the cause of your choice. Join Now. 8:00? 8:25? 8:40? Find a flick in no time with theYahoo! Search movie showtime shortcut. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2007 Report Share Posted March 26, 2007 Barb, my understanding was that they used your own stem cells. At the time I didn't have insurance, so no help there. I don't remember if she actually quoted costs, but I know it seemed out of reach for me, and the time in Chicago was impossible because my teenage granddaughter was living with me at the time. One of these days I'll search the Web for any new information. At the time I talked to them, they had only tried it on a few (I'm thinking less than five) sarc patients; maybe there is more info now. It would be great if it stopped the sarc in its tracks, but I wonder if it would reverse any of the damage we already have, especially nerve damage. Let me know if you find out anything. I'm living alone now, so at least that wouldn't be a problem, as long as I could find a pet sitter! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: stem cell trialDate: Sun, 25 Mar 2007 01:16:18 -0700 (PDT) Rose, Yes, I got the packet also. They told me they would find a donor in my family. You know when my daughter had her baby two years ago we tried to get them to save his cord blood and we weretold that nobody was close to doing anything like this. They would not save it. You know, I live much closer to Chicago and I don't want to stay there for all that time either. Did they quote you a price? They just told me that if I had insurance there would be no problem. I said I must have some insurance that I am not aware of becasue my insurance questions everything. Think about it though, to be all well again.Do you think it would woprk? Barb Rose <mamadogrose (AT) hotmail (DOT) com> wrote: Barb, I think you were the one who mentioned the stem cell trial in Chicago. I talked to a research nurse about that project & she mailed me a packet of info. I was really intrigued, but the cost was prohibitive, plus I would have had to spend weeks at a time in Chicago (4 hrs. from home), with no one there to bunk with. I haven't seen anything recently, but it sounded promising, using the patient's own stem cells. Ramblin' Rose Moderator i'm making a difference. Make every IM count for the cause of your choice. Join Now. 8:00? 8:25? 8:40? Find a flick in no timewith theYahoo! Search movie showtime shortcut. Exercise your brain! Try Flexicon. Quote Link to comment Share on other sites More sharing options...
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